Hi I just ordered Lsa seeds what is a good starting amount for cluster headaches and how am I suppose to use them. Thanks.

I’m a former message board poster from a long time ago and was unofficially diagnosed by members of this board over 16/17 years ago. I’m basically a minor former poster (from the UK), and for well over ten years, an occasional visitor. Hence the current one post history! I saw your post about the LSA seeds and felt compelled to sign up again and post. Feels weird to be posting again!

To cut a long story short. I’ve been chronic for nearly two decades and been doped up on Verapamil for many of them (I get relief from Verapamil but there are many times when it doesn’t really help and life becomes a serious struggle). Tried everything, and I seriously mean everything apart from Lithium (which I don’t want to take) and implants/stimulators. I was taken off Verapamil in the second half of last year due to bradycardia and put on Topiramate. Oh how I regretted joking with my GP that my resting heart rate in the morning was 36-38bpm! The topiramate worked at first, felt fantastic and then stopped working after a month or so (I must also mention that the Topiramate sent me bonkers!). I ended up in a serious world of pain, oxygen stopped working and life became totally unbearable. After attending an OUCH conference in London later last year (at Guy’s Hospital – which was a miracle I got there) and speaking with some serious experts, including Prof Goadsby, I managed to persuade my doctor to put me back on Verapamil on the provision that I paid to see a Neurologist immediately. I had rumbled along on Verapamil, oxygen and Imigran injections for many many years and just accepted my fate. Therefore, I’d long since done away with my Neurologist and just managed the condition myself through my local doctor. After nearly twenty years you do learn to live with the headaches and find out effective ways to reduce them through life changes, choices and restrictions. 

Anyhow, I asked to be put back on Verapamil at 480mg. I’d never gone above that as it made me feel seroiusly lethargic and my local GP wouldn’t have sanctioned a higher dose anyway. I got instant relief! The headaches didn’t stop of course, but life became more bearable and I was able to abort headaches again with oxygen. I wasn’t happy about my situation, at all. I’d experienced life without verapamil (I felt ten years younger with the increased energy) and I was on 480mg a day. I felt like total cr@p and was still getting a reasonable battering by clusters! I began researching again (catch up time!) and familiarised myself with the ‘seeds’ treatment. I’d had a few half-hearted attempts at the ‘mushroom’ treatment many years ago with some success. But after the UK government reclassified the mushrooms as ‘Class A’ I decided to leave them alone. As the seeds are legal to purchase here in the UK, and as I was pretty confident that a policeman would not be busting through the door in the two hours preparation and consumption time, so I thought why not. The results have been simply stunning. I cannot begin to describe the difference. I am currently on an average verapamil dosage of below 100mg a day ( 4 x 120mg, 3 x 60mg) and next week dropping to 60mg a day. It is very possible that I may not need verapamil at the moment as I am only getting 1-2 very mild shadows a day and I can drink beer with no problems! However, I am very aware that people can come off verapamil, on then go on it again and get no benefit. I don’t want to ‘rock the boat’! Somewhat ironically, I spent £300 an a new ‘on demand’ oxygen mask after the conference and I’ve hardly used it in the past 5 months. They are awesome by the way! Note: I must admit that the alcohol tolerance is possibly due to a over the counter supplement I am taking that I suspect, may be preventing the alcohol attacks (not making any claims here as it may just be the seeds!).

To be honest, I’m not sure if it is appropriate for me to go into detail about my treatment and experiences with the seeds. I have only been an occasional visitor on this board for a very long time and I’m not sure about the do’s and don’ts. Maybe I have said too much already, and if so I apologise to the moderators.

Sorry for waffling on!

RightSider wrote on Jun 30^th, 2016 at 5:37pm:

Rob 101 differ wrote on Jul 5^th, 2016 at 7:33am:


Never heard or read anything about a CH killing someone.

For migraine, there is an increased risk of stroke (Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or ) which might be what you've been told about.