Please, if anyone has any direct knowledge of their treatments and their success rates at Michigan Headache and Neurological Institute... I am a CH sufferer for 16 years (45yo m) and the last 5 plus years have been chronic. I have been to and seen most of the top doctors but not much has been accomplished. I, lastly, tried the neurostim trial which unfortunately did not work. Am debating going to MHNI with a depressed attitude atm. I would like some input by people who have actually been there for CH and have had positive results.
Thank you

I have gone and here is a post I posted a few years back. Please feel free to message me with any questions or read some of my post
      Cluster Headache Help and Support / Cluster Headache Specific / Re: Need help please
on: Nov 1st, 2012 at 12:24am
Started by Budbuds Mommom | Post by brian trudeau       Reply Quote Add Topic Notification 
I went to Michigan Headache & Neurological Institute (MHNI) ( mhni.com)  in Ann Arbor a couple years back after a cycle had had the best of me going on 4 months at that time.  I was seen by Dr. Gordon  who worked with Dr. Saper.  Was nice to have a doctors who actually understood what a cluster was that is for sure.  Was hospitilized at their Head Pain Unit at Chelsey Community Hospital for 4 days also, I was put on heavy doses of verapamil, Lithium, melatonin, Prednisone, and o2. Cost a fortune even with insurance and will need a doctors refferal.  Would I do it again? prob not. Think I needed it at the time maybe for mental sakes after 4 months of hits lack of sleep, lack of understanding from work and others. Did they cure me ? No still have em, did the cycle finally stop? yes. Would they of ended if I did not go? Yes, most likely they always have.
Having to attend nightly meetings at the hospital when admitted with ladies who get their period migranes  or having  a doctor telling me how to see and breath through a migrane to find a "Happy place to go to" just made me more angry.  Plus when they admitted me the nurse gave me a regular mask for my o2  with holes on both sides or a nasal canual as options (no rebreather mask even WTF had to ask for one)
Not sure what treatments you are going with now and where you are at mentally with your head  but they got me in pretty quick once I had my refferal in if you are looking for a close location to Indiana were your neighbors here in Michigan. I live 4 hours from Ann Arbor and made my appts every week for about 2 months straight at that time.  All in all I know works for me  and is all I use now is o2 for abortive,  Prednisone & mix of melatonin D3 and ROCKSTAR to break it up and give me a break in a cycle and waiting to turn 70 for a preventative.  Hope this helps and hope I do not sound to negative just been up for a month now and get cranky and need to vent when coming down from the prednisone  Wink Wishing all PFDN
Bri Bri