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Assistance - Can we help Peter Ketelslegers? (Read 22442 times)
thierry
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Re: Assistance - Can we help Peter Ketelslegers?
Reply #25 - Aug 12th, 2016 at 1:19pm
 
Hey Potter,
that is great.
May I ask if you have his contact details so that i could get in touch with him please.
Would you direct him towards this site.
I would be happy to phone him if i had his number, i would even visit him if he wanted to. I will be in his neck of the woods soon.
Will you tell me more about the secret handshake?!
All the best
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Potter
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Re: Assistance - Can we help Peter Ketelslegers?
Reply #26 - Aug 12th, 2016 at 2:32pm
 
thierry wrote on Aug 12th, 2016 at 1:19pm:
Hey Potter,
that is great.
May I ask if you have his contact details so that i could get in touch with him please.
Would you direct him towards this site.
I would be happy to phone him if i had his number, i would even visit him if he wanted to. I will be in his neck of the woods soon.
Will you tell me more about the secret handshake?!
All the best



      Now that is some kinda funny.

                  Potter
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thierry
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Re: Assistance - Can we help Peter Ketelslegers?
Reply #27 - Aug 13th, 2016 at 1:42am
 
How did I guess?!

Well Potter I hope Peter will somehow find out about ways that he can help his CH, it looks on that program like he and his wife and 2 young sons badly need all the help available to Peter so that they can try to live a "normal" life. I really feel for the 2 boys who are witnessing all the pain that their dad is going through.
I hope that Peter gets to find out about D3, High flow O2 etc.......

Now, that would be some kinda funny if for some reason or other, Peter had to remain without the knowledge that we are blessed to have been transmited with and that enables us to be pain free and helps our families to live a more "normal" life.

All the best
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« Last Edit: Aug 13th, 2016 at 3:25am by thierry »  
 
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Re: Assistance - Can we help Peter Ketelslegers?
Reply #28 - Aug 13th, 2016 at 6:25pm
 
Quote:
Now that is some kinda funny.


I always find your obtuse humor to be THE most informative and helpful of response Potter, especially when helping a fellow CHer's life is at stake. I'm glad you find humor in this thread...

Watch the Documentary.

If you can still conscionably continue "taking the piss" out of this after seeing the suffering Peter and his family go through, well...

Can you help this man or not?

Thierry has run down many resources as stated, and has not come up trumps yet, as have I.

I can only hope that when Batch returns, that he knows someone in that area who can help explain O2 and D3 use to Peter. Everyone on this site knows 7l/min is not going to cut it for CH aborts, this is THE place to come for O2 knowledge.

This man needs some help.

I shall go the traditional route and start contacting the broadcaster and journalist in question, that I can do.
People will continue to work to get the D3 and O2 info through to Peter, if he wants it.

F.

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Re: Assistance - Can we help Peter Ketelslegers?
Reply #29 - Aug 14th, 2016 at 7:55pm
 
I'm in touch with Peter on a daily basis. This is Peter

          Potter
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thierry
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Re: Assistance - Can we help Peter Ketelslegers?
Reply #30 - Aug 21st, 2016 at 5:48am
 
Hi Potter,

I hope you are well.

Could you tell me the name of the facebook group Peter is part of please.

Many thanks

All the best
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Potter
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Re: Assistance - Can we help Peter Ketelslegers?
Reply #31 - Aug 23rd, 2016 at 3:32pm
 
thierry wrote on Aug 21st, 2016 at 5:48am:
Hi Potter,

I hope you are well.

Could you tell me the name of the facebook group Peter is part of please.

Many thanks

All the best


  Are you fluent in Belgian?

               Potter
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thierry
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Re: Assistance - Can we help Peter Ketelslegers?
Reply #32 - Aug 23rd, 2016 at 3:52pm
 
Hi Potter,
I am not fluent in Flemish (language spoken in some parts of Belgium) but i have a few words.
Most belgians speak both languages -French and Flemish-.
I am French -living in Ireland for the last 28 years- so should have no problem communicating with Peter if I had the opportunity. Also most Europeans would have some knowledge of the English language.
You say above that you are "in touch with Peter on a daily basis", through what language do you communicate with him? I believe his wife speaks very good English, from what I could hear on the TV program on which Peter, his wife and their children featured.
I will be travelling to north of France next saturday to visit members of my family. The area is about 1 hour away from the area where Peter lives.
I think Peter might appreciate the fact that another CH sufferer would want to do the effort to meet him, have a chat, exchange ideas and maybe i could share with him the  knowledge that i have gained through this website as to how to help relieve the pain of CH.
In my opinion, that is what this site is about. Being in contact with people who understand has for me been a life saver and I am grateful to every member here for the listening, the sharing and the help that i have been given.

All th best
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AussieBrian
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Re: Assistance - Can we help Peter Ketelslegers?
Reply #33 - Aug 24th, 2016 at 5:10am
 
Thierry, we mustn't be pushy.

Let's just be thankful that he's in touch with one of us, on a daily basis, so our combined knowledge is being passed on to someone who desperately needs it.

On a daily basis.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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thierry
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Re: Assistance - Can we help Peter Ketelslegers?
Reply #34 - Aug 24th, 2016 at 5:34pm
 
We'll leave it there so.
The info is not forthcoming anyway and seems to be exclusive, it's a shame. I sincerely hope that Peter and his family get to know all that can help.

All the best
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« Last Edit: Aug 24th, 2016 at 6:04pm by thierry »  
 
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Potter
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Re: Assistance - Can we help Peter Ketelslegers?
Reply #35 - Aug 25th, 2016 at 4:46pm
 
thierry wrote on Aug 24th, 2016 at 5:34pm:
We'll leave it there so.
The info is not forthcoming anyway and seems to be exclusive, it's a shame. I sincerely hope that Peter and his family get to know all that can help.

All the best



It's not exclusive at all.  He has no interest in meeting with you.

             Potter
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thierry
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Re: Assistance - Can we help Peter Ketelslegers?
Reply #36 - Aug 26th, 2016 at 1:23am
 
Hey Potter,
that's just what I was going to ask him.
great you did it.
All the best
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