Click this link to read a post I like on the clusterheadaches.com message board...

Jul 4^th, 2025 at 3:19pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Daily Chat › General Posts › New to the site, slightly new to clusters.

(Moderators: DJ, Mrs Deej)

‹ Previous Topic | Next Topic ›

Pages: 1

New to the site, slightly new to clusters. (Read 1421 times)

Joe Newbold

CH.com Newbie

Offline

I Love CH.com!

Posts: 4

New to the site, slightly new to clusters.
Jan 27^th, 2016 at 4:44am

Hi, I've been having these headaches about once every six months for the last few years, first one I went to A&E as I honestly thought I was having a stroke! had 2 in the last 6 days now with the one last week being the worst I've ever had, temperature dropped to 35.3 celcius and nothing would shift the pain. They always start like I've just sniffed pure menthol through one nostril. I wake up and the side of my face is freezing and the pain is coming in 3 second waves. The ones last night went after about an hour and went fast so I'm managing today. Just wondered if all this sounds familiar to you all?

« Last Edit: Jan 27^th, 2016 at 4:45am by Joe Newbold »

IP Logged

Click Here to visit the CH.com Facebook page!

Peter510

CH.com Alumnus

Offline

Don't give out... But
don't give in.

Posts: 966
Wexford. Ireland
Gender: male

Re: New to the site, slightly new to clusters.
Reply #1 - Jan 27^th, 2016 at 5:29am

Joe,

Welcome.

We are not Doctors and so cannot diagnose. There are a number of headaches that mimic CH in some ways, but with different causes.

You need to get a neurologist who specialises in headaches to run a number of test and give you a formal diagnosis. Until you know what the cause of your pain is, you cannot begin to treat it.

Most CH'ers spend years suffering before they look for a formal diagnosis, myself included. Don't waste all that time. Do it now.

In the meantime, if you look at the tabs on the top left of this page you will see "Cluster quiz". Do that and let us know how you get on.

Also, what Meds are you taking, if any?

To help you find a headache specialist, could you let us know where you are in the world?

All headaches are horrible and whether yours is Cluster or something else, we are here to help.

Mind yourself,

Peter.

You don't stop laughing because you grow old....You grow old because you stop laughing.

IP Logged

Joe Newbold CH.com Newbie Offline I Love CH.com! Posts: 4	Re: New to the site, slightly new to clusters. Reply #2 - Jan 27^th, 2016 at 6:08am Took the quiz, answered yes to all but one on question 8 onwards, I'm in the midlands, UK. I currently only take paracetamol when I get an attack, although they are starting to be less effective. The back of my eye hurts today, just starting to feel like it never actually goes away.
Back to top	IP Logged

Mike NZ

CH.com Hall of Famer

Offline

Oxygen rocks! D3 too!

Posts: 3785
Auckland, New Zealand
Gender: male

Re: New to the site, slightly new to clusters.
Reply #3 - Jan 27^th, 2016 at 3:17pm

Hi Joe and welcome

As per Peter's post, you need to work with a headache specialist to diagnose what the cause of your headaches are. We can't do this.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

That is the website for the CH organization in the UK, they also have a helpline number you can call. They can help guide you through the process to get a diagnosis through the NHS.

There are also a few UK based people here too who will be able to give some local advice.

To help the diagnosis, start a headache diary recording when you get the headaches (time / day), what the symptoms are, how long they last, what you took to try to treat them and any possible triggers.

Keep us updated, we've all been through the experience of working to get a diagnosis.

IP Logged

Joe Newbold CH.com Newbie Offline I Love CH.com! Posts: 4	Re: New to the site, slightly new to clusters. Reply #4 - Jan 28^th, 2016 at 4:30am Thanks for that, will start a diary next time I get one. No headache last night so that's a plus! Thanks for your advice.
Back to top	IP Logged

Peter510 CH.com Alumnus Offline Don't give out... But don't give in. Posts: 966 Wexford. Ireland Gender:	Re: New to the site, slightly new to clusters. Reply #5 - Jan 28^th, 2016 at 4:34pm Joe, Below is a sample of a typical Headache Diary template. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Peter.
Back to top	You don't stop laughing because you grow old....You grow old because you stop laughing. IP Logged

Callico

CH.com Hall of Famer

Offline

Author of "Stranded at
Romson's Lodge

Posts: 4916
Aurora IL
Gender: male

Re: New to the site, slightly new to clusters.
Reply #6 - Jan 31^st, 2016 at 10:20pm

What they said. ^^^^ We want to help, but have unfortunately learned it is better to wait until you have a firm diagnosis with CT scan and MRI/MRA to rule out something more nefarious. You have us behind you, and just as soon as you know for sure what you are dealing with we'll do all we can to guide you.

All the best,

jlc

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!