Click this link to read a post I like on the clusterheadaches.com message board...

May 13^th, 2025 at 11:52pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Daily Chat › General Posts › Looking for Clusterheads for a photography project

(Moderators: DJ, Mrs Deej)

‹ Previous Topic | Next Topic ›

Pages: 1

Looking for Clusterheads for a photography project (Read 2280 times)

KariBjorn

CH.com Newbie

Offline

I Love CH.com!

Posts: 11

Looking for Clusterheads for a photography project
Jan 8^th, 2015 at 8:04pm

Hi,

My name is Kari Bjorn and I've had with cluster headaches for the past 11 years or almost half my life, I'm 27 now. I'm currently studying photography at Parsons in NYC, previously I was/is a chef and worked in kitchens back home in Reykjavik, Iceland, NYC and London, UK.

I want to start a project around Cluster headaches and its sufferers, this is something I've been thinking of for the past few years but never really started except for a few self portraits. I'm not really familiar how much CH is "known" in the US but back home none really knows CH and I've always had to explain in detail, to new friends, bosses, coworkers etc.

My goal is to tell the story of the cluster head, as broad as it is at this moment I see this as a project I will work on for a few years and will hopefully develop along the way.

I'm looking for people in New York to get in contact with that either have CH and/or know someone close to them that has CH.

Please contact me at thork317@newschool.edu

Kari Bjorn Thorleifsson

IP Logged

Click Here to visit the CH.com Facebook page!

Kevin-58

CH.com Newbie

Offline

God Be with us

Posts: 10
Middle Georgia
Gender: male

Re: Looking for Clusterheads for a photography project
Reply #1 - Jan 8^th, 2015 at 8:56pm

Kari
I think that is a fantastic idea! Your project would open so many eyes to the world so few know anything about. If your project takes you to the Southern states - Georgia in particular - I would be honored to be a subject of your project. Best of luck and keep us posted as you move forward with your endeavor
Kevin

IP Logged

AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Looking for Clusterheads for a photography project Reply #2 - Jan 8^th, 2015 at 11:35pm G'day Kari, and welcome. If you go to youtube and search Cluster Headache there's a few videos that might help for starters. Never been able to watch them meself, but perhaps they might be fodder for ideas.
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

Mark Olson CH.com Veteran Offline I Love CH.com! Posts: 142 San Jose, CA Gender:	Re: Looking for Clusterheads for a photography project Reply #3 - Jan 9^th, 2015 at 3:20am Better be ready to travel...
Back to top	IP Logged

KariBjorn

CH.com Newbie

Offline

I Love CH.com!

Posts: 11

Re: Looking for Clusterheads for a photography project
Reply #4 - Jan 9^th, 2015 at 9:44am

Hi and thanks for the replies,

I've seen a lot of the videos on youtube and many of them aren't for the faint of heart. The one that I keep thinking about is I believe a news story from Holland where a CH sufferers sister posted a video of a horrific attack where she was hospitalized. They did it to raise awareness in the community and for her insurance company (I think) that wouldn't help her get the medicine she needed. Anyway, it made me feel awful for her. I did a video about CH about 3 months ago using found footage.

I'm prepared to travel to work on this project and I think it will take many years to complete if it will ever be "completed". Many of the documentary photographers I admire have been working on the same project for decades, they just evolve and that's what I'm hoping for. That the people I meet and create bonds with will take it into different directions.

I want to start out with just the NYC area since that's where I'm currently based but will definitely post here if I'm traveling. My wife and I both have family in Columbus and Cleveland, OH and we go there a lot so I'll let know when we're there next time.

Thanks for the replies

Kari Bjorn

IP Logged

Potter Ex Member	Re: Looking for Clusterheads for a photography project Reply #5 - Jan 9^th, 2015 at 2:48pm Good luck but catching a clusterhead in cycle is like catching lightning in a bottle. Potter
Back to top	IP Logged

LasVegas

CH.com Sponsor

Offline

Episodic CH since 11 yrs
old, now 50.

Posts: 2020
north of the 60th parallel
Gender: male

Re: Looking for Clusterheads for a photography project
Reply #6 - Jan 10^th, 2015 at 1:40am

Hi Kari,
Here's an idea that hopefully will assist you....

Look to the left side of your computer screen and you will see a tab titled "where we live." Click on that tab, then click on United States, then click on New York.

Create and send a personalized email to those residing in New York requesting their participation for your photography project.

The more you send, the better the odds of a favorable response Wink

Good luck with your project!

-Gregg in Las Vegas

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

IP Logged

Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Looking for Clusterheads for a photography project Reply #7 - Jan 12^th, 2015 at 12:58am Come to Chicago next Sept to the Clusterbusters convention. You'll find over 100 of us there, and there will be more than a few in cycle, although many will be pain free from busting or Vit D or DALT. Check out clusterbusters.org for more info. Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: Looking for Clusterheads for a photography project Reply #8 - Jan 15^th, 2015 at 7:38am Tried this once. Asked board members to send me pics of their boobies. All I got was 4 pics of man boobs. What a bust!!!!!
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!