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Newbie looking for some support while supporting (Read 79 times)
Billie32
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Newbie looking for some support while supporting
Jul 10th, 2018 at 9:56am
 
Newbie to the site. Supporter/caregiver/wife for my husband who has suffered for going on 30yrs. He is chronic year round, and it's killing me! I've watched him suffer for so long, and can't do a damn thing about it.
Please bare with me as I learn the ropes of msg boards.
My name is Billie, I've watched my husband suffer since the age if 17.† NO DR'S WOULD HELP BECAUSE THEY KNEW NOTHING. Everything we've learned has been on our own, and with the awesome guys @Clusterbusters. He is suffering so bad. Waking up every 20mins with a new demon(that's what we call them). It started in January when he had "that look". It has escalated to the point he went thru over 250 imitrex shots in less than 6 months, arguing with his Demon about staying here with his family, not giving in, or giving up, beating his head on/in anything.
This round he can not be left alone.
I've watched this big healthy man turn into a quivering scared shadow of himself for 30yrs, by myself caring for him because no one really believed him, thot he was faking. So I have absolutely no support from family. Hiding so he doesn't see me cry/beg/plead with any diaty that would listen. I have no one to talk to, my husband is shutting down, I'm fed up with no one understanding, and going crazy thinking I'm the cause of all his problems. I've cried so much with him, and am scared I won't be there to talk the Demon out of taking him away. I'm scared for him this time round.
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Peter510
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Don't give out... But
don't give in.


Posts: 835
Wexford. Ireland
Gender: male
Re: Newbie looking for some support while supporting
Reply #1 - Jul 10th, 2018 at 1:32pm
 
Billie,

That is a very moving post and one that we can all relate to.

Can you tell us a bit more about the history of his treatment. What, if any, preventatives has he tried. What abortive he has, etc.

Where in the world you live....we may be able to steer you in the direction of someone who knows about Clusters.

You are NOT alone and you have come to the right place.

Peter.
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You don't stop laughing because you grow old....You grow old because you stop laughing.
 
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Batch
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Control The Beast With
O2 & D3 You Must


Posts: 3420
Bremerton, WA
Gender: male
Re: Newbie looking for some support while supporting
Reply #2 - Jul 11th, 2018 at 9:04pm
 
Billie,

I'll second Peter's comments.  I've sent you an important PM.† You'll find it in your PM InBox at the top left corner of this screen under the date where is says "Good Morning Billie,
You have 1 new message.
"

Click on the bold print to read this PM.

Take care, hang in there and keep the faith, there's a solution to your husband's cluster headaches that really works.

V/R, Batch
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« Last Edit: Jul 11th, 2018 at 9:11pm by Batch »  

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, thatís as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there
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Mike NZ
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Oxygen rocks! D3 too!


Posts: 3586
Auckland, New Zealand
Gender: male
Re: Newbie looking for some support while supporting
Reply #3 - Jul 12th, 2018 at 4:18am
 
Welcome to where we all know about CH first hand as we either have it or support someone with it.

We know the devil, the demon or CH by any other name all too well. CH is pretty brutal.

We'd love to know more, especially the questions that Peter asked.

Tell us more and we can give you both the benefits of our experiences over many years and many neurologist visits.
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