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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › What did work...decided to retire.

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What did work...decided to retire. (Read 2148 times)

daxm

CH.com Junior

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Posts: 37
new york
Gender: male

What did work...decided to retire.
Aug 12^th, 2014 at 11:47am

Hello, so I had this thing beat for a spell with 100 MG of Tropiramate (Tompamax) & 120 MG of Verapamil for the past four months or so. Its started off slow but now I am back to my full on everyday old routine of this lovely gift we all share. My doctor is very helpful and eager to learn but I am her first patient with this affliction. I am hoping to gain as much knowledge as I can before our next visit pertaining to where I should be looking to get a grasp on this thing. I have had all the scans and blood test done years ago when I was seeing a neurologist. It may have been my personal experience with that individual but I did not find many rewards working with her. Now I am looking for a new, "cocktail" that will take the place of the one that worked perfectly for months.... Any suggestions? Or ideas of any kind at all would be greatly appreciated.

-Thank You...Dax

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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: What did work...decided to retire. Reply #1 - Aug 12^th, 2014 at 4:06pm It is pretty common with CH for what works to stop working. What I would do however is to find a neuro with experience and skill in treating CH as otherwise you're likely to experience a whole lot of pain via CH as your neuro learns by practicing (experimenting) on you.
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dauber Ex Member	Re: What did work...decided to retire. Reply #2 - Aug 12^th, 2014 at 6:08pm Give the D3us ex machina a try! Look for the 123 days pain free and think I know why thread
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: What did work...decided to retire. Reply #3 - Aug 12^th, 2014 at 8:05pm I'm with Dauber, here's the link, it's had me pain free for 4 years. Follow this link to the medications section of this board and read the post Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Joe
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feisty

CH.com Veteran

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Posts: 205
west coast, BC, Canada
Gender: female

Re: What did work...decided to retire.
Reply #4 - Aug 13^th, 2014 at 7:31pm

I think trying the D3 regime is really worth trying - safe, low cost and DIY. If it works, your body needed it for other reasons anyway.

Also, have you tried O2 as recommended here?:
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

When dh is at home it really helps him to abort the attacks. Not a cure but truly a lifesaver to stop the pain when he's at home.

wife of 48 year old husband who suffers from episodic CH ~ Batch's Anti-Inflammatory Regimen works!

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BarbaraD

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Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

Re: What did work...decided to retire.
Reply #5 - Aug 15^th, 2014 at 6:52am

D3 is working for so many of us. Give it a try..

And the Topamax.. that's a low dose.. I was on 300mg for years and it did help (but I took the whole dose at night to stop the side effects). Too much can cause depression, but the right dose can help.

But the D3 has been my lifesaver.. Have been PF since Oct 21st after so many years of being chronic (since 97). I urge you to try that. Kiss

What don't kill ya, Makes ya stronger!

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thierry CH.com Alumnus Offline I Love CH.com! Posts: 406 Galway, Ireland Gender:	Re: What did work...decided to retire. Reply #6 - Aug 16^th, 2014 at 3:45pm D3 all the way Dax Give it a go, it works for me, it works for 80% of us
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