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"Breaking News -- CH Study" (Read 2654 times)
LasVegas
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Episodic CH since 11 yrs
old, now 50.


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north of the 60th parallel
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"Breaking News -- CH Study"
Mar 2nd, 2015 at 11:45pm
 
Received the following via email from clusterbusters. This is a medical/pharmaceutical achievement in progress!  Congratulations to Bob Wold and clusterbusters Wink

-Gregg in Las Vegas

===============================

Breaking News -- CH Study                            






FOR IMMEDIATE RELEASE
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


Breaking News on Cluster Headache Study
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


Important information of interest to all dealing with Cluster Headache
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


Chicago, March 2nd, 2015 - As some of you may know from our conference last year,
Clusterbusters has been in close dialogue with Eli Lilly and Company regarding the
following release. Among our priorities, has been to provide them with what we felt
was important input from the patient community. We are very pleased to be involved
in this and will be providing additional information to our membership as it becomes
available.


Eli Lilly and Company has informed Clusterbusters that the company plans to start
a research program for episodic and chronic cluster headache. Lilly is excited to
start this program and work with Clusterbusters to actively help enroll patients.
The company will provide more information, including the locations of participating
study sites, to Clusterbusters and on the web at Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
(expected in late March). Lilly expects the program to begin actively enrolling
in late April.  At this time, please do not make any changes to your current medical
treatment or otherwise to try to qualify for this study.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


Here's some additional information about Lilly from the company's website:
Lilly is a global healthcare leader that unites caring with discovery to make
life better for people around the world. We were founded more than a century
ago by a man committed to creating high-quality medicines that meet real needs,
and today we remain true to that mission in all our work.
Across the globe, Lilly employees work to discover and bring life-changing medicines
to those who need them, improve the understanding and management of disease, and give
back to communities through philanthropy and volunteerism. To learn more about Lilly,
please visit us at Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register and Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Bob Wold
President
Clusterbusters, Inc

Clusterbusters | P.O. Box 574 | Lombard | IL | 60148
     
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Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019
 
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Pinkfloyd
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Re: "Breaking News -- CH Study"
Reply #1 - Mar 3rd, 2015 at 12:22am
 
Thanks very much for sharing here Gregg, you beat me to it.

I will share more info as I can. It's a big deal. Smiley


Bob
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"those who torment us for our own good will torment us without end, for they do so with the approval of their own conscience."
- C.S. Lewis
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
WWW psiloscribe pinkshroomrat  
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Mike NZ
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Re: "Breaking News -- CH Study"
Reply #2 - Mar 3rd, 2015 at 12:36am
 
Great news and another step forward!
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kika
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Re: "Breaking News -- CH Study"
Reply #3 - Mar 5th, 2015 at 4:34pm
 
I spoke with my MD about this yesterday and he was appalled that I had heard of it since it is " top secret".

He was approached to participate, but declined because "CH is not ubiquitous enough" for him to bother!!!!!!!!

I contacted the only other MD in Ontario and am awaiting her call.
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« Last Edit: Mar 5th, 2015 at 4:34pm by kika »  
 
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Pinkfloyd
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comfortably numb


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Re: "Breaking News -- CH Study"
Reply #4 - May 5th, 2015 at 7:43pm
 
It's not top secrete any more.

Clusterbusters will be the first to announce any new developments on this and will let you all know as soon as the information is made available.

This is the latest.
The Episodic potion of this study in now recruiting.


Subject: Eli Lilly NOW Enrolling Episodic Cluster Headache study

Eli Lilly has recently informed Clusterbusters that they are now enrolling patients with Episodic Cluster Headache into their clinical study. Many of you likely reviewed the details on clinicaltrials.gov.  For more information and to pre-screen for this study, please click on the link below or dial the toll free number.

If you pre-qualify for the episodic cluster headache study based on the initial questionnaire, your information will be provided to a physician and you will be contacted for further evaluation.

This study is enrolling now. Get started here.

For more information, visit Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register or call us toll-free at 1-855-375-7139.


My best to everyone here!
This is the place where ALL cluster headache advocacy began many years ago. Without this place, this ground breaking study would not be taking place.

Bob
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"those who torment us for our own good will torment us without end, for they do so with the approval of their own conscience."
- C.S. Lewis
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
WWW psiloscribe pinkshroomrat  
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MDR
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Elysburg Pa.
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Re: "Breaking News -- CH Study"
Reply #5 - May 5th, 2015 at 8:23pm
 
I just pre qualified no studies in my area at this time

I"ll just wait

Mark
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