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steady16
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Apr 26th, 2017 at 4:41pm
 
Hi fellow clusterheads... I'm new to the forum, I'm an episodic cluster headache sufferer, diagnosed late last year..after 6 years of suffering!  I'm looking for the D3 regime and what dosage to take??  Roll Eyes im in the UK ....
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Hoppy
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Re: Newbie
Reply #1 - Apr 26th, 2017 at 7:23pm
 
Hi steady16 and welcome,

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Good luck
Hoppy
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Batch
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Re: Newbie
Reply #2 - Apr 27th, 2017 at 12:33am
 
Hey Steady,

Good on you for wanting to start the anti-inflammatory regimen...  It's a decision you'll be glad you made...

Hoppy is spot on with the link he sent you. The VitaminDWiki website is the place to go for all things vitamin D3.  The link Hoppy gave you will take to to an extensive page on the anti-inflammatory regimen.

You can also download the latest version of the anti-inflammatory regimen CH preventative treatment protocol at the following VitaminDWiki link.  Be sure to share a copy with your PCP or neurologist. 

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If you've a smart phone, scan the following QR code and it will download this same regimen to your smart phone as a ready reference.

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If you don't have the QR scanner app on your smart phone, it's free to download and it installs in 10 seconds.

We've several CHers there in the UK taking the anti-inflammatory regimen to prevent their CH.  Most of them order their supplements from the iherb.com website and are careful to keep their orders under 4 lbs to get the best shipping rates.

We've been helping CHers new to this regimen for over six years so we know how to get you through any bumps in the road to a CH pain free existence. Accordingly, sing out if you run into problems or have questions.

Take care and please keep us posted...

V/R, Batch
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« Last Edit: Jul 15th, 2017 at 7:05am by Batch »  

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steady16
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Re: Newbie
Reply #3 - Apr 27th, 2017 at 2:12am
 
Thanks for the replies, I will be ordering today...much appreciated  Smiley
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Peter510
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Re: Newbie
Reply #4 - Apr 27th, 2017 at 1:44pm
 
Hey steady,

Welcome to CH.com.

D3 Regimen.....get on it, stay on it.....you've nothing to lose but your Headache.  Over 80% of us using it attest to its effectiveness.

Keep posting,

Peter.
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steady16
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Reply #5 - Jul 10th, 2017 at 2:55am
 
update..

Well after suffering for so long I started the D3 regime at the end of April and I haven't had one since! I cant actually believe it....ive tried most other things with no joy!! I feel like ive been set free...I just hope it continues! thank you for your help guys  Smiley
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Batch
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Reply #6 - Jul 14th, 2017 at 5:50pm
 
Hey Steady,

Thanks for the wonderful update.  It's a great feeling isn't it...

If you can find the time, we would like you to take the survey of CHers taking this regimen to prevent their CH. 

By taking this survey you help provide the needed medical evidence regarding the efficacy of the anti-inflammatory regimen so more neurologists and headache specialists will introduce it to their cluster and migraine headache patients.

To start this survey, click on the following link:

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For non-members paste the following link in your browser then replace the "(DOT)" with a "." period:

www(DOT)esurveyspro(DOT)com/Survey(DOT)aspx?id=fb8a2415-629f-4ebc-907c-c5ce97102
2f6

If you experience problems taking this survey or want to comment about it, respond to this post.

Take care,

V/R, Batch
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« Last Edit: Jul 14th, 2017 at 7:22pm by Batch »  

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there
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jon019
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Re: Newbie
Reply #7 - Jul 14th, 2017 at 6:31pm
 
Hi Batch...most excellent work!!!

Just to be clear...this is different than the survey? I filled that our years ago...so this
is a follow up?

Guests are invited to participate but links do not work for "non members". Is there a way to
activate the link even for guests?

Best

Jon
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Batch
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Reply #8 - Jul 14th, 2017 at 7:21pm
 
Hey Jon,

Good questions and thanks for the headzup about non-members not being able to see the survey link. 

This is the same survey that went online in December of 2011.  As of last March, 215 CHers have completed and submitted.  There's another 160 who haven't completed or submitted their surveys so I can't count them in the computations for efficacy or 25(OH)D response.

The survey was intended to be open to CH.com members and guests.  I've made a change to make that happen.

Refresh this page and check the previous post to see what I mean.

Thanks again...  I only wish I'd realized this problem years ago... we could have had more survey participants.

Take care,

V/R, Batch
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steady16
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Reply #9 - Aug 9th, 2017 at 11:08am
 
Well I think I spoke to soon, the beast is back Sad .... can you give me any advice on what to do next...im taking 10.000 D3. vit k2 mk-7, boron, omega 3 fish oil 1000mg and calcium/magnesium & zinc combined...am I doing something wrong~?
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Peter510
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Re: Newbie
Reply #10 - Aug 9th, 2017 at 12:24pm
 
Have you had your bloods done yet?

Peter.
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steady16
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Reply #11 - Aug 9th, 2017 at 12:51pm
 
No Peter I haven't yet, I'm off on holiday tonight for a week so I will get them done as soon as I get back....Its been pretty miserable here weather wise the past month so Im wondering if I'm not quite getting enough D3, hoping to top it up in the med this week tho. 
Thanks for your reply.
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Batch
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Reply #12 - Aug 11th, 2017 at 7:52pm
 
Hey Steady,

Crap happens...  even to an old CHer and anti-inflammatory expert like me...  Take a look at the post I just made to Payg in response to dealing with breakthrough CH.  To view it, click the link below:

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Take care and please keep us posted.

V/R, Batch
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« Last Edit: Aug 11th, 2017 at 7:55pm by Batch »  

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there
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steady16
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Reply #13 - Aug 17th, 2017 at 5:11pm
 
Thanks Batch for the reply, that's a great link and makes lots of sense....much appreciated. Smiley Smiley Smiley
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thierry
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Reply #14 - Aug 21st, 2017 at 3:53am
 
Hey Steady,
Hopefully the beast is leaving you alone and you are enjoying your holiday.
I am on the D3 regimen for the last 4 years and am pain free 99% of the time. The pain I experience during the 1% is nothing like what i used to experience pre-D3.
When you feel the shadows coming on and you think you're getting an attack you could let 50000iu D3 melt in your mouth to quickly bump up your D3 levels.  It works for some of us.
Enjoy the rest of your holiday, i Hope you're getting plenty of natural D3 in the form of nice bright warm sunshine. The weather here on the green isle is desperate ------> no summer here this year, rain rain rain Sad so we'll be heading for 2 weeks in the sun in a couple of weeks Smiley  can't wait.

All the best
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steady16
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Reply #15 - Aug 21st, 2017 at 2:37pm
 
Hi Thierry, Thanks for your reply....im back from my hols now and they seem to have kicked in again...ive been to see the doc today and had a referral to see my neurologist again this Thursday, I'm hoping to get some o2 I will let you know how I get on.  Ive had my 3rd one this afternoon, which is a new one for me I haven't had anymore than 2 in 24 hours ever...so sick of it! just out of interest what do you take in your d3 regime?
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thierry
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Reply #16 - Aug 22nd, 2017 at 5:35am
 
Hi Steady,

I take a multi vitamin for the vit a, zinc and boron. It also contains all the B vitamins that Batch recommends. I buy it online from UK, it's the cheapest way for me. Also Biocare is an excellent brand well known for their quality and the high bio-availability of their products.

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2600iu vit A, 15mg zinc and 1mg boron.

I get the rest from Iherb.com in the US. It is also for me the cheapest way to get the supplements for the regimen.

I take 500mg calcium citrate, 500mg magnesium, 10000iu Vit D3, 1 softgel superK.

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I also take some turmeric powder (anti-inflamatory). i take this not solely for the CH but it is an amazing spice that has a multitude of benefits. I get in in UK too.

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Batch recommends that we do a course of a good probiotic as our immune system centre in in our guts. I do a 1 month course of probiotic every few months. Since i do this, even the occasional shadows have reduced in intensity and quantity. I take this one. It is a very good quality.

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Hope this helps, ask any questions anytime.


All the best
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« Last Edit: Aug 23rd, 2017 at 8:03am by thierry »  
 
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Mike NZ
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Re: Newbie
Reply #17 - Aug 22nd, 2017 at 4:02pm
 
I take mine with my main meal of the day, which is what Batch recommends.
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thierry
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Re: Newbie
Reply #18 - Aug 23rd, 2017 at 8:05am
 
steady, there seems to be some issues with some of the links i posted above. i tried to edit the links on the  post but the [problem seems to be with iherb.


ask questions if you want/need

all the best
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« Last Edit: Aug 23rd, 2017 at 8:16am by thierry »  
 
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steady16
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Reply #19 - Aug 24th, 2017 at 11:59am
 
Thanks Thierry, I will take another look. Ive been to see my neuro today, and told him I was on the D3 regime, he gave me a strange look and said that he doesn't recommend this because its not been put through trials but it was up to me if I wanted to take it  Roll Eyes Anyway ive managed to get him to sort some oxygen out on prescription for me so at least I managed to sort that out...Just felt like it was just all so matter of fact and he just wanted his private medical fee and get me out the door  Angry   glad my medical ins is covering the cost!
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thierry
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Reply #20 - Aug 24th, 2017 at 4:04pm
 
It's great you got the O2, 15 litres per minute minimum works a treat when you start feeling shadows.

Never mind the doc about the D3, IT WORKS.
the magnesium is magnesium citrate, 400mg is good. you'll find it on iherb too, (the link i posted for it doesn't work).

the other link that doesn't work is for Life extension super K. you can put that in the search box on iherb.

All the best
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steady16
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Reply #21 - Aug 24th, 2017 at 6:17pm
 
meant to ask also has anyone heard of pure turmeric curcumin with black pepper extract uk 750mg to be taken with D3 ?? I was reading that it was someone's regime  that worked for them.  sbwire.com was one of the sites it was on, but it wont let me post a link  Undecided
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« Last Edit: Aug 24th, 2017 at 6:23pm by steady16 »  
 
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Peter510
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Reply #22 - Aug 24th, 2017 at 6:21pm
 
Turmeric is an anti-inflammatory. I take it every day as well as the full D3 Regimen.

Doing pretty well on it.

Peter.
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steady16
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Reply #23 - Aug 24th, 2017 at 6:24pm
 
Oh that's good news!! I will give it a try  Smiley What mg do you take a day?
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« Last Edit: Aug 24th, 2017 at 6:31pm by steady16 »  
 
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Peter510
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Reply #24 - Aug 24th, 2017 at 7:51pm
 
I take 2X400 mg capsules when I'm taking all my D3 & cofactors....with my main meal.

Taking them with food helps with absorption.

If you take them on an empty stomach, or with a light meal,  you are more likely to pass a good percentage of the vitamins & nutrients and not get the full benefit.

Regards,

Peter.
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