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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › New from Indiana

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New from Indiana (Read 1552 times)

cwf1966

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New from Indiana
Jun 23^rd, 2014 at 8:39pm

My wife found this site a few days ago and I am glad she did. I am 48 years old and was diagnosed in 2009. I have to say that after reading some of the posts, I feel like I have nothing to complain about. I am in my 4th fight with this monster in 5 years. Nothing compared to most on here. I usually get them in the spring and fall, usually 18 months apart. This time is different. It was over 2 years this time and it's hit in the summer. And it has hit with a vengeance. Well, I just wanted say hello and I'm glad this site is here. Looks like I'm going to be pacing here shortly. Have a good night everyone.

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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: New from Indiana Reply #1 - Jun 24^th, 2014 at 7:08pm G'day, cwf. Welcome home.
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

shoot CH.com Junior Offline CH.com members are the BEST!!! Posts: 26	Re: New from Indiana Reply #2 - Jun 30^th, 2014 at 3:02am Hello Indiana,sucks you have to be here but misery loves company. Im Indiana too,I have a great neuro down in New Albany if you arent happy with yours,feel free to PM me if you want to compare notes on treatments and what not...shoot
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Linda_Howell

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Re: New from Indiana
Reply #3 - Jul 2^nd, 2014 at 6:17pm

Quote:

I feel like I have nothing to complain about. I am in my 4th fight with this monster in 5 years.

complain all you want. That is why this site was put up here. THAT and all the information to help folks.

whether you are episodic (which is what you are) or chronic..you will find that all of us will empathize with you and try to help.

Hurt people.....hurt people. Think about it.

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blacklab Ex Member	Re: New from Indiana Reply #4 - Jul 3^rd, 2014 at 8:40am hi cwf, and welcome, there's plenty of help to had here, make sure you read up about the vit d3 regime, its helped a lot of people here, including me. I've learnt a lot since finding this place, didn't know about redbull, O2 etc etc etc, goodluck colin
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icepicksundae

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Re: New from Indiana
Reply #5 - Jul 6^th, 2014 at 8:26pm

Hi there! { big hug } to you and so sorry to hear you have this terrible pain, it's really not fair.

Hang in there, and if it is not that bad now, just learn all you can and see if you can stop the beastie in its tracks!

- water
- water
- did i mention water?

- oxygen non-rebreather mask 100% 15-25 lpm (I use 8-13 lpm foolishly trying to ration o2 and get about 80% success rate)
- sumatriptan for headaches that won't respond to oxygen, but can only do this a few times a week (heart)
- prednisone & tramadol for headaches that won't respond to sumatriptan, but can only do this a few times a year (immune system etc...)

little things that don't fix it but take the edge off:
- ice packs
- intraoral massage masseter & other muscles in mouth
- caffeine (use with caution... rebound)
- driving fist into face & pulling hair
(okay be careful, you don't want to hurt yourself, lol!)

I feel you, hang in there, and know that you're not alone!

you are your own best advocate!

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