Hey Dtruett, CDog,
What were the results of your latest 25(OH)D labs after at least a month taking the anti-inflammatory regimen?
The mean 25(OH)D serum concentration reported by chronic CHers experiencing a favorable response or a complete cessation of CH symptoms to this treatment protocol is 100 ng/mL. If you toss in a 1 sigma (standard deviation) you get a range of 80 to 120 ng/mL.
For reference, I'm a CCHer and I've maintained my serum 25(OH)D at 140 ±50 ng/mL for the last 3 years. My serum calcium stays within its normal reference range and my PTH is always in the lower third of its normal reference range so my PCP just smiles and annotates my medical records... He has a copy of the treatment protocol.
If the week to 10 day course of Benadryl (Diphenhydramine HCL) at 25 mg every four hours throughout the day and 50 mg at bedtime didn't make a dent your CH patterns for the better... have you tried taking the Baking Soda Tonic?
You won't find this in print except here at CH.com in posts I've made, but CH are pH sensitive. For some reason, usually diet, we tend to drive our normal systemic acid-base balance towards more acidic than neutral with a lower pH. This low pH (higher acid) favors CH triggering mechanisms. The solution to this problem is to shift the pH balance higher to a more alkaline condition.
We do this by drinking a simple baking soda tonic every four hours throughout the day and prior to bed. It's important to wait an hour after eating so as not to interfere with the stomach's digestive process. During digestion in the stomach, there's a high acid content for at least an hour after eating to break down the food we've eaten. After that the body neutralizes the stomach contents with big squirts of pancreatic juices high in bicarbonate prior to allowing the contents to pass into the small intestine.
You make a Baking Soda tonic with a teaspoon of good old Arm & Hammer baking soda (sodium bicarbonate) in one cup (8 oz) of cold water. All you need as a half cup of this tonic every four hours. The simple thing to do is mix some up and pour it into plastic water bottles you can take to work so it's always available. Drinking 2.5 liters of water a day is always a good idea for CHers.
You can also add the juice of a half lemon to the one cup mixture above or a teaspoon of raw apple cider vinegar for a change in flavor.
If in doubt, the recipe is on the side of an Arm & Hammer Baking Soda box or you can check out the following link:
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The baking soda tonic can take upwards of a day to take effect. Accordingly if you're in a hurry, like most of us when the CH beast is jumping ugly, you can always take Bismuth Subsalicylate, a.k.a. Pepto-Bismol. A tablet every 4 hours should be sufficient.
If you've tried all of the above, you've been on this regimen for over a month, your serum 25(OH)D is 80 to 100 ng/mL or higher and the CH beast is still jumping ugly, please take the online survey at the following link:
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I need accurate data on the efficacy of the anti-inflammation regimen in preventing CH. I've nothing to gain and too much to lose by using junk science to "Hockey Stick" the efficacy curve. This regimen is already more effective than the published efficacy figures for verapamil by a comfortable margin... and I might add, with none of the verapamil adverse effects. Be sure to comment that you've tried the above in the comments section of this survey.
Thanks, take care and please keep us posted.
V/R, Batch