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Hell (Read 2392 times)
shadia
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Hell
Sep 9th, 2015 at 9:44am
 
I thought i new what hell was because i have fibromyalgia  but now with ch... this  is another level of hell , having my first very bad case pain 24-7 with the shadow at k5 all over my head pulsating grinding never going and peaks or cluster  at k8 left side. Taking immitrex injections cutting doses like i learned here .. my god that is expensive stuff, started the Vit D3 regimen as described by Batch who i thank so much i am  seeing doctor tomororow for O2 at home... Drinking water ,pepsi coffee.. peeing all the time , not sleeping. But i have so much gratitude towards this site, if not for you i would be thinking i am dying of brain cancer. How long can i stand this...
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This to shall pass
 
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maz
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Re: Hell
Reply #1 - Sep 10th, 2015 at 3:51am
 
Hi shadia
Try to stockpile a few injections when you are out of cycle. You will be well prepared for next time and it helps to spread the cost.
The 02 is fantastic but you must have at least 15 litres per minute with a non-rebreather mask. Make sure your doc gets it right or it won't work.
Instead of pepsi, try an energy drink like redbull or monster. They contain taurine which is sometimes effective if you are quick enough. Don't wait till the pain ramps up - it needs to be at the very first sign of pain. You have to drink it down really fast because it needs to be a sudden hit to your system. It also helps to keep you going through the day if you've had a night with no sleep.
Hope this helps
Maz.
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blacklab
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Re: Hell
Reply #2 - Sep 10th, 2015 at 4:55am
 
Hey Shadia,
                sorry your going through it at the moment, we all know your suffering well.
I agree with Maz, that red bull can make a difference. I had never ever had any energy drink pryor to my clusters, took some doing to get used to the taste. But now, If I feel the slightest twinge, off to the fridge, grab an ice cold, sugarless red bull ( Grin) and gulp it down, seems to have a more immediate result over coffee, but its different for everyone I suppose. I have read here that some of those that use 02, first gulp down an energy drink then attack the 02.
I hope you can get on top of this soon, good luck.

colin
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shadia
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Re: Hell
Reply #3 - Sep 10th, 2015 at 5:54am
 
ok thank you for the info , i dont really like energy drinks since i am already a anxious person and they seem to make  my anxiety worse, but will try for sure , would try  sheep dung lol if it works  like a red here in a post... made me laugh.
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maz
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Re: Hell
Reply #4 - Sep 10th, 2015 at 6:08am
 
shadia,  I know what you mean. Energy drinks look and taste like p**s, but nothing is as bad as the pain of a CH.  Sheep dung ? Yeah me too  - You have to try everything once !!!  Cheesy
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AussieBrian
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Re: Hell
Reply #5 - Sep 10th, 2015 at 6:52am
 
shadia wrote on Sep 10th, 2015 at 5:54am:
would try  sheep dung lol if it works... made me laugh.

We have a hypothalamus and, oh, but for the life of us,
It plays up, stays up, breaks up and wakes us up.
My little hypothalamus, big like hippopotamus,
It must’ve fostered cluster and you’re busted down to hell with us.

Medication, meditation, seditation, tried the lot.
Lithium and calcium, lidocaine, tried smoking pot.
Caffergotcha, melatonin, teeth pulled, stop your moaning,
Accupuncture, coca cola, anything to stop the rot.

Hot packs, cold packs, predni-poison, dopey-max,
Ibuprofen and religion, snorted mustard, visited quacks.
Imitrex and quick sex, goodness knows what hex is next,
Don’t tell us, hypothalamus, we all must just learn to relax.

Hoo-doo, voo-doo, kudzu, verapomil,
Boo-hoo, no O2. Like you, I can’t stand still.
Head-banging til it’s bleeding. Gimme strength, it’s all I’m needing,
Pills chill my thrills, hypothalamus, I’m filled with the will to kill.

So, hypothalamus, tell us tales we’ll all believe,
Why you swipe at all the lot of us with a pain we can’t relieve.
Did you have a lousy childhood? Dad a thug, your mother no good,
Or are you just a nasty basket who deceives to achieve?

Ha, we’ve got you, hypothalamus! Feisty beastie that you be.
We’ve seen you beat and cheat us, now we see your destiny.
We suffer rough and tough, so stuff your bluff we’ve had enough,
I’ve now got lots of friends, it’s no longer just thee and me.

(From the archives of ch.com)
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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shadia
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Re: Hell
Reply #6 - Sep 10th, 2015 at 8:06am
 
that is so right Brian..love it . It is great that we can still have a sense of humour about or pain . I am thinking of changing may name to taz now .. just a lovely portrait of what i look like when at my worse . Would love to find a picture of him and put him up as my alter self , i will try to see how.
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