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maz

CH.com Hall of Famer

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I Love CH.com!

Posts: 1071
Hampshire, England
Gender: female

My CH.com anniversary
Jun 28^th, 2014 at 8:45am

A year ago today since I joined CH.com. I just want to say thank you so much every one for your suggestions and support.

I was at my wits end till I found you all. I had no idea that there were drugs to abort and prevent CH. I didn't even know about 02. No doctor had ever offered me anything to fight this except pain killers and we all know how much use that is. I found out about everything from you guys and had to ask for it myself. It says a lot when you know more about your condition than your (several) doctors and more or less prescribe for yourself.

So thanks again every one. I am so much better now that I have friends all over the world. Cheesy

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Callico

CH.com Hall of Famer

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Author of "Stranded at
Romson's Lodge

Posts: 4916
Aurora IL
Gender: male

Re: My CH.com anniversary
Reply #1 - Jun 28^th, 2014 at 5:58pm

Happy anniversary, my friend!

As for the medical community, don't expect to get much help. My Neurologist is Associate Professor of Neurology at Loyola University Medical, and he frequently brings in students and tells them to talk to me about CH because I know more about it than does he. He is not ignorent, and is an excellent[i] neuro. I'm very grateful for him, but I'm most grateful he knows how to listen, doesn't think the conferrence of an MD degree conferred diety, and he knows what he doesn't know and is not ashamed to admit it. If you can find such a doctor your will be blessed indeed!

Glad you were able to be helped, and i look forward to having you around her for a long time, PF, but still helping others as you were helped.

Jerry
[/i]

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: My CH.com anniversary Reply #2 - Jun 29^th, 2014 at 1:45am One year on and what a transformation. It's amazing just how much you can learn here from others. And you've repaid and more all the help you received by helping many, many others with your helpful replies.
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AussieBrian

CH.com Hall of Famer

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CH - It's all in your
head!

Posts: 3851
Cairns, Qld, Australia
Gender: male

Re: My CH.com anniversary
Reply #3 - Jun 30^th, 2014 at 6:00am

maz wrote on Jun 28^th, 2014 at 8:45am:

So thanks again every one. I am so much better now that I have friends all over the world. Cheesy

The only pill for sadness is happiness,
The only cure for loneliness is friends.
When things ain't looking great,
And you're surrendering to fate,
You need a mate upon you can depend.

Our CH is a pain like no-one else knows,
And we'd never-ever wish it upon them.
We battle through as best we can,
Hand in hand we make our stand,
And as a band we are creme de la creme.

It's our mates who get each of us through it.
Our supporters who back us all the way.
We now have hope, and might is right,
We can cope, an end's in sight,
We thank ch.com, and our friend DJ.

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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com

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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: My CH.com anniversary Reply #4 - Jul 2^nd, 2014 at 2:40am Hi Maz, pleased to read you are still pain free, hoping this is good riddens to the , and you carry on having pain free days. Hoppy.
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shortstraw

CH.com Junior

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02 blows - thankfully

Posts: 78
Perth Western Australia
Gender: male

Re: My CH.com anniversary
Reply #5 - Jul 2^nd, 2014 at 9:54pm

Hi Maz
You were one of the first people to welcome me to this site on my first post. I thank you for making me welcome.
I've read many of your posts and you show a lot of compassion and in sight and are often a calming influence in turbulent waters.
The fact that you are pain free I believe is good kharma coming back on to you for all the help you offer to others.
I hope it continues
All the best

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There are things worse than clusters .... just

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blacklab Ex Member	Re: My CH.com anniversary Reply #6 - Jul 3^rd, 2014 at 9:11am happy anniversary Maz, One of many many more to come, p/f kindest regards colin
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maz CH.com Hall of Famer Offline I Love CH.com! Posts: 1071 Hampshire, England Gender:	Re: My CH.com anniversary Reply #7 - Jul 3^rd, 2014 at 10:49am Thanks all you guys for the continued welcome. I'm addicted to this site and come here every day. Even if I were to be cured overnight I would still look in just for the friendship and chat. And obviously I'd share the cure. Who knows, one day.................... Maz.
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BarbaraD

CH.com Alumnus

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Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

Re: My CH.com anniversary
Reply #8 - Jul 7^th, 2014 at 6:03am

Happy Anniversary.. As we used to say in the "old days" Sorry you're here, but glad you found us.

And this place is addicting. I've been here since 98 and check in every morning to see who's done what and how everyone is. Don't always post, but do keep up with everyone.

And thanks to Batch and his D3 regimen, I've been PF since Oct 21st and counting. (after being chronic since 97 - or having a LONG episode

).

Glad you found us.. Stay tuned.. Kiss

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What don't kill ya, Makes ya stronger!

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maz CH.com Hall of Famer Offline I Love CH.com! Posts: 1071 Hampshire, England Gender:	Re: My CH.com anniversary Reply #9 - Jul 7^th, 2014 at 6:33am Glad you're still P/F Barbara. Hope it stays that way.
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