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CH Old timer (Read 1608 times)

maryo

CH.com Veteran

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Johnny & Roy puzzle where
to apply the O2 mask

Posts: 171
x1|Little Deer Isle|USA|usa|536|53|ME,Maine
Gender: female

CH Old timer
Feb 11^th, 2014 at 10:23pm

This year I celebrate my 62nd birthday AND [drum roll] 34 years with CH. Today the insurance company requested MD notes to verify my diagnosis Smiley

Anyhow, I hate to add to the whine factor, but I just wanted to share with an audience that can appreciate my situation my utter demoralization that my CH have become the most active ever after 3 years of being the most inactive ever. Am busy refreshing the arsenal of abortives and tomorrow will add the O2 tank bedside. Fingers crossed I won't have to up my verapamil again. As ever, hate to mention my issue to anyone lest I hear for the thousandth time, "Do you think it's stress?" People! It's a disease. Smiley

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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: CH Old timer Reply #1 - Feb 11^th, 2014 at 10:34pm You can say it a million times, and i will still listen. Fingers x for you. Hoppy.
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CH Brain

Ex Member

Re: CH Old timer
Reply #2 - Feb 12^th, 2014 at 3:41am

This year I celebrate my 39th Birthday and 35th year of CH.
Not much to celebrate really... By the time I'm 62...well...
It sucks when they come back in all their glory to remind one of the exquisite, unique pain that they are...not that any human needs reminding...

My condolences, maryo, but CH veterans know what to do when this disease rears it's ugly head.
It looks like you have the CH experience and supporters here too. Not so many CHers around the world are as lucky, anyway...

I hope it goes back wherever it was the last 3 years for you. Best Wishes and good luck with it.

Cheers, Ben.

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maryo CH.com Veteran Offline Johnny & Roy puzzle where to apply the O2 mask Posts: 171 x1\|Little Deer Isle\|USA\|usa\|536\|53\|ME,Maine Gender:	Re: CH Old timer Reply #3 - Feb 12^th, 2014 at 8:35am I hate the verapamil side effects, but when those are not happening, I have to anticipate that verapamil is not far from not working. Not able to get in to see the neuro until late April . . . although, really, there's not much he can do.
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maryo

CH.com Veteran

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Johnny & Roy puzzle where
to apply the O2 mask

Posts: 171
x1|Little Deer Isle|USA|usa|536|53|ME,Maine
Gender: female

Re: CH Old timer
Reply #4 - Mar 20^th, 2014 at 10:08pm

Hope this is only a "trend" and not a pattern here to stay -- had 2 month episode in early 2013, then 4 month episode mid-2013, just finished 2.5 month episode. Hope we're not headed for 12 out of 12! This after a few years of very little activity during which I gave up keeping an arsenal of abortives. So am back to fighting the same old battles (insurance re: oxygen, medical supplier re: why oxygen concentrator is not helpful, friends that no this is not stress). Couldn't get one of my favorite abortives for when I travel (PO cafergot) so ordered online through a "Canadian" pharmacy that in retrospect was probably shady and risky but, hey, they threw in two Viagra for good measure. Which makes me wonder, have any of you guys ever used Viagra, and is it a trigger? Considering that CH is a bit like a hemicranial hard-on! Sorry for the lewdness, I guess I'm giddy from being free of the beast for a while . . . and I get potty mouth in the best of times and the worst of times.

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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: CH Old timer Reply #5 - Mar 20^th, 2014 at 10:51pm maryo wrote on Mar 20^th, 2014 at 10:08pm: Which makes me wonder, have any of you guys ever used Viagra, and is it a trigger? Not used it but would be wary of doing so with active CH due to its effect on the circulatory system.
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Callico

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Author of "Stranded at
Romson's Lodge

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Aurora IL
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Re: CH Old timer
Reply #6 - Mar 21^st, 2014 at 4:16am

Haven't used the Viagra after hearing other's reactions with it. Rather a trigger from what I gather. It's a shame, really, because Verap will sure take the lead out of your pencil! Even after you've been off of it for 10 yrs.

Look into the Vit D regimen. It has done wonders for many of us, and it may prevent you from needing to up the Verap.

Isn't the equinox fun???

Jerry

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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