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Why so different this time around? (Read 1160 times)
lirrgirl14
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long island new york
Gender: female
Why so different this time around?
Mar 9th, 2017 at 10:47am
 
Hello all.. wow its great to be back reading up on all this new information.ive been suffering since 1996. I have been CH free for almost 2 1/2 yrs until Feb 1st .I Woke up with one. Havent had another CH the whole month of FEB. Until March1st. Now this is different for me. IM the typical fall asleep get CH wake up get CH last about 2hrs.. tone down middle of month. spike up to 10!! by end of month. and then finally done till next yr. Now I'm dealing with Instant CH as soon as I put my head down. And they are only 3-4 pain..but there alllll night with maybe 5 min relief inbetween...
  o2 never really worked for me..But I read here that there is a new mask. Maybe I will try. I have 4mg imitix. But I save those for 8-10 pain.
  Does anyone Know why? CH come on so fast when laying down??
And I don't know if anyone is interested in this..But being that my Ch cycle is soooo different then in the past. I was wondering if anyone here has heard of Adderall helping.. I started it in December low daily dose.
Well it was great seeing some of the same members still here!! YOu guys were a blessing for me at 2AM back in the days..
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catherine
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Batch
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Control The Beast With
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Bremerton, WA
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Re: Why so different this time around?
Reply #1 - Mar 9th, 2017 at 4:22pm
 
Hey lirrgirl14,

Your problem may be your serum 25(OH)D concentration (Vitamin D3 Status) is too low.  The normal reference range for the 25(OH)D lab test is 30 to 100 ng/mL (75 to 250 nmol/L).  Suggest you see your primary care physician (PCP) and ask for this lab test.

As CHers, we need to keep our 25(OH)D serum concentration up around 80 to remain CH pain free.  That requires an average vitamin D3 dose of 10,000 IU/day plus the vitamin D3 cofactors: magnesium, zinc, boron, vitamin A (retinol), vitamin K2 complex and Omega-3 fish oil.  We call this clutch of vitamins and minerals the anti-inflammatory regimen.

Well over 600 CHers from here at CH.com and ClusterBusters have started the anti-inflammatory regimen and better than 80% of them have experienced a significant reduction in the frequency of their CH from an average of 3 CH/day down to 3 CH/week in the first 30 days.  54% of CHers who start this regimen experience a lasting CH pain free response.

Cluster headache is pH sensitive. In other words, if your system becomes too acidic like it does during sleep, it opens the door for more frequent CH.  Drinking a baking soda tonic an hour after each meal and right before bed can help.  You make it with a half teaspoon of good old Arm & Hammer Baking Soda in a half glass of water.  The directions are on the box.

Take care and please keep us posted.

V/R, Batch
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« Last Edit: Mar 9th, 2017 at 4:26pm by Batch »  

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lirrgirl14
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Re: Why so different this time around?
Reply #2 - Mar 10th, 2017 at 9:08am
 
thank you very much.. I will try this
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catherine
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