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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Do I suffer from cluster headaches please help

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Do I suffer from cluster headaches please help (Read 1190 times)

Zoe Dimples

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Do I suffer from cluster headaches please help
Mar 23^rd, 2015 at 8:56pm

Hi, completely new to this, since I was about 5 I have suffered from excruciating headaches( I am now 24) they mainly come without any warning.. They strike at one side of my head mainly being my left side with severe pain attacking behind my eye the left side of my head goes hot!! They last for approximately 2-3 minutes longest I have suffered is about 10 minutes. I have an after pain that subsides completely after about 5 minutes.. When they strike I completely have to stop and generally end up punching my head to try and get it to go away I cant talk and can't open my eye on the side that the pain is on!! People look at me look Im crazy!! Once it's gone I go completely back to normal I generally get them randomly sometimes twice a day for a few weeks then won't get them again for a couple of months! I have never been diagnosed before!! But I have read up on cluster headaches and I believe this relates to my headaches the most!! Is any body able to confirm this for me!! Many thanks Zoe xxx

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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Do I suffer from cluster headaches please help Reply #1 - Mar 23^rd, 2015 at 10:49pm G'day Zoe. Top left of your screen is a button for the Cluster Quiz. Give it a try and let us know how you get on.
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Do I suffer from cluster headaches please help Reply #2 - Mar 23^rd, 2015 at 11:56pm It sounds like to me you are suffering from TACs (SUNCT) headaches, and you need to check in with a Headache Specialist to confirm this. Hoppy.
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Bob Johnson

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"Only the educated are
free." -Epictetus

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Re: Do I suffer from cluster headaches please help
Reply #3 - Mar 24^th, 2015 at 8:43am

We can't make a diagnosis nor should you trust anyone who would do so on the web.

LOCATING HEADACHE SPECIALIST

1. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

2. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

3. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

; On-line screen to find a physician.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
=====================================================================
WHY A HEADACHE SPECIALIST IS RECOMMENDED

Headache. 2012 Jan;52(1):99-113.
Cluster headache in the United States of America: demographics, clinical characteristics, triggers, suicidality, and personal burden.
Rozen TD, Fishman RS.

THERE REMAINS A SIGNIFICANT DIAGNOSTIC DELAY FOR CLUSTER HEADACHE PATIENTS ON AVERAGE 5+ YEARS WITH ONLY 21% RECEIVING A CORRECT DIAGNOSIS AT TIME OF INITIAL PRESENTATION.

Bob Johnson

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maz

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Hampshire, England
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Re: Do I suffer from cluster headaches please help
Reply #4 - Mar 24^th, 2015 at 5:59pm

Hi Zoe
The duration of your headaches seems rather short to be CH, which normally last from between 30 minutes to several hours. However , we are all different, so you never know. But as Hoppy said it sounds more like SUNCT.

Follow Bobs advice on finding a good headache specialist to give you the correct diagnosis. All the different headache types (there are a few) respond to different meds, so it will be difficult to treat untill you know what you have.
Let us know how you get on
Maz.

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