Moo, (if we can address you as that),

You’re very welcome to CH.com. Lots of friends, support and information here.

Firstly, never apologise for posting here, lengthy or otherwise. We have all been there and understand.

Please read the following link, which is proving to be a significant benefit to 80% of those of us who use it.

Come back with questions if needed. It is certainly worth trying and requires no prescribed medications.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Always here to support.

Peter.

Welcome aboard. Wish you weren't here.

As said above, NEVER apologize for posting here! That's our purpose, though I'll admit to being AWOL too much of late.

You mentioned a trial of sumatriptan along with NSAIDS. From the way you wrote it, I'm guessing it was sumatriptan tablets? If so, they are basically useless for CH. IF you are going to use triptans, you need either injections, nasal, or some have reported help with Maxalt meltables. Personally, I'm not a fan of triptans due to their heart-health issues and the fact they tend to extend cycles and cause rebounds if used frequently. I strongly urge you to get O2 at a minimum of 15 liters/minute, though many of us find 25 lpm or higher to be more effective. You need a proper mask -- a non-rebreather (It's the one with the bag.) Look in the CH.com store for the best possible one to use. It was designed by a clusterhead for clusterheads.

From what you said, it also sounds as if your neuro is not well versed in CH. I strongly urge you to find a neuro who is knowledgeable in CH. I know it is difficult in many areas to do so, but I'd recommend you do a search. It's worth a couple hour drive if you get a good one. You won't be seeing him/her all that often.  Read the info on the "oxygen info" button on the left so you know what you are talking about. I'd even write out the sample prescription and take it with you and have the doctor use it. If your doctor is not willing to go that route, RUN, don't walk out of the office for he's a moron and doesn't know what he's doing. (You don't have to have a neuro write the script. It can be your GP) Once you get a script for O2, even if you get it from a semi-moron who writes it for less than 15 lpm, we can help you get a regulator to boost the flow rate to what you need. The important thing is to get O2.

If you cannot get a doctor to prescribe O2, (yes, there are many who are that incompetent), you can purchase a welding tank and get your own. We'll help you get that sorted.

I'm glad you found us. I so wish you didn't need to. You have found a new family, though. My experience over the last nearly 20 years on this board that some here have become much closer to me than my own kin. We understand. We'll listen if you just need to rant. We'll kick your tush if you get to feeling sorry for yourself, and we'll give you the love and support you need along the way.

jlc

Moo, welcome to CH.com. The posts before me are giving valuable info. As fellow ClusterHeads, they know what is needed.

Can you please, describe one of your headache attacks. Location, how long do they last? Etc.

Here's a link to our clusterquiz to help you with confirming a Cluster Headache diagnosis.

Don