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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Verapamil is working for me!

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Verapamil is working for me! (Read 1983 times)

Jeramy Scott

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Verapamil is working for me!
Apr 2^nd, 2016 at 12:51pm

I've been suffering from cluster headaches off and on since 2008.I was only diagnosed this month.They had been going six months this time,getting worse and worse in frequency.I was having 6 a day,4 while sleeping.I'd sleep 3 hours,and get my first.Slam your head on the floor painful,but I was fortunate they only lasted about 40 minutes.So exhausted I couldn't move after,I'd go back to sleep,wake up in an hour with another.That would repeat twice.I started verapamil on the 9th.By the third night,I still had 4 episodes at night,but they were mild,just enough to wake me,but mild enough I'd fall back asleep during.By the 4th night,I had no episodes.Since that 4th night,I have only had 1 full blown cluster headache.I only get a mild one here and there.I am almost 100% pain free.I was close to decorating the ceiling with my brain and probably most of my head.Side effects,none.That is my experience with verapamil

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Jeramy Scott CH.com Newbie Offline I Love CH.com! Posts: 5	Re: Verapamil is working for me! Reply #1 - Apr 2^nd, 2016 at 12:52pm *Last month,my bad
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Peter510

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Don't give out... But
don't give in.

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Wexford. Ireland
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Re: Verapamil is working for me!
Reply #2 - Apr 2^nd, 2016 at 2:10pm

Hello Jeramy,

Welcome to CH.com. There is a wealth of experience here for you to tap into and it's available around the clock, all year long.

It's great to hear that you are currently pain free. That's what we all search for.

Verapamil works very well for a lot of Clusterheads, but it's not strictly true to say there are no side effects. It causes low blood pressure for example and it's important that your Doctor is monitoring that. Long term use of any medicines has consequences.

Have you read up on the D3 regimen?

Best regards,

Peter.

You don't stop laughing because you grow old....You grow old because you stop laughing.

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Marc CH.com Old Timer Offline Posts: 429 TX Gender:	Re: Verapamil is working for me! Reply #3 - Apr 2^nd, 2016 at 8:28pm Jeramy, It's really GREAT to hear about your progress! Vera (Verapamil) was my girlfriend for many years. CH's have a nasty habit of morphing. Invest in your future and read more here, then read even more. Jump in with questions! Marc
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Mike NZ

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Oxygen rocks! D3 too!

Posts: 3785
Auckland, New Zealand
Gender: male

Re: Verapamil is working for me!
Reply #4 - Apr 2^nd, 2016 at 9:38pm

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Quote:

Verapamil may cause side effects. Tell your doctor if any of these symptoms are severe or do not go away:

constipation
heartburn
dizziness or lightheadedness
headache

Some side effects can be serious. If you experience any of the following symptoms, call your doctor immediately or get emergency medical treatment :

swelling of the hands, feet, ankles, or lower legs
difficulty breathing or swallowing
slow heartbeat
fainting
blurred vision
rash
nausea
extreme tiredness
unusual bleeding or bruising
lack of energy
loss of appetite
pain in the upper right part of the stomach
yellowing of the skin or eyes
flu-like symptoms
fever

What seems to be the more common ones are the tiredness, lowered blood pressure and constipation (I'm sure the tablets contain concrete dust).

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Bob Johnson

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free." -Epictetus

Posts: 5965
Kennett Square, PA (USA)
Gender: male

Re: Verapamil is working for me!
Reply #5 - Apr 4^th, 2016 at 9:23am

Lists of med side effects are seriously misleading when the % is not shown. In a full listing the data will report a range of less than 1% and up. Without the % data, it's impossible to make a reasonable judgment about the real life concern.

Useful reports indicate doses in the upper ranges which we use (about 500mg and up), a routine EKG should be part of the treatment. And reports are that even with an EKG which shows a heart rhythm , it resolves quickly when the Ver. is stopped, not a serious issue.

Given the long history of safe use, there is little reason to avoid using it as long as thee isn't a history of heart problems.

Bob Johnson

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MGP59DB

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Re: Verapamil is working for me!
Reply #6 - Apr 22^nd, 2016 at 5:25am

I had good results with Verapamil at first when I started on it , after about 4-6 months the HAs started creeping back in , I went to larger doses and that helped somewhat .
In the end out of desperation I tried this D3 program found here .
I suffered the same night time problems you describe and since starting on the D3 suppliments it has gone away .
I strongly suggest you at least give it a try ! The stuff is better for you than prescriptions .
And it sounds to me like you could benefit from it.
Something as simple as a Vitamin D shortage in your system can cause these headaches.

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