Ok so i have battled ch for the last 5.5 years but just recently got diagnosed by an e.r. doctor. Im still trying to understand it myself and need help making ppl understand. My family thinks im making it up and just using it as an excuse to do drugs. My coworkers think its something like depression or anxiety. I refuse to let myself get fullblown in front of coworkers and family (1 cause it is scary for them to watch and 2 the added anxiety doesnt do anything good for me) the very veey few that have seen me at a kip6 are now scared of me wont talk to me or even come close to me. How can i help ppl understand this isnt for attention or marijuana and im not making it up. For those that have seen it how do i make them understand im not dying and im not contagious. I have tried the letters and different research but to get someone to actually look at it before they throw it away seems impossible. I just dont want to be a disease and i dont want ppl to see me fullblown. There is very select few that get to see me fullblown but they are my true supporters and they know how to help.

Ive shown many ppl and they cry but dont believe me still. Im to the point of just staying home and not seeing anyone. I need my family to understand and my coworkers. I work in a team orientated place amd need them but they run away

Jatimom wrote on Apr 30^th, 2017 at 11:10am:

Go to the Cluster Headache Specific board, about half way down page 2, and have a look at a thread called 'Dopiest Responses to CH'.

You'll find nine pages of people agreeing with you completely.