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BarbaraD

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Where the devil....
Aug 23^rd, 2015 at 11:21am

is everyone? I see some of you on FB, but you're not coming over here that much lately. What's the deal? There are people out there that need HELP...

On FB, they're still at square one. Some of us OLD timers here are trying to get them over here (and to CB.com) for HELP, but if there's no one over here to help them..

When I read some of the posts on FB, I feel like I'm back in 1998 or 1999... it's the same thing we were talking about back then and the answers are about the same..

Then apparently there's some so-called "support" group that's running down this site (huh?). From what I'm reading - the guy that started that one was here for a while - got help and now is saying we're a bunch of "witch doctors".

Some of these folks are just now discovering O2, but don't have a clue how to use it and aren't getting the "right" info - just things like, "Oh I tried that and it didn't work."

Folks... I know a lot of you are pain free now (hell, I am too) but that's no reason to ignore this site that's helped so many of us - time to give back ..

Rant over... But I really mean it.. Kiss

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Marc

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Re: Where the devil....
Reply #1 - Aug 23^rd, 2015 at 6:48pm

Barb, I don't know anything about the Facebook page that you mentioned - but the culture here has changed. Once you squelch people too much, many people will simply move on.

Think about what kept this place rocking along, and how the members truly interacted in a very personal way. We actually knew and trusted each other, and got together in person.

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Opus CH.com Hall of Famer Offline "We have met the enemy... and he is us" Posts: 2746 Sidney,NY USA Gender:	Re: Where the devil.... Reply #2 - Aug 23^rd, 2015 at 10:53pm I'm still here. I haven't seen many here to help so I only visit once a month or so. I don't post anymore because either no one reads my posts or every one has me blocked. Either way I don't waste my time by typing when no one will read it.
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BarbaraD

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Re: Where the devil....
Reply #3 - Aug 24^th, 2015 at 2:51am

Marc ... maybe we got back to the "old ways" and got back on track.. I'm not hurting right now, but I come here daily to see if I can help someone else..

I remember how bad it was to be alone with this thing -- and how wonderful it was when I found this place and someone who actually KNEW what it was like to go thru what I was going thru...

But it seems to a lot of people that if you're not hurting WHY do you need to come here... TO GIVE BACK SOME OF THE SUPPORT YOU GOT WHEN YOU WERE!!

And I can't believe no one has started a political fight lately... that used to be so much FUN!

I'm just wondering where all the KICKERS went off to... I miss them..

I personally think we've all gotten too darn PC for our own good..

Someone want to start something? I'm game... Kiss

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dauber

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Re: Where the devil....
Reply #4 - Aug 24^th, 2015 at 3:52am

ten year ago when I first saw this message board I read what the new visitors tab on the side bar said and I followed its instructions and I did what it says to do. I read as much of the archives and past posts as possible . I was desperate and had nothing to lose, I was in a dark place because I had lost everything due to CCH. the knowledge I gained from this website saved my life. I never posted , I didn't need to so many of the posts I read reflected my own personal experience . just reading the posts and the way that the members would interact and their sense of humor gave me a sense of comfort that was sorely needed . its too bad that those days are gone here. but the knowledge and the archives are not, so people can still come here as guests and get their life back. there are moderators on here now that don't even get a chance to moderate before there is a mad rush to persecute an old timer for a one word post . just re-read the new visitors tab and take it to heart . It would be safe to assume that not everyone that comes here has the health insurance or even a job due to their CH , they might have no home and no car or help to get to a headache specialist. sleeping on a relative's couch with nowhere left to turn. thank you DJ for this wonderful website you may never know how many people you have actually saved.

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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: Where the devil.... Reply #5 - Aug 24^th, 2015 at 6:42am Barb, Some people leave, and some people are Democrats. Ya just can't beat sense into everyone!
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Marc

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Re: Where the devil....
Reply #6 - Aug 24^th, 2015 at 9:20am

Opus wrote on Aug 23^rd, 2015 at 10:53pm:

I'm still here. I haven't seen many here to help so I only visit once a month or so.

I don't post anymore because either no one reads my posts or every one has me blocked. Either way I don't waste my time by typing when no one will read it.

Howdy, Paul. That is part of the lack of interaction that I was speaking of.

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Marc

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Re: Where the devil....
Reply #7 - Aug 24^th, 2015 at 9:27am

Quote:

ten year ago when I first saw this message board I read what the new visitors tab on the side bar said and I followed its instructions and I did what it says to do. I read as much of the archives and past posts as possible . I was desperate and had nothing to lose, I was in a dark place because I had lost everything due to CCH. the knowledge I gained from this website saved my life. I never posted , I didn't need to so many of the posts I read reflected my own personal experience . just reading the posts and the way that the members would interact and their sense of humor gave me a sense of comfort that was sorely needed . its too bad that those days are gone here. but the knowledge and the archives are not, so people can still come here as guests and get their life back. there are moderators on here now that don't even get a chance to moderate before there is a mad rush to persecute an old timer for a one word post . just re-read the new visitors tab and take it to heart . It would be safe to assume that not everyone that comes here has the health insurance or even a job due to their CH , they might have no home and no car or help to get to a headache specialist. sleeping on a relative's couch with nowhere left to turn. thank you DJ for this wonderful website you may never know how many people you have actually saved.

Well said - and I understand the dark place comment......

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Marc CH.com Old Timer Offline Posts: 429 TX Gender:	Re: Where the devil.... Reply #8 - Aug 24^th, 2015 at 9:29am Bob P wrote on Aug 24^th, 2015 at 6:42am: Barb, Some people leave, and some people are Democrats. Ya just can't beat sense into everyone! But Liberalism is what looks smart, to people with no sense.
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BarbaraD

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Re: Where the devil....
Reply #9 - Aug 24^th, 2015 at 9:45am

Yeah, Dauber... I remember the night "Dance with the Devil" appeared on here.. We all know that dark place.

And Marc, I do go back to the archives and I still laugh my rear off at some of the things we said (and wrote) back then. We were hurting so darn bad and could still make jokes and insult each other back into a good mood.

Some of us (mostly Dim-0-crats I guess) have been outspoken, but we've always had fun (at least I have) arguing about our different points of view. Even the trolls were fun.

And yes, we've run off some people but we've helped so many and what DJ has done here .. well there's just no words for it.

Guess I must be getting old cause not too long ago I actually AGREED with Bob P and that's way out of character for me.

But I guess it's true what they say... Progress was good - it just went on too long... Kiss

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Mark Olson

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Re: Where the devil....
Reply #10 - Aug 24^th, 2015 at 12:54pm

From a newbie's perspective, I have noticed a certain amount of crankiness from a few of the old-timers here.

But I have to say that this site has been a lifesaver for me. I was headed for a very dark place as I began to realize that I would have to deal with these terrible headaches for the rest of my life.

But the information and advice I have found and received here has greatly improved the quality of my life, and I am back to being my old optimistic, productive self.

I hope you old-timers can find way to make it more fun again. I'd hate to lose your hard earned wisdom.

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maz CH.com Hall of Famer Offline I Love CH.com! Posts: 1071 Hampshire, England Gender:	Re: Where the devil.... Reply #11 - Aug 24^th, 2015 at 5:22pm I look in most days, if nothing else to see if everyone else is OK, and I do try to "give back" when I can. If my CH was cured tomorrow and I never had another hit in my life, I would still look in most days, and for ever be grateful.
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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Where the devil.... Reply #12 - Aug 24^th, 2015 at 6:51pm I tend to think folk think of this website like going to the doctors! Once their feeling better, theirs no need to go back. Cheers Hoppy
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stevegeebe

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Re: Where the devil....
Reply #13 - Aug 24^th, 2015 at 10:11pm

Mark, if you haven't strolled through the archives please do. Cranky is an understatement. I enjoyed it. It was likely why some folks left of simply decided to lurk. It usually was restricted to the General Boards and I think DJ decided wisely to add Cluster Specific forum.

I must admit my visits have tapered off. I do however check in occasionally and selfishly it is when the beast decides to visit. I think it's to remind me that I'm not alone and immediately stamps out the personal pity party. I relish the laughs and reading about the new remedies. I do miss the political discussions, edgy humor and raucous banter from the old days.

If you want a wonderful example of what a family this is, go back ten years ago (almost to the day) and read the threads about the shit storm named Katrina. I won't try to expand on what was written. I wouldn't do it right. It's one classic example of why I believe suffers of this craptastic malady are some of the kindest group of people. When you are having your ass handed to you with pain something has to balance out the agony. Caring and kindness are the counterpoints nature is searching for.

Hey, how about that President and the useless legislative branch???...Supreme Court?

Steve the argumentative G

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Potter Ex Member	Re: Where the devil.... Reply #14 - Aug 24^th, 2015 at 10:39pm Bullshit. Potter
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Opus CH.com Hall of Famer Offline "We have met the enemy... and he is us" Posts: 2746 Sidney,NY USA Gender:	Re: Where the devil.... Reply #15 - Aug 24^th, 2015 at 11:42pm Marc wrote on Aug 24^th, 2015 at 9:20am: Howdy, Paul. That is part of the lack of interaction that I was speaking of. I think I have proved my point. Thanks Marc for replying to my second to last post on CH.com.
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Sean McE CH.com Veteran Offline I Love CH.com! Posts: 143 Seattle, Wa Gender:	Re: Where the devil.... Reply #16 - Aug 25^th, 2015 at 12:48am Does that mean sheepshit from New Zealand stuffed in one's ears doesn't count? Sean
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Where the devil.... Reply #17 - Aug 25^th, 2015 at 2:46am Sean McE wrote on Aug 25^th, 2015 at 12:48am: Does that mean sheepshit from New Zealand stuffed in one's ears doesn't count? It'll smell a lot sweeter than what they get on the other side of the ditch.
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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Where the devil.... Reply #18 - Aug 25^th, 2015 at 4:00am Mike NZ wrote, It'll smell a lot sweeter than what they get on the other side of the ditch.
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BarbaraD

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Re: Where the devil....
Reply #19 - Aug 25^th, 2015 at 11:33am

Quote:

Bullshit.

Potter

And, you grouchy old man, you know I love every bone in your body... just feel the love... Smiley

And Steve... I remember that time... the one thing that came to mind immediately was that woman giving you the $20. I still get choked up over that one.

But until we heard from you and Edna.. well... we worried... that's what families do.

Think I'll start a new thread... Ready to ARGUE!! Down with POLITICIANS? Kiss

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Sean McE CH.com Veteran Offline I Love CH.com! Posts: 143 Seattle, Wa Gender:	Re: Where the devil.... Reply #20 - Aug 25^th, 2015 at 10:34pm To you folk down under, on both sides of that ditch...... This is a big Thank You for sending those Fire Fighters up here to help keep Eastern Washington from burning to the ground. 700,000 acres+ burned and still rising. My little 40 hasn't gone up in smoke yet and maybe now it won't. Sean
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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Where the devil.... Reply #21 - Aug 26^th, 2015 at 3:15am Hi Sean, for your kind words, and fingers x your property can be saved. Hoppy.
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blacklab Ex Member	Re: Where the devil.... Reply #22 - Aug 26^th, 2015 at 4:01am Hey Sean, Hope they get it under control real quick ! I have empathy for you, know exactly what it feels like ! Your guys have travelled down here and helped in the past, and that's how it should be too...... good luck colin
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BobG CH.com Hall of Famer Offline Posts: 6422 St. George, UT Gender:	Re: Where the devil.... Reply #23 - Aug 26^th, 2015 at 8:02am Barbara, thanks for starting this thread. You are 100% correct, Love ya young lady.
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Marc CH.com Old Timer Offline Posts: 429 TX Gender:	Re: Where the devil.... Reply #24 - Aug 26^th, 2015 at 11:31pm BobG wrote on Aug 26^th, 2015 at 8:02am: Barbara, thanks for starting this thread. You are 100% correct, Love ya young lady. Well, yeah - but some folks might not realize that this comment comes from a guy who drove out to Las Vegas constantly - I mean every week for sure! Who would trust a guy like that??!! Marc
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