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cluster-migraine (Read 3773 times)
LadyLuv
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cluster-migraine
Apr 8th, 2015 at 12:07pm
 
Family I have a friend that a doctor in Indiana has diagnosed with Cluster-Migraine.. Have anyone ever heard of that? Is there such a thing?
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maz
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Re: cluster-migraine
Reply #1 - Apr 8th, 2015 at 2:08pm
 
Hi LadyLuv,
Many years ago, long before I had CH, my brother had a continuous headache which lasted for well over a week. He said it was the worst thig he'd ever experienced.. After a week of self medicating, visits to the doctors (only a locum as his own doctor was having a few days off) and hospital visits his wife was at her wits end so in desperation she took him to their own doctors house at 11pm one night. The doctor (in his pyjamas) diagnosed cluster migraine and gave him 2 pills - one for now and one for the next morning. As they got back in the car, the headache dissappeared. He never took the pill, and has ever had the same kind of headache again. He threw the pills away 2 years later.

Clearly it wasn't a CH as it lasted so long, but it did dissappear suddenly just like CHs do. I've described my CH to him and he says it wasn't the same, but his wife says it's not the same as her migraine either.

My neuro said another name for CH is migraineous neuralgia. To this day we don't really know what my brother had, as the symptoms he experienced don't seem to fit in with any of the headache types I know of.
Maz.
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ClusterHeadSurvivor
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Re: cluster-migraine
Reply #2 - Apr 8th, 2015 at 8:32pm
 
As a survivor of all 3 headaches, in short. NO
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shortstraw
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Re: cluster-migraine
Reply #3 - Apr 8th, 2015 at 8:41pm
 
Hi Ladyluv

About 6 months ago I experienced what my neurologist called a cluster-migraine. I woke up with a terrible migraine that progressively got worse during the morning. As my wife was driving to his office, I got a high level cluster hit on top of my migraine which lasted about 90 minutes. It was one of the worst pain experiences of my life. My neurologist saw me in full flight as I was vomiting, pacing and rocking in-between trying to talk to him.
He was about to admit me to hospital to knock me out for 12 hours till it passed but opted for nausea medication and a drug called Relpax. It was a good call as it was all gone in 1/2 hour. To go from such extreme pain to nothing in such a short time was almost miraculous. Relpax is a extremely effect migraine medication and possibly the cluster had run it's course.

Whether cluster migraine was the right term or was it just a migraine with a cluster on top, who knows but definitely something I don't want to go through again EVER !
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Callico
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Re: cluster-migraine
Reply #4 - Apr 8th, 2015 at 10:55pm
 
Generally a "Cluster-Migraine" diagnosis is made by a doctor who doesn't know what he's talking about.  If you google Cluster Migraine you will find Clusters and Migraines, but not in combination.

Jerry
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BarbaraD
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Re: cluster-migraine
Reply #5 - Apr 9th, 2015 at 10:06am
 
Ok, here goes... I've had a migraine and then got a cluster on top of it, but they were two different headaches (and I wouldn't wish them on anyone!!).

The migraine was typical - lay down, dark room, don't move... then the cluster hit and that was out of the question - Get up MOVE, bang head,

All the while the migraine had the nausea with it. One time I ended up on the back porch yelling at God to kill me. It was that bad.

8 hours later (Red Bull, O2, Imitrex, and a pain killer). The CH would come and go - I think I had about six of them before they stopped for the day, I finally got easy enough to fall asleep.

But in answer to your question - they are DIFFERNT headaches totally.

Migraines are BAD, but they don't hold a candle to CH. The migraines are all over from the base of your skull to the top of your head (both sides).. The cluster is one sided.

Right now with the D3 I'm down to just having migraines and thankful for that.  Kiss

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Hoppy
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Re: cluster-migraine
Reply #6 - Apr 9th, 2015 at 8:05pm
 

M.D. Kudrow, L. and M.D. Kudrow, D. B. (1994), Inheritance of Cluster Headache and its Possible Link to Migraine. Headache: The Journal of Head and Face Pain, 34: 400–407. doi: 10.1111/j.1526-4610.1994.hed3407400.x

Quote:

SYNOPSIS

We evaluated the possibility that cluster headache may be a transmitted disorder, influenced by migraine genetics. In the first part of a two part study, 24 female cluster headache probands having at least one first degree relative with cluster headache were evaluated for familial histories of cluster and migraine headache. Headache histories of most parents, sib-lings and children were satisfactorily documented by either direct interview or by information provided by knowledgeable relatives. In approximately a third of relatives, the headache history could not be properly ascertained. The second part of the study evaluated occurrence rates of cluster and migraine headaches among first degree relatives of 200 female and 100 male cluster headache patients, and the proportion of affected relatives. These data were compared to those of 200 women and 100 men with migraine headache; family history data were, for the most part, provided by headache patients.

Twenty-four of two hundred cluster headache women (12%) had at least one first degree relative with cluster headache. Three generations of cluster headache were found in 7/ 24 kindreds (29.17%). Parental cluster headache was found in 19 of the 24 probands (79.17%); in 14/19 (73.68%), transmission was from father to proband. Fifty percent of cluster pro-bands also had migraine headaches, and almost 50% had a family history of migraine. Similarly, of the larger population of 300 cluster patients, approximately 45% had a positive family history of migraine. Of 1652 relatives of all cluster patients, 3.45% had cluster headache (thirteen times the expected frequency of cluster headache in the general population) and 17.55% had migraine headaches.

The combined occurrence rate of cluster and migraine headaches among mothers or fathers of cluster patients differed little from the parents of migraine patients (X2 = 3.16, P <.10; X2 = 0.28, P < 0.70, respectively). Migraine was significantly more common, however, among some relatives of migraineurs compared to combined frequencies of migraine and cluster headache among relatives of cluster patients. Finally, the migraine population of Goodell et al.28 was compared to our cluster headache population for occurrence of either headache type among children where neither, one or both parents had headaches. The results for our cluster population was 36.33%, 48.07% and 71.43%, respectively; this distribution was not significantly different from the migraine group of Goodell et al. (28.6%, 44.2% and 69.2%),28 and conformed to a Mendelian pattern of transmission (X2 = 37.55, P < 0.001).

Results of this study provided evidence suggesting a genetic basis for cluster headache. Equally compellingwere findings suggesting a genetic link between migraine and cluster headaches. The authors have speculatedthat migraine and cluster headache may be the same disorder, genotypically, but expression of the latter mayinvolve a more complex process requiring, as yet unknown, extrinsic or intrinsic influences











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Marc
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Re: cluster-migraine
Reply #7 - Apr 15th, 2015 at 9:35pm
 
Ruthie,

Jerry and Barb have clearly outlined what has been the general consensus around here since the good Dr. Peter Goadsby became our guru so many years ago.

The diagnostic norms are gradually shifting to where Cluster Headaches are getting much more common every year. I met a doctor who simply said:

If it hurts that badly, it is probably be a cluster because they REALLY hurt! I fully expect a new headache to identified as "Tension Cluster" or the other way around.

Marc
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« Last Edit: Apr 15th, 2015 at 9:37pm by Marc »  
 
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AussieBrian
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Re: cluster-migraine
Reply #8 - Apr 16th, 2015 at 2:16am
 
I've heard the term Cluster Migraine so many times over the years and simply assumed that 'migraine' was being used purely as a substitute for 'headache'.

Never that anyone was trying to combine the two conditions, simply a poor choice words that only a CHead would notice.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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midwestbeth
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Re: cluster-migraine
Reply #9 - Jun 29th, 2015 at 4:41pm
 
Went thru hell last summer with ch. (that's the short story) Finally saw a Dr and at first I thought she knew what she was doing, until it seemed she was spending more time trying to disprove my ch (men, not women, get ch, Rx meds that didn't work, etc) and finally diagnosed me with cluster migraines.  Never went back.  I am done with all Drs.
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Hoppy
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Re: cluster-migraine
Reply #10 - Jun 29th, 2015 at 7:23pm
 
Theirs no such thing as a Cluster Migraine. It's either a
Migraine or a Cluster Headache. Good job you sacked her.

Hoppy

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« Last Edit: Jun 29th, 2015 at 7:28pm by Hoppy »  
 
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cluster000
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Re: cluster-migraine
Reply #11 - Oct 3rd, 2015 at 4:08pm
 
BarbaraD wrote on Apr 9th, 2015 at 10:06am:
Right now with the D3 I'm down to just having migraines and thankful for that.  Kiss



Hi Barbara,

Can you please clarify if by D3 you mean Vitamin D3? If yes, would you be kind enough to mention how you took it and how long it took to cure your CH?

Thank you.
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BobG
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Re: cluster-migraine
Reply #12 - Oct 3rd, 2015 at 5:00pm
 
Hi cluster000. Welcom to the board. I'm not Barbara but I'll answer your question anyway. Go over to the Cluster Headache Help  & Support section of this site. Then scroll down to the discussion titled Anti-inflammatory Vitamin D3 Regimen. You find a very long string on the subject. The regimen has helped many, many cluster heads become pain free.
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« Last Edit: Oct 3rd, 2015 at 5:02pm by BobG »  

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pattik
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Re: cluster-migraine
Reply #13 - Oct 3rd, 2015 at 5:38pm
 
cluster000 wrote on Oct 3rd, 2015 at 4:08pm:
Hi Barbara,

Can you please clarify if by D3 you mean Vitamin D3? If yes, would you be kind enough to mention how you took it and how long it took to cure your CH?

Thank you.

Greetings! The D3 regimen has been very successful for many, but it's a treatment, not a cure. If you scroll down half way through the first post of the following thread, you'll find the basic ingredients. But read as much as you can, because the cofactors are very important, and getting the blood test will help immensely. And ask questions. People will be happy to advise.
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cluster000
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Re: cluster-migraine
Reply #14 - Oct 5th, 2015 at 3:20pm
 
Many thanks BobG.

Many thanks Pattik.

Great forum, one of the best.
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