May 14th, 2025 at 1:58am
  
  Welcome, Guest. Please Login or Register
 Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
 
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





  New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › New to this site and CH
(Moderators: DJ, Mrs Deej)
‹ Previous Topic | Next Topic ›
Page Index Toggle Pages: 1
Send Topic Print
New to this site and CH (Read 1216 times)
Biker Corny
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 2
New to this site and CH
Jul 2nd, 2014 at 10:52am  
Just want to introduce myself. I was just recently diagnosed with CH, however unlike most, I was diagnosed very quickly due to good doctors. In fact I am still in the middle of my first cluster and don't know how long it will last. I truly hope it's not chronic. But my god, this is terrible! I feel compassion for all of you that have had to go through this for so long. The only other difference is that my attacks seem to occur mostly during the day time which makes work a difficult prospect but I work for very compassionate folks.
It is great to find that I'm not alone in this. My heart goes out to all of you!
Back to top
  
 
IP Logged
 

Click Here to visit the CH.com Facebook page!

Bob Johnson
CH.com Alumnus
***
Offline


"Only the educated are
free." -Epictetus


Posts: 5965
Kennett Square, PA (USA)
Gender: male
Re: New to this site and CH
Reply #1 - Jul 2nd, 2014 at 3:06pm  
It will help us to direct you to good sources of assistance if you will tell us where you live (city & state, if U.S. or country). At the Home page: Help button-->Edit & Profile --> Location. (This will add your location, just below your name, every time you post a message.
========================
Wondeful opening words: good diagnosis from a good doc!
Too many folks have to wander for years to get the correct Dx.

Since this is new for you, just a couple of early heads-up:
1. symptoms often change for months or longer, so don't be concerned. The textbook description is a good approximation only of real life.
2. Start to practicing: Don't try and predict the future; only leads to tension.
3. Notwithstanding all the ideas you will get here, don't make changes in your treatment without keeping him informed. Changes in a treatment plan will mess up his mind because he can't judge the outcome of his efforts.
4. Read alot here and other sites:


Thre sites which are worth your attention: medical literature, films, plus the expected information
about CH.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
------

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register Search under "cluster headache"
-------
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
  Full of articles, blogs, book: written by one of the best headache docs in the Chicago area.
  Worth exploring. The latest book is in e-book edition, $10; comprehensive and worth buying for
  a careful read.
Back to top
  
Bob Johnson
 
IP Logged
 
Linda_Howell
CH.com Moderator
CH.com Alumnus
*****
Offline


Do not feed the Moderators


Posts: 11927
Santa Maria, Ca.
Gender: female
Re: New to this site and CH
Reply #2 - Jul 2nd, 2014 at 6:11pm  
Biker..glad to have you amonst us, the most caring individuals you will ever meet in your your lifetime. well, not exactly glad...but you know what I meant.

Do what Bob Johnson has told you.  He is our guru, so to speak, and if you have questions, ask  them here we, who have suffered for more years than I can to remember, will be glad to help you through this.

   Can't tell you how happy I am you found us. 
Back to top
« Last Edit: Jul 2nd, 2014 at 6:12pm by Linda_Howell »  
Hurt people.....hurt people.   Think about it.
WWW calientev8 N/A N/A  
IP Logged
 
Linda_Howell
CH.com Moderator
CH.com Alumnus
*****
Offline


Do not feed the Moderators


Posts: 11927
Santa Maria, Ca.
Gender: female
Re: New to this site and CH
Reply #3 - Jul 4th, 2014 at 8:44pm  
also...Bob Johnson (above) quoted this under his name.

   "Only the educated are
free." -Epictetus

I hope you are not chronic, but  if you are, understanding what this condition is and how to treat it best is by educating yourself about this condition.  Many, many hours have been spent garnering the information on this site over the years.  Start with reading all the links to the left of here and then read posts in the categories titled CH specific, and medical treatment.

So happy to hear you've got a good physician.  So many here waited decades before they got a proper diagnosis and were treated.

Linda
Back to top
  
Hurt people.....hurt people.   Think about it.
WWW calientev8 N/A N/A  
IP Logged
 
icepicksundae
CH.com Junior
**
Offline


I Love CH.com!


Posts: 25
Re: New to this site and CH
Reply #4 - Jul 6th, 2014 at 8:06pm  
Hi! I'm new too. You're not alone, the info here saved my life. Oxygen daily if necessary & acutely prescribed prednisone for major cycles unresponsive to triptans & oxygen. fyi steroids lower your immune system & have other issues so you don't want too much of those, but that and a shot of tramadol in the fanny pulled me out of the seventh circle if you know what I mean...

keep up with drinking water, no joke! dehydration is my nemesis!

absolutely not a drop of alcohol, i can barely even smell red wine anymore.

NO smoking!!!

hang in there, you can do it! you are an amazingly brave person to make it through this, and just use every single Pain Free moment to the fullest, to prepare yourself and find solutions, so you can be ready to pamper yourself when you have headaches.

the scouts were right when they said Be Prepared!

Smiley

{ big hug }
Back to top
  
you are your own best advocate!

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print
‹ Previous Topic | Next Topic ›
  « Home ‹ Board Top of this page



New CH.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.

Valid RSS Valid XHTML Valid CSS Powered by Perl Source Forge




©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!