Hi,

I've been having an episode for a few weeks now. About 12 months since the last one... This time around I have noticed something new. Besides my usual pain in and around my left eye, I have a small spot just behind the top of my ear, about 2 or 3 centimeters towards the back of the head... This spot is aching as hell during a hit, radiating out to the neck, and is also extremely tender/painful during the rest of the days, both when pressing it and also just making the shadows worse.

Does anyone else have this?

When an attack is just beginning, I can usually find a small, sore spot behind my ear on the affected side. The occipital nerve is involved. I have found over decades of dealing with this, that gently applying a frozen gel pack from the freezer (or even just some ice) for 15-20 minutes right on the area can be a first line of defense if you catch it early. Even if you don't catch it early, it can bring some temporary relief.
~patti

I have that pain behind my ear, in my neck and back of my head. I too use a frozen gel pack to put pressure and cold on those areas for a little relief, not to mention to cool my face, head and neck down as it feels like a lava making machine!