Hello, My name is James

I'm 48 yrs old and from the UK. I first suffered from what I now know to be CH in February 2006, shortly after the birth of my first daughter. This episode ran until later August. My attacks varied from 4-8 a day. The severity varied alot, although not in a random manner. Rather my attacks would ebb and flow over periods of weeks, becoming slowly more severe, or slowly less so.
My attacks occurred very much at certain, predictable times of the day and night, an I could almost set my watch by these times. I say almost because these times would last a week or two, and then they may move to another time that itself would become predictable for week or two.
As with most people I'm sure, I went through a series of medical professionals in order to establish what was wrong with me, before eventually being advised to request that my GP refer me to the National Hospital for Neurology and Neurosurgery.
Due to their waiting list at the time, I wasn't seen by them until February 2007, by which time my episode had finished. I was diagnosed by descripting my symptoms alone.
Afew tests followed, including a CT Scan to check for aneurisms
Interestingly (as I have seen no mention of this medication on this site), I was prescribed Indometicin 25mg, along with Lanzoprozole (to alleviate any side effects of the indometicin)
I have found this medication to be fantastic for me!
Since 2006, I have had afew episodes, but until my current one, none have lasted more than 2-3 weeks, and have always been very mild. The worst of these occurred for 3 weeks over the Christmas period of 2010. My current episode however began in early August 2013, and shows no sign of abating.
I have read the horror stories of other's experiences with CH, but I don't consider that my suffering compares with this. I assume that my CH is on the milder side of things.
My attacks are always to the right side of my head, and are noted for the nerve pain fanning out over the right side of my head, that makes the whole area sensitive to touch; the profuse running of my right eye and nostril; not to mention the expected stabbing sensation around and above me right eye. My attacks rarely last more than 15-20 minutes though, the severe period, if there is one, only lasts 10 minutes or so. I find that I can handle this pain, because I know that it will not last long. But then, I don't think that my severity compares in any ways to that experienced by many others. And anyway, thanks to my medication, severe attacks are occurring at a rate of perhaps only 1-2 a week. Far harder for me to deal with is the 'Shadow'. If I forget my medication, by around 10am a cloud will descend upon me and I find it difficult to concentrate. It's kind of like having the worst possible hangover head. Some days I experience this even with my medication. I think that, without my medication, I would struggle to function on a daily basis, if I'm honest. So far, this episode has lasted for just over 6 months.
I would make one point to anyone in the UK. You can request that your GP refers you to any specialist in the UK. CH is a pretty specialist subject and whilst most GP's are aware of it, I think it's fair to say that few have a much greater knowledge than you or I. Ask to be referred to The National Hospital of Neurology and Neurosurgery. It may take time, but at least you'll get the best advice in the end
Secondly, I'd ask whether anyone else has had experience or knowledge of Indometicin as a treatment for CH?
Thankyou for reading this far!