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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Where's the current best deal for demand valve?

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Where's the current best deal for demand valve? (Read 2515 times)

bejeeber

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Where's the current best deal for demand valve?
Jul 5^th, 2014 at 2:50am

Howdydoo ~~message board members~~ HEADBANGERS,

A new pal who goes by "brs82 " over at clusterbusters is a chronic CH'er for whom 25 LPM has ceased being effective.

I'm suggesting a demand valve system - if that route is chosen, who knows where to purchase and get the best bang for the bux?

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: Where's the current best deal for demand valve? Reply #1 - Jul 5^th, 2014 at 11:25am Quote: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Skyhawk posted this one a while back...no personal experience with the company.... IF a higher flow is all that is desired there are other, cheaper options available....
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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: Where's the current best deal for demand valve? Reply #2 - Jul 10^th, 2014 at 12:22am Hey Bejeeber, I have one of these demand valves and they work well. They don't come with a mask, but those are available on that site. Hope to see you at the CB Conference. Don
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lennycohen CH.com Junior Offline Posts: 61 Clemmons, NC Gender:	Re: Where's the current best deal for demand valve? Reply #3 - Dec 13^th, 2014 at 12:33am I created an auto search on ebay until it found one for me, got it for $125 (vs over $300 for new). You can also search for oxygen-specific scuba diving regulators, but the connections are trickier, and they're mouth-only.
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tangerinearmy CH.com Junior Offline I Love CH.com! Posts: 58	Re: Where's the current best deal for demand valve? Reply #4 - Dec 18^th, 2014 at 8:07am IF a higher flow is all that is desired there are other, cheaper options available.... what are these options please
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Marc

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Re: Where's the current best deal for demand valve?
Reply #5 - Dec 18^th, 2014 at 9:28am

A welding regulator will provide as little or as much O2 flow as needed.
Welding regulators fit large medical oxygen tanks. An adapter is needed to attach a welding regulator to a small tank.
Pictures and explanation here:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

The regulator in the picture is this one: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

More info about adapter types here: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Marc

« Last Edit: Dec 18^th, 2014 at 9:29am by Marc »

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tangerinearmy CH.com Junior Offline I Love CH.com! Posts: 58	Re: Where's the current best deal for demand valve? Reply #6 - Dec 18^th, 2014 at 11:43am thanks marc im in the uk and have medical 02 which doesnt look like the one in the states im not sure if i cud get a valve to fit. are there any UK sufferers out there who have purchased an welding regulator and fitted it correctly.
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Marc CH.com Old Timer Offline Posts: 429 TX Gender:	Re: Where's the current best deal for demand valve? Reply #7 - Dec 18^th, 2014 at 8:44pm Sorry, I missed that.... Have you checked with OUCH UK? They were a start up after the original OUCH here. (Many years ago, I frequented the site, but they didn't seem to appreciate my approach to things) Best of luck!
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Batch

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Control The Beast With
O2 & D3 You Must

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Bremerton, WA
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Re: Where's the current best deal for demand valve?
Reply #8 - Dec 18^th, 2014 at 9:56pm

Hey Tangerinearmy,

The best oxygen demand valve made comes from right there in the UK. The OEM was... and possibly still is Carnét, but the product line is now available from BPR at the following link.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

I did a hands-on assessment and evaluation of all the top oxygen demand valves... The Carnét was the winner by a long shot. I've had one since 2008... They work far better than any other brand.

These are pricey items, but well worth the expense if you want the top of the line oxygen delivery system to abort CH with the least amount of inhalation resistance.

See the following link for all the options. If you want to go this route, ask the reps at BPR for the complete system.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Take care,

V/R, Batch

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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