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23 Years Episodic and New to the Board (Read 1258 times)
BigHitter
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23 Years Episodic and New to the Board
Mar 1st, 2015 at 3:03pm
 
I have voyeured on this site for so long I can't begin to tell you all, but this is my first post. I have been episodic for 23 years, and I am in another full blown cycle. This one came one month after a very benign cycle in December, but nearly two years from my last, full blown cycle. The only consistency to these attacks is their inconsistency, I guess. Unlike a lot of folks on here, I shy away from most medicines. I took a course of verapamil in August of 99 and it threw my cycle off completely and I've never had predictable cycle since. I have used Trex on a few occasions, but it seemed to throw my hits out of whack, and instead of just getting them at night, I'd also get them in the afternoon. I can't have that. I have to work to feel some control over these attacks. I also ate Vietnamese the night before a particularly nasty cycle hit me in the early 2000s and I never Vietnamese again! Most of my cycles are in the three to four week range, tho I have had cycles that lasted as long as two months (the Trex cycle). I also had a cycle where the ha switched from the left to the right side (that was a kick in the gut), two cycles that were a month apart, cycles that were 9, 12, 15, 16 months apart - I could go on, but most of you have heard this all before I'm sure from other members. Like most episodics, my biggest fear is going chronic, and I try to be sanguine about it, but in reality, it can damn near lead me to a panic attack if I think about it too long.  For grins, I've just started Batch's D3 regimine. I figure this one can't hurt (too much  Cheesy), and as soon as I can find them, I will bust. When I take mushrooms on a regular basis (every six months), it doesn't stop the cycle or I think even prevent it, but it does seem to make it shorter and a lot less painful. This cycle I have been unable to find shrooms (bad time of year, even for Colorado where you can usually just go forage for them) and the attacks have been severe, 5 a night in the high kip range. After 23 years episodic, I tell myself that this cycle too will pass, but holy shit, does it hurt! Good luck to you all, and may we all someday just have to live with the usual pains in life, not this unholy torture.
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minute by minute by minute I keep holding on!
 
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Batch
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Bremerton, WA
Gender: male
Re: 23 Years Episodic and New to the Board
Reply #1 - Mar 1st, 2015 at 4:10pm
 
Hey BigHitter,

Welcome to CH.com and to the anti-inflammatory regimen.  The odds are in your favor you're going to find out just how wonderful this regimen can be in preventing your CH. 

It's also a safe bet you're vitamin D3 deficient so check out the accelerated vitamin D3 loading schedule...

Don't be afraid to ask questions and do keep us posted.

Take care,

V/R, Batch
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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there
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BigHitter
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Re: 23 Years Episodic and New to the Board
Reply #2 - Mar 1st, 2015 at 4:18pm
 
Batch, I bet your ears have been ringing like bells the last few days. My wife and I have probably said your name a 1,000 times this week! Whether or not the D3 works for me, I want to warmly thank you for your service to our country, and to us clusterheads, as well. You give us hope during these dark days. Please, for all us, keep up the good work, and I wish you many, many pain free days in the future.
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minute by minute by minute I keep holding on!
 
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Bob Johnson
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Re: 23 Years Episodic and New to the Board
Reply #3 - Mar 1st, 2015 at 5:48pm
 
You may not have intended to do so, but I got a feeling fromyour message of: try this, drop it; try something else, drop it, and so on.

Two questions: have you found and used, any treatments which have give some consistent results?

Have you ever work with a doc who has skill/knowledge in treating complex headache disorders? IF yes, what was the outcome? What treataments did he try?
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It will help us to direct you to good sources of assistance if you will tell us where you live (city & state, if U.S. or country). At the Home page: Help button-->Edit & Profile --> Location. (This will add your location, just below your name, every time you post a message.
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Bob Johnson
 
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