22yearsufferer
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I Love CH.com!
Posts: 11
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I started week 6 on Sunday, March 18th. I have had 53 attacks since February 11th. Some have been slight enough not to make me wanna beat my head off the wall, there have been some that have made me think "yep this is how I'm going out" Monday night was sever, enough so that it made me extremely strong, brave, manly husband cry, begging me to let him take me to the hospital. Three hours of pacing, crying, rocking, pacing, moaning...you know the drill. No sleep at all that night from attack after attack, not large ones, small 10, 15 minute attacks, painful enough to make me walk not lay. I did manage a few hours of broken up sleep before I poured myself into some clothes and went to work, husband begging me to stay home. What's the use? I'm miserable no matter where I am, might as well get paid for being miserable right? I lasted 6 hours at work until I couldn't keep my eyes open. I know you all know what it's like, feeling like a burden, being depressed and miserable in your own body. I had up until Monday night stayed positive, fought depression and tried to find humor in it all, that is no longer possible after that monster of an attack. I have tried the D3 vitamins regiment, I have tried water. I have really good days with one small attack then I have several bad days with several bad attacks. I'm really sick of myself. Thank god I have an understanding boss who read the handout I gave him about clusters. Thank god I have a husband who is amazing and a mom and sister that check on me at least 10 times a day each, yet having those people help me isn't enough during one that makes me think I am dying or a brain tumor. I go Monday to a neurologist. I am not hopeful though, I go in to the appointment with pessimism rather than optimism. When I'm not having an attack I'm thinking about having one, dreading it, wondering will it be at work, will people see me acting like a crazy person, will it be on my hour drive home from work or to work? Will it be in the store? How bad will it be? I have been through a lot in my life, some very tough things, this syndrome, disorder, whatever the hell it is, is about to break me! I am trying so hard not to take this out on the people around me, some days I do ok, some days I do not. I can't even have sympathy for my own kids when they tell me they have a headache (they both suffer from migraines, my son worse than my daughter) I feel awful I can't be sympathetic to them. Ok I'm done being a cry baby, I must work. I'll be back in a few days to follow up my appointment, until I hope you all become pain free!!
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