Im assuming its different for everyone. But it seems to kick in around 6am- 7 being the worst and last till about 7am. And from 3-6 i could feel it comming on. Yesterday, i didnt feel it this bad jusg the dull headache on the right, and the whole day I was pretty much fine without taking any meds. I didng take any meds for the past two days till this am.

Just talked to the neurologist on the phone, he said lets try the 50 mg of sumatriptan. And he said the ct scan ruled out anything major but still wants me to get the MRI. I guess this is all trial and error. And hes still saying migraines or cluster headaches and isnt definitive on what it is.

I also said about imitrix auto injectors and it sounds like i could get anything I want. This is how the VA system works? Is anyone else on here using the VA?

If you have had one for like 18 days would it make you feel tired and exausted. Im going to go ahead and try and get further tests run at my primary care doc if I can get in. Today was rough, mostly feom lack of sleep. Finally got some sleep but I always seem to get on here around 12-6 and then lack of sleep makes it worse. But at this point i feel like rip van winkle, all I do is sleep, and if im not sleeping i have a headache. They actually called me back to get an MRI today because of a cancellation but I was already half way to Philly. Went to the ER this morning cause i was freaked out feeling super confused after this headache, they took a sinus xray, and that was ok. Just feel tired of feeling tired. Anyways,going to attempt to take something to make me sleep. Sincerly, rip van winkle. Lol

Hi Jamess,
Indomethicin is normally given to rule out other headaches
that mimic CHs, so if you are getting relief then it's possible
your not suffering from CHs because Indomethicin is mostly
ineffective when treating CHs,also be careful when taking
this as it can play havoc with your stomach.

Hoppy.

I asked the ER nurse about this, and she said that usually only happens in severe cases. But ill take yalls word for it and ask my primary care doc next week.

I mean on headache that has lasted in some shape or form for 18 days straight. Sometimes its severe and when it is , I get confused. So I guess this isnt cluster headaches from what y'all are exlaining. Maybe I have to find a forum on paraxoimal hemocranias now lol

I really hope you have found what you need. It's good to get relief isn't it?       Don't forget to get something to protect your stomach. You don't want to swap headaches for serious ulcers.
Good luck, and let us know how you get along.
Maz.

So far my headaches have been gone for the past four days. I only am experiencing a weird feeling, like im not myself. I have a pretty big pimple on the exact location where the intense pain was, so maybe that is linked to this. The eyelid twitching has stopped, but Ill occasionally get a sharp pain to the right side, but it subsides. I have stopped all medications such as indomethicin, and I feel like I have a headache pharmacy going on in my medicine cabinet. I refuse to take anything unless this headache comes back full force.

I told the Nurse Practitioner at the VA outpatient clinic about my migranes or whatever they are. And she told me that, thats how migranes are supposed to be. Im pretty sure just regular migranes only last for about 72 hours, then subside. I mean, im happy that im pain free right now, but I feel as though I have anxiety now, and am in constant fear of stuff.  I was never like this before. Im also feeling pretty paranoid lately. I need to get a grip for real!!!

Other things I have noticed today although the headache is gone,  my right ear hurts. And it feels like the right side of my head ( where the headache was) is healing from a bruise type of feeling.

Ive pretty much given up on telling people ny symptoms now, because people are starting to think im nuts!! And I'm starting to believe them because, this all has been quite weird.

Life ia short though, I can't just sit around and complain all the time.


Just now, it feels like I have head pressure and when I swallowed my ears are making like a popping noise, as if you are in an airplane.


Whatever im so over this thing. Vent over lol