Well I certainly agree with your sentiment, but I am curious. What has been your cluster headache odyssey? Telling your story would not only build credence here, it often helps others who are experiencing similar things. Blessings. lance

Thanx for the welcome.

I'm a 58yo white male with a history of migraine since childhood, a 10 plus year tale of chronic CH, a periodic, episodic CH lasting 8yrs, an apparently random relapse or two out of nowhere for a month or two. Then a relapse of 6 months or so as a result of carbon monoxide poisoning.I think. I have been in remission for three years or so but the shadows still threaten, along with an occasional icepick lasting for but a moment. I still get an occasional migraine,
oddly on the opposite side



I'm out of work, permanently, due to disabilities, probably unrelated to CH, and find myself with some time to maybe offer some support to clusterheads.

I was around to provide some of the first links this site offered to fellow travelers.



I picked those links up at ASHM. That would be, alt.support.headaches.migraine. Back then, round about 1994 or so, the usenet, listerve, was a really big deal. It was all we had.

I posted an, "I'm at the end of my rope" missive and was promptly admonished! I was also welcomed and hugged.

Thanx to Bob and Karen I became aware just how long the rope could be and that I was not alone. That options were
available.



I was branded "not just a neanderthal but theneanderthal" by an obviously suffering member.



Just think, theneanderthal, the neanderthal! I got a promotion from some dumb guy to *the!*

The narcotic meds were readily available and offered but temporary relief. The narcotic meds in fact induced CH to keep on coming. SRI's helped, cafergot and cafergot PB helped, Imetrex nasal helped when it became available. I sucked on the oxygen side of the rig I used for brazing refridgeration piping. And I coped as best I could.