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So everyone who knows me has been sending me this: (Read 1610 times)

TeeJ2379

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So everyone who knows me has been sending me this:
Feb 26^th, 2014 at 2:27pm

Our local NBC affiliate ran a story about clusters today. My Facebook and phone blew up people telling me about it. Nothing new, nothing I didn't know. But at-least its getting some press, most likely due to the DC event going on.

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Re: So everyone who knows me has been sending me this:
Reply #1 - Feb 26^th, 2014 at 3:31pm

Thanks for posting this. It's good to see the problem is getting some attention in the media. I did learn ONE thing from this report - it says Medicare doesn't cover oxygen. As a chronic CHer who will soon be on Medicare, this is frightening to me. Now I am wondering whether and to what extent Medicare covers trex, especially trex injections. Anyone have any info on this?

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ClusterHeadSurvivor CH.com Junior Offline I Survive not suffer Posts: 42 Ontario Canada Gender:	Re: So everyone who knows me has been sending me this: Reply #2 - Feb 26^th, 2014 at 6:57pm also this video is out... (which I am in) Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or @ClusterHead Tom on twitter ClusterHeadSurvivor YouTube page Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or ONS and DBS recipient. IP Logged

JustNotRight

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Re: So everyone who knows me has been sending me this:
Reply #3 - Feb 27^th, 2014 at 8:05am

We suffer the most excruciating pain and continue to go un-noticed or ignored in DC praying the press etc will help us get some things done this year!

While I've had some issues with how some news articles portray CH on the whole I am please to see all the news coverage I've been seeing! Thank you to all those who have given their hard earned time and money to our cause! Smiley

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ClusterHeadSurvivor CH.com Junior Offline I Survive not suffer Posts: 42 Ontario Canada Gender:	Re: So everyone who knows me has been sending me this: Reply #4 - Feb 28^th, 2014 at 10:18am haha...nice sig pic....its my name on every single Cluster Head site,forum,YouTube page and my blog....(made me smile)
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or @ClusterHead Tom on twitter ClusterHeadSurvivor YouTube page Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or ONS and DBS recipient. IP Logged

JustNotRight

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CH version 15.0.8 member
since 2005 aka GingerS224

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Wilkes-Barre, Pa (USA)
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Re: So everyone who knows me has been sending me this:
Reply #5 - Mar 1^st, 2014 at 9:26pm

ClusterHeadSurvivor wrote on Feb 28^th, 2014 at 10:18am:

haha...nice sig pic....its my name on every single Cluster Head site,forum,YouTube page and my blog....(made me smile)

Hehe Like that huh? It spoke to me on a day when I had one to many hits. It's been my pic ever since Cheesy

Oh duh the Sig. Pic (pardon my dumb azz moment) I actually made that Years (Feb of 2010 to be precise) ago, long before knowing you or your site.

« Last Edit: Mar 1^st, 2014 at 9:32pm by JustNotRight »

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An eye for eye only ends up making the whole world blind.
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ClusterHeadSurvivor CH.com Junior Offline I Survive not suffer Posts: 42 Ontario Canada Gender:	Re: So everyone who knows me has been sending me this: Reply #6 - Mar 2^nd, 2014 at 9:24am I started that sig in 2009....whether we are episodic or Chronic like me...we are all Cluster Headache Survivors
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or @ClusterHead Tom on twitter ClusterHeadSurvivor YouTube page Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or ONS and DBS recipient. IP Logged

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