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Pinkfloyd

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Thank You
Mar 8^th, 2015 at 3:57pm

Just wanted to drop in and leave a personal thank you to DJ, this site and everyone here (past and present) that has helped advance cluster headache treatment though advocacy and support.

We have come a long way since DJ started this site and have been through a lot together as a patient group.
It always hasn't been easy keeping the ball moving at all, let alone moving forward, but this message board is where it all started and it continues to be an important part of cluster headache support, research and advocacy. It has saved lives, improved lives and been an important part of survival for sufferers and their families.

Advancement comes from the patient community and the roots of that community will always be here.

Some roots are deeper and covered in a little more dirt than others, (lol) but they all have grown and supported a tree that is bearing fruit.

Thanks again to all here, especially DJ and Steph.
Bob

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"those who torment us for our own good will torment us without end, for they do so with the approval of their own conscience."
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maz CH.com Hall of Famer Offline I Love CH.com! Posts: 1071 Hampshire, England Gender:	Re: Thank You Reply #1 - Mar 8^th, 2015 at 7:53pm I'll add my thanks to that. Without this site, and all of you, my life would be very different.
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Thank You Reply #2 - Mar 8^th, 2015 at 10:18pm I know where my life is now and where it was just before I found this place. The difference is incomparable thanks to people who knew what I was going through and they cared enough to help.
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Peter510 CH.com Alumnus Offline Don't give out... But don't give in. Posts: 966 Wexford. Ireland Gender:	Re: Thank You Reply #3 - Mar 9^th, 2015 at 3:17am I'd like to echoe those sentiments. I've only been here a couple of months and already this Community has helped me more than I can say. Good PF health to all. Peter.
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Thank You Reply #4 - Mar 9^th, 2015 at 4:34am Well said, sir! Deej, I've said it before, and I'll say it again as long as I live, "Thank you" from the bottom of my heart. Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Thank You Reply #5 - Mar 9^th, 2015 at 4:35am I've been putting Deej up for our Australian of the Year award. Done no good so far, but I'm patient.
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: Thank You Reply #6 - Mar 9^th, 2015 at 8:21am Well said Bob.. and I echo your sentiments.. Been here since 98 and it's my morning "fix" still.
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dennisoc

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Re: Thank You
Reply #7 - Mar 12^th, 2015 at 7:40pm

i remember (check the archives) giving Floyd crap about this crazy shroom , LSD "cure' he spoke of...I had done both in my younger years and still ended up with CH,,,,an yet...being someone with CH who claimed he would TRY ANYTHING..(if you suffer from CH and don't say that...you are a dumbass).i submitted...finally grew a batch of shrooms..Since that time , I have been, instead of periodic 6 months or so of excruciating pain...pain FREE...for going on 12 years now. PAIN FREE...CH FREE...due to what this wacky guy suggested. Did i mention 12 Fuckin years CH free?...i cannot in anyway thank Deej and Clusterbusters enough.

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Wage Peace

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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Thank You Reply #8 - Mar 12^th, 2015 at 8:35pm A big thanq from me, and a special to Batch! in helping me to become pain free. Hoppy.
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Thank You Reply #9 - Mar 22^nd, 2015 at 1:49pm totally agree!
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

zanychef CH.com Junior Offline i'm busting with a masx cant really go wrong can i Posts: 97 x1\|worthing\|England\|europe\|172\|244\| Gender:	Re: Thank You Reply #10 - Mar 23^rd, 2015 at 4:48pm Yup couldn't agree more with Bob first place i ever was understood and made welcome still can't understand why i haven't been thrown out on my dumb limey ass though zany
Back to top	plenty of time to sleep now me headaches aint too bad:) IP Logged

dennisoc CH.com Veteran Offline Posts: 202 Conroe tx Gender:	Re: Thank You Reply #11 - Apr 7^th, 2015 at 5:01am DJ seems to me to be a bald guy. I do not trust bald guys.Therefore be suspicios of any posts you see on his website....
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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Thank You Reply #12 - Apr 7^th, 2015 at 7:02am Bald guys don't have dandruff.
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

Linda_Howell

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Re: Thank You
Reply #13 - Apr 7^th, 2015 at 8:48pm

As a matter of fact....This month of April just happens to be the anniversary of when he started this site in 1998.

I typed in Cluster headaches in a google seach, shortly afterward and found this site.

Since then thousands have been helped, hundreds have contributed to all the information here and elsewhere and many, many other sites have been started giving help to so very many. So many owe their very life to DJ. (He will tell you he just started the ball rolling and all of us who contributed, researched, etc did the rest.)

Over the years I've talked to or heard of, so many who were about to do the un-thinkable. Because of this site and all the support here...many were talked out of the deed and went on to get their CH under control.

THANK YOU DJ. We love you.

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Hurt people.....hurt people. Think about it.

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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: Thank You Reply #14 - Apr 8^th, 2015 at 12:46am dennisoc wrote on Apr 7^th, 2015 at 5:01am: DJ seems to me to be a bald guy. I do not trust bald guys.Therefore be suspicios of any posts you see on his website.... In order to enjoy.....one must be totally willing to suspend disbelief.......
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Thank You Reply #15 - Apr 8^th, 2015 at 2:34am Well said, Jon! Linda, you are spot on, as usual. I was at the end of my string when I found this place. I owe DJ my life, whether he's bald or not. I will forever call him "friend." Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

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