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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Cafergot

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Cafergot (Read 1486 times)

Graemel

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Taupo NZ
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Cafergot
Nov 19^th, 2018 at 5:38pm

I have suffered from CH for a long time. Doctors have been unable to help much apart from prescribing verapamil and cafergot. Recently I have played around with the medications to try and prevent CH occurring. I am currently using cafergot as a preventative. Half a tab twice daily. Research tells me cafergot should not be used as a preventative but does not say why. I have had good results for a while but recently not working so well. Can anyone comment about this please?

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Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: Cafergot Reply #1 - Nov 19^th, 2018 at 7:07pm Ergots aren't recommended to be used long term because of side effects, one being gangrene. Hoppy
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AussieBrian

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CH - It's all in your
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Cairns, Qld, Australia
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Re: Cafergot
Reply #2 - Nov 19^th, 2018 at 8:28pm

I used Cafergot in various ways, and like to think I got reasonable results from it, but that was until a neuro overdosed me seriously on the stuff. I can't recommend what followed but just be sure to watch for tingling fingers or toes, sprained ankles or any other such weirdness.

Happily we've other treatments around now with excellent results and much lower risks.

All the best always,

Brian.

My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com

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Graemel

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Taupo NZ
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Re: Cafergot
Reply #3 - Nov 20^th, 2018 at 5:28am

Thanks for that Hoppy and Aussie. Yes I have worried about cafergot and vein constriction. Good point. As with you Aussie I have had good results from cafergot over the years but my focus now is on the side effects. I also take verapamil and it has side effects as well. MY CH now spans 29 years. In the past it would go after a while but now it is with me permanent like an old friend. I am in a bad way.

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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Cafergot Reply #4 - Nov 20^th, 2018 at 10:17pm Have you tried D3? It works amazingly well for many of us. The latest version of the recipe can be found at - Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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