Click this link to read a post I like on the clusterheadaches.com message board...

Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	All my friends here in oz. Jul 15^th, 2014 at 12:46am The Project ch10 is talking about CHs tonight, maybe worth a look see. Hoppy.
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: All my friends here in oz. Reply #1 - Jul 15^th, 2014 at 5:39am Looks like people in Oz will be able to see it via the following URL tomorrow: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or I've tried to play previous episodes and it won't let me, so it is unlikely anyone overseas will be able to see it.
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AussieBrian

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CH - It's all in your
head!

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Cairns, Qld, Australia
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Re: All my friends here in oz.
Reply #2 - Jul 15^th, 2014 at 7:31am

Was able to watch it here - Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

- but I've no idea if this will work for others.

In one sense the report was a little sensationalist, but that's the nature of the programme. Otherwise it was mostly accurate in giving a description of the hell we must endure.

If you can forgive the obvious errors, rather than picking on them, I think it serves to raise awareness of our plight.

You're a sport, Hoppy. My next shout.

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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com

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Kate in Oz CH.com Hall of Famer Offline Posts: 633 Australia Gender:	Re: All my friends here in oz. Reply #3 - Jul 15^th, 2014 at 7:53am Very good I just jumped on to post a link to it too. Hi Brian If your link doesn't work, I uploaded it to Youtube Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: All my friends here in oz. Reply #4 - Jul 15^th, 2014 at 8:11am Kate in Oz wrote on Jul 15^th, 2014 at 7:53am: Hi Brian If your link doesn't work, I uploaded it to Youtube Does this mean we have to get married?
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

Kate in Oz CH.com Hall of Famer Offline Posts: 633 Australia Gender:	Re: All my friends here in oz. Reply #5 - Jul 15^th, 2014 at 8:18am Ahhh Brian, if only you weren't so far away..... and already married.... I'm sure it would be a match made in heaven
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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: All my friends here in oz. Reply #6 - Jul 15^th, 2014 at 2:25pm Kate....thanks for uploading it to Youtube..... Great piece....we need to get that O2 user a proper mask...... Does anyone in Oz know this person?
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: All my friends here in oz. Reply #7 - Jul 15^th, 2014 at 4:17pm Thank you Kate for uploading it to YouTube. It was certainly worth watching even though it is painful seeing someone else having a CH knowing just what it is like (it also amazes me how our supporters cope seeing us go through this too).
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Kate in Oz

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Re: All my friends here in oz.
Reply #8 - Jul 15^th, 2014 at 8:22pm

Cheers

I do think it helps to remain calm during a hit if at all possible, freaking out can make the pain so much worse ~ in my opinion anyway. The only thing moving when I'm getting hit is my feet, I rub them together. That said, kind of good that they focused on the pain involved. Those who have not been diagnosed and who are suffering and having to deal with doctors who are clueless will hopefully have a name to put to it now and will be able to do some investigating....

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Kate in Oz CH.com Hall of Famer Offline Posts: 633 Australia Gender:	Re: All my friends here in oz. Reply #9 - Jul 15^th, 2014 at 8:24pm Oh and yes I have chatted with Trevor Bell on Facebook. Just let him know now about this site and the non rebreather mask. (Just quietly I have both types but use the same as what he has got and it works okay for me.)
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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: All my friends here in oz. Reply #10 - Jul 16^th, 2014 at 5:57pm G'day Brian, Ide love to share a tinny or two of VB with you, Its just a pity, your at one end of OZ, and me at the other. Cheers
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shortstraw

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02 blows - thankfully

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Perth Western Australia
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Re: All my friends here in oz.
Reply #11 - Jul 16^th, 2014 at 8:36pm

What I found interesting is that I had at least 10 calls from friends and work colleagues telling me that it was going to be on.
These are people that have no connection to Clusters and, prior to learning about my situation, had no idea what a CH was.
So I think we are all unfortunate ambassadors for this condition and are often "spreading the word" in our everyday lives.
Slow process but and exposure on a show like this has certainly put it out there

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There are things worse than clusters .... just

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blacklab

Ex Member

Re: All my friends here in oz.
Reply #12 - Jul 18^th, 2014 at 12:08am

ive had the same response from 2 or 3 people.
even though they new I had ch, they all said, "we didn't know it was that bad" by chance only they saw it on t.v
It was a bit uncomfortable answering there questions, in respect that, I always retreated and never ever let them see me going thru an attack. One guy, I actually do work for and I have in the past, rung him and briefly told him I suffer from ch, and I couldn't do his job till tomorrow !
He was always accommodating, but I think he dismissed it as me being a bit of a sook over a headache ! He sounded almost guilty about it when he saw the programme LOL
As I said to them, we are not after sympathy, just awareness of how it impacts us............................
colin

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