Hi all,
Well as the title states, Ive been going thru my first real cycle in probably 13-14 months.
Started feeling like crap in October and quickly jumped on the Benadryl band wagon after realising that pollen was most likely the contributor. It worked a treat, but some sneak thru hits appeared, especially at that 2.00 am time and wake up ones, nothing over a kip 3.
So, back for another week of Benadryl, and a trip to the doctors for a D level test mid November, came in at 250 nmol, which was expected as I'd been titrating up for a week or so, my calcium levels came back normal.
then things ramped up, for a week, 4.00 pm, 7.00pm and then 10.00pm, Wow, its been so long since anything resembled a regular cycle. Then December 4th, 2.00 pm at work, a kip 5-6 ( forgot what it felt like ) and its basically been coming in groups of 3-4 at no pattern, but all kip 5-6.
I've tried just about all of the remedy alternatives, as I kept notes from when Batch was helping me from the start, but alas, all have failed. I pulled out an old bottle of prednisolone today, enough in it for a weeks tapered course. Didn't think I'de ever have to resort back to them, but getting some relief is the only thing on my mind at the minute. even though I rate them as only kip 5-6, down on my kip levels pryor to the regime, Boy, I forgot how those things hurt ! Been off verapamil since Febuary, and I've never had O2, didn't know about O2 for the first year I got clusters.
I resorted to popping an imigran just before bed time and it hasn't failed to at least give me a full nights sleep.
Something has to have changed for this break thru cycle to appear. Pryor to this one, my cycles, every 3-4 months or so, have been easily deflected by titrating up on D3, some ice cold red bulls, an imigran before bed and a good strong coffee first thing in the morning and they have basically been of nuisance value only, nothing over a kip 2 and super easy to abort.
Normally my cycle lasts for 3 odd weeks, so 10 days into it is not worth getting the script and organising the O2 and the mask as it will probably be over by the time I set up. The verapamil did funny things to me, I was only on 180 to 240mg anyway, I was on it for near 2 years, and don't really want to go back there " yet".
The Regime, which I have consistently taken, seems to react violently down stairs with me since the cycle started, so since I was at 250nmol, I thought I'd take a week off, dropping back down to 200nmol, where I normally am and have been pain free.
Sorry for the epic war and peace novel

Just so damn frustrating after a long period of being able to manage it successfully.
I sit here looking at the prednisolone tablets, reluctantly !
but have run out of ideas at the minute ????
anyway, my rant over !

Hope everyone else is having more joy.
regards
colin