If you think you'll stay around here:
It will help us to direct you to good sources of assistance if you will tell us where you live (city & state, if U.S. or country). At the Home page: Help button-->Edit & Profile --> Location. (This will add your location, just below your name, every time you post a message.
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You Neuro shows no awareness of how to treat Clusster. This is too common even among Neuros because they received meager education in treating headache.
See the PDF file below. These are the meds which are most commonly used for Cluster.
If you have the option, seek a headache specialist.
LOCATING HEADACHE SPECIALIST
1. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.
2. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.
3. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or
; On-line screen to find a physician.
4. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or
Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.
5. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
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NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
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Please don't get into self-treatment if you intend to seek another doc. Collaboration is essential.
To effectively control Cluster you need three different meds.
1. Usually a steoid used for a few days. It will rapidly stops attacks and is a bridge to the next med which, while working more slowly, builds in your body to give long term
blockage to attacks/at least reduces them.
3. Is an abortive which is used to rapidly kill an attack which may sneak by #2.
While you are seeking a new doc, read much here. Take at look at these sites, also:
Thre sites which are worth your attention: medical literature, films, plus the expected information
about CH.
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or
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Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or
Search under "cluster headache"
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Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or
Full of articles, blogs, book: written by one of the best headache docs in the Chicago area.
Worth exploring. The latest book is in e-book edition, $10; comprehensive and worth buying for
a careful read.
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