Hey Heather,

Welcome to CH.com.  You've come to the right place.  We know what you're going through and the good news is it doesn't need to be that way.

Check your email.  I've sent some info you'll need to discuss with your PCP or neurologist.

Sleep is a problem and major source of angst for CHers.  We know the CH beast will start jumping ugly after an hour of sleep so many of us avoid sleeping as much as possible... and usually fall asleep sitting in a chair.

Not surprisingly, sleeping semi-reclined actually helps reduce the frequency of CH.  The reason is simple. Elevating the head above the heart when semi-reclined requires a higher heart beat to lift the blood to the brain than it would if sleeping supine where the brain and heart are at the same level.  This also requires additional respiration to maintain oxygen levels.  The net result for CHers is a drop in the frequency of CH while sleeping.

A baking soda tonic can also help.  It's made with a half teaspoon of good old Arm & Hammer Baking Soda in a half glass of water.  Drinking one of these prior to sleeping semi-reclined will help elevate systemic pH which also lowers the frequency of CH.

The most reliable way of getting a good night's sleep as a CHer is to start the anti-inflammatory regimen with 10,000 IU/day vitamin D3 plus the cofactors.

Take care and please keep us posted.

V/R, Batch