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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › This Crazy Malady

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This Crazy Malady (Read 1358 times)

Traveller

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Posts: 148
Tampa, FL
Gender: male

This Crazy Malady
Sep 14^th, 2014 at 3:28am

Briefly - in the middle of a year-long very strange cycle. For most of the time Verapamil has kept the beast at bay, but about two months ago he broke through and I got hammered pretty bad for about two weeks. Doc put me on prednisone which knocked things back well enough. Came off the pred about ten days ago and for most of the time since then I am having only light hits, one or two a night, just enough to wake me up. I get up, move around, stay up for a bit and then back to bed.

Oddly, starting 3 nights ago I began waking up at my "usual" times (90 minute intervals) but with no pain. Is it possible that my brain/body is waking me up before the hit arrives, and thereby interrupting the normal course of the headache? I know, sounds crazy, but this one crazy malady we share.

Has anyone experienced anything similar? The optimist in me has decided that I am working my way out of this cycle, but this is an odd pattern for sure.

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BarbaraD

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Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

Re: This Crazy Malady
Reply #1 - Sep 14^th, 2014 at 8:59am

The 90 minute is where the REM (Rapid Eye Movement) takes over in your sleep. Melatonin will stop this (but sometimes takes a few days - or weeks to begin working).

I did this for a long time (but usually to a HA), but after starting the melatonin I quit and got the night sleep I needed.

But you're doing the right thing by getting UP when you wake up. Laying there always brought on a HA for me.

You might want to check out the Vit D3 regimen.. esp. if you've been going on for a year. It stopped my cycle (which had been going on since July of 97) and I haven't been hit since Oct 21st of last year.

These things are totally crazy. The pred may have slowed things down, but it usually doesn't stop a cycle. Just stops it for a little while.

Go for the Vit D3... it's helped so many of us and is gaining popularity on this site daily.

Keep us informed. We're here for ya.. Kiss

What don't kill ya, Makes ya stronger!

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Traveller CH.com Veteran Offline Posts: 148 Tampa, FL Gender:	Re: This Crazy Malady Reply #2 - Sep 15^th, 2014 at 3:05am Thanks Barbara. Will give Melatonin a try, that sounds reasonable. Have tried D3 and it doesn't seem to work for me.
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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: This Crazy Malady Reply #3 - Sep 15^th, 2014 at 7:52am About the D3... Did you do the REGIMEN? With the other vitamins.. see Batch's post on all of it. Just a thought.. Hope the melatonin works for you. It sure nuff does for me.
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