Hello to to all. I have been chronic for 18 years from Indiana. I am married with 3 kids, 17 yr old girl, 15 yr old boy and 7 yr old girl. I have learned over the years to deal with my pain as best as I possibly can. You have to when you are chronic. For the most part, I think I have done well. I rarely get depressed, but I started the Vitamin D therapy awhile back and had a really good response to it. I wasn't used to having any days without pain. So when I started having some days without pain and then having the pain come back, it has made me incredibly depressed. My oldest daughter is saying mean things to me about my not being able to get things done around the house (I'm a stay at home mom...have to be), she makes nasty jabs if I can't make a good dinner, not getting her laundry clean (she said she should have just taken  it to her fathers because he, at least, asks her if she needs anything washed each night) and my husband has been less supportive as well. He has rolled his eyes when I've asked for something or makes an exhaustive blow from his mouth...so I just tell him to forget it. I don't want to be in this position. In fact, I would rather not be here at all. Do they not get this??? Do they not understand how painful this is and on top of that I feel like a complete and total burden to everyone??? Who would choose to live a life like that? I always read comments about how supportive everyone's family is, but mine just isn't always like that. Mine just seems irritated and sick of me being like this. I'm going to bust in a bout 6 months or so and I think that is the only thing that is getting me through this. I don't normally sound so pathetic, but I have spent days getting one attack after another and I have no one who understands, quite the contrary, just waiting for the next person to let me know why they are sick of me not being able to hold down the fort for them. Hoping someone else can relate.

Hi sadie,  sorry about your situation,  we hare all no about clusters, so we can at least be your " on line supporters"
I second what mike said about messaging batch, I can vouch for the effort to which he's given me advice about the regime. It sounds to me as though it did have an effect, did you get a blood test done ?
and regarding your daughter !!!  hmmmm
I remember when my oldest was about 17 or 18, his mother did everything for him, you could say he was spoilt, so after hearing one day how he spoke to mother, with little respect, demanding certain items of clothing to be ready for him on a certain day,  it was time for a reality check,  no meals cooked for him, no washing or laundry done, and as he had a part time job, I asked him for $50 a week board !!!
it worked wonders !  totally reformed him, he had a new appreciation of what his mother did for him !  I admit, I spent an hour with him sitting down and explained the reality of life, as i'll put it !  LOL   I think we all go thru this stage with our kids, where the hole world revolves around them and they are pampered by us through out their child hood, which we should do, but there comes a time where reality comes a knocking !  A child with no empathy and little respect, needs a little "reality awakening"   This is purely from my experience, But it worked !  and both my boys stayed at home well into there 20's and it never reared its head again.  You need to look after your self first, she is old enough to fend for herself while you are being effected by cluster headaches !      time for some "tough love"
hope you get some relief from your cycle, plenty of advice to be had here,  anytime
goodluck
colin

Sharper than a serpents tooth it is, to have a thankless child. = William Shakespeare

Hello Sadie,
It may not help but your not the only one with little or no support these days.
Sad but true I have a wife who is disabled with a horrible disease cerebellum ataxia as well. I take care of her needs but get no respect for mine. When a shadow starts I now leave the room and go to my CH room for a battle with the Beast.
Don't let it/them get you down, do what you can and maybe have a sit down with the family. Have they watched you battle? None of my kids have ever seen me in a cycle, that's my
choice. They have seen all my Oxygen tanks and masks but don't really know. I think there ready to watch a you tube video. maybe oldest is 30, 29, 26, and 24. I wish you luck and know that you are not alone!!
Tim

most show a level of ignorance to it as they dont suffer . friends family anyone..you can only do what you can...sometimes we have to educate them ...show them this sight let them read the terror stories from real people ...youtube videos the lot....i only make that effort if i deem them worthy of the effort i would have to make to tear down barriers of ignorance...we all understand what you are going through , maybe not on that magnitude but never the less we understand..