Hi Anna, your son doesn't need to take the calcium citrate as there is enough in the centrum, but he needs to take an extra 400mg of magnesium citrate/day, which is called for in regiment.

Hoppy

Hi Anna and welcome

Getting the diagnosis was a critical step so that he can now do the right things for his two headache types.

For the Hemicrania Continua, has he been given Indomethacin? This should work well for HC (Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or
nue_June_2015.pdf).


For CH, the latest info can be found here - Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or .

Getting the right amount of Calcium and Magnesium is just a case of looking at what is in the different supplements that he is taking and adding up the applicable amounts.

For his trip to the UK, I'd suggest that he makes sure he has plenty of the medication / supplements he is on with him, plus a bit more in case there are delays in getting back, which is much easier than trying to get additional supplies at the last minute in a different country. Since the D3 and fish oil are often counted as liquids, he should follow the instructions on what quantity he has in his hand baggage compared to in his bag that goes into the hold. Some people can get CH triggered by flying, so he should have CH abortive(s) to hand, like imitrex injections (I've flown hundreds of times with these and have had zero issues with airline security).

No experience of CBD oil, although if the anxiety is related to his headaches the effective treatment should reduce this anxiety and reduce the need for this.

I'm fairly sure that CBD oil may be illegal in the UK, so I'd caution about taking this there too. Best to check before taking this.

You didn't mention him having anything to stop his CH once they start, something like imitrex injections, imitrex nasal spray or oxygen. These can cut a CH down to around 5-10 minutes at the most.

For flying, Batch did an excellent post, #2589, in Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or .

I'd also suggest that whilst his pain is bearable now, that he should have all his CH and HC medication with him in case things change whilst he is away. This is so much easier than trying to arrange stuff if things change.

Whilst the current pain may be bearable, he should keep an eye on it as continuous pain, even though it is bearable, can get to someone over time.

Hope he has a great time away and gets to do all he wants to and more. London is amazing to visit, with so many things to see and do.

Hi Anna,
Sorry to read of your son Miguel suffering with CH's. In a pinch, he could try Red Bull energy drinks or any other energy drink of his choice that contains Taurine and Caffeine, this will help as an abortive for some people and worth a try. The concept is to chug it down as fast as possible at onset of attack.

I've reside in LV long before your son was born and have learned a few things on a local level that may assist him. You could go up to North Las Vegas to Air Gas on Losee Rd and rent or purchase an o2 tank. It is a welders supply version of o2 that is just as effective as hyperventilating medical o2. Just do not let Air Gas know you are using it for medical purposes or they will not rent or sell to you. You can obtain a NON-ReBreather mask from the CH Store - yellow tab left side of your computer screen on this website - and have optimask shipped to your home within a couple days or faster. He can get a high flow regulator for the welders o2 tank at any of the Harbor Freight Tools locations throughout the valley. O2 is the fastest, least expensive, safest abortive and welders o2 is just as safe as medical o2 or else these hotels would all be falling down.

You did not mention who your son's headache specialist is? But as far as i've learned, Las Vegas only has one doc very familiar with treating CH's and that is Dr. Morton Hyson, located near UMC. Might be worth a 2nd opinion.

As for CBD oil, I was curious about this also and last month posted a Poll on this website. Unfortunately not many of us CH'ers have tried this, but the Poll is ongoing for others to contribute.

As for London, there is a OUCH website that provides assistance to those in UK.

Pain Free Wishes to your son. 

-Gregg

For the "diarrhea and upset stomach", I'd check what sort of magnesium he is getting. This is the most likely cause.

But if you've concerns get him to work with a doctor. Whilst it could be something in the D3 regime, it could also be something else too.

Fatigue could come from the CHs, even when they aren't at maximum levels, especially if they are impacting sleep. Plus if his digestive system isn't working well, as per your description, he may not be getting the nutritional value he needs from his food.

What could also help is to follow a good, healthy diet whilst minimizing processed food.

I have a question for Batch and Greg:

Batch- just wondering if my son and I can take CoQ10 instead of regular fish oil? I’ve noticed I don’t get as much migraines when I use CoQ10 instead.

Greg- I just had my son try a 1/4 dropper of CBD oil Lazarus Naturals Tincture 750mg but he said it made him feel tired, anxious, and some pressure in his head so that didn’t work.

Peter,

Any comment, question, reaction will always be very helpful to me and I’m sure to everyone as well. Keep it coming! Pf wishes!

Thanks Batch,

For the last 4 weeks or so all of Northern Europe has had uncharacteristically warm weather with no rain at all. Consequently all plant life has been, in effect, in suspended animation.

That is about to change tonight and I expect a Pollen Bomb over the next few days, so I’m getting prepared to do battle with the Beast.

Benadryl and load dosing in prospect.

Thanks again,

Peter.