Ugh, Good Afternoon, fellow CH friends.

I hope everyone is having a good day today.  I wanted to get on here and rant a little bit because I am currently in a cycle and it's almost unbearable.  Nothing has helped, of course, and I can't take any more time off work because between my son getting sick and my daughter and her issues, I can't focus anything on myself.  I'm so sorry to get on here just to rant about that, but the headache is really bothering me today, I could barely even make it to work this morning and even when I did, I had to sit in my car for the longest time...why is it that no one understands exactly what you're going through?  I tell my boss I am a little off today because I'm in the middle of a cycle and I'm not sure when it's going to end or anything like that, all I know is it's extremely painful and you know what she tells me???  She says "Well, why can't you grab a Tylenol and make it feel better?"  I was like "REALLY????"  See, this is why people get let go from their jobs when they have a serious medical condition and no one understands it.  She's over here talking about "Well, maybe you need to cut down on your caffeine, or drink more water, or take a Tylenol and that will make it feel better, that's what works for ME!!"  I was like "Yeah, but you don't have a condition like I do..." You say CLUSTER HEADACHE, and they think you're talking about a little freaking migraine that will just go away if you're a good girl and play nice with the other coworkers....

Again, I am SO sorry, CH friends, I don't mean to be so fussy, I am hurting really bad and the residual headache today is almost as bad as the actual cluster when it hits, I am getting NO relief right now!!  UGH....

BTW, HUGS to everybody, I really hope you all are having a good day today, no one deserves to be in pain like this!  I wouldn't wish this on my worst enemy in the world....anyway, thank you, CH friends for the support and letting me rant a little bit...HUGS to everyone!

This letter has been posted to give to employers and friends.

  Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

-----
IF you employer shows any interest in deeper understanding, ask them/her if she would be interested in some basic medical information. Get back if, "yes".
====

How are you being treated for your Clusters? Seeing a doc with experience/skill? If not sure, ask about their background treating complex headache disorders.

Far too many docs, including neurologists, have limited skills in this area. And change may be in order.