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After 26 years, finally (Read 1300 times)
prabuinit
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x0|Madison|USA||0|0|NJ,New_Jersey
Gender: male
After 26 years, finally
Dec 1st, 2019 at 7:11pm
 
I'm originally from India and now settled in US.
I have been having CH since 1993/94 - my high school days.

The pain would precisely start at 9 A.M, coinciding with Math class and would last 1 hour and repeated every day for almost 4 weeks. I initially suspected Math doing something to my head. There would be a gap of 18 months before it struck me again. After high school, when I was in my Engineering college, the pain was so bad that I cried out loud in my hostel room. My ENT specialist (Otolaryngologist) that time, said it was my curved overgrown nose bone that is blocking airways. I was advised to undergo sinus bone correction surgery soon. I was on the operation table when the pain kicked in and my left eye was tearing. Anyways, operation was successful with no real remediation post-surgery. I had to suffer headache with hurting nose from surgery.

Couple of years later, I saw a neurologist that prescribed a medication that moved my starting time of pain from 9 AM to 12 noon. After that cycle, I did not take any medication and I just suffered the pain.

Couple more years later, I landed a job in US and few months into it, my cycle started. I visited doctor in Pittsburgh who prescribed me prednisone/calcium channel blocker and gave me the name "Cluster Headache", until then, I did not know what the heck this was. This was 2006 and at this time, my pain cycle was 2 months long and would last 90 minutes to 2 hours each time and first 2 weeks there would be multiple attacks. The medication did not help.

I had moved to NJ and visited a doctor in Summit, NJ on my next cycle, who prescribed me 'Zomig Nasal Spray 5 mg'. This was my wonder medicine as it aborted the pain in less than 5 minutes. This medication is supposed to be used only 12 times a month. Nevertheless I was able to mange the pain with this medication, & cycle ended short too.

In 2015, I was into juicing diet (Fruits/Green leaves) and daily Yoga practice. I had lost about 25 pounds and surprisingly that year, I skipped the cycle. Absolutely no pain that year.  But after few months, I stopped dieting & Yoga partly because I was lazy and partly because my mom felt I had become very skinny.

My next 2016 cycle came back with vengeance. Totally unbearable. My insurance would not suddenly approve Zomig Nasal Spray citing coverage and Zomig being expensive medicine and asked me to try alternatives. My new doctor tried several other medications & prescribed oxygen tanks, none of them worked.

This year summer 2019, I was visiting family & friends in India and my friend advised, I see Ayurveda doctor. I will be forever grateful to my friend for that. I explained my pain cycle to Ayurveda doctor and he asked me to follow a 3 month course - Aug, Sep, Oct. I was expecting pain cycle to start by Oct end. Tablets 3 times -6AM/12 noon/6PM and a medical paste to be eaten 30 minutes before lunch and dinner. I was asked to walk for 30-45 minutes in the morning and apply a medicated oil for 15 mins and take bath after that.

And by OCT end, cycle started but I did not feel any pain, it was just heavy head in the first week and after that, it was just a feeling of small disturbance at top corner of the eye. Like someone is touching you by their index finger and you feel that always. I'm able to function normally. It's been 5 weeks since cycle started and absolutely no pain and I don't know if I'm still in that 8 weeks episode. Total cost was around Rs. 1000 (~15$), inclusive of medicines and doctor fee (there is no insurance/appointment needed to see a doctor in India) with a positive outcome, compared to co-pays, appointments, pre-clearance for medications etc here.

I honestly believe I found my way: Juicing diet, Daily Yoga, Walk/Run and will follow this 3 month Ayurveda course for my anticipated next cycle (even though Doctor said it is not needed, one 3 month course gives permanent cure).
My wife and my parents feel very much relieved, I could see it on my wife's face and my parent's voice when I talk to them. I really wanted to share my story, so it may benefit someone.
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AussieBrian
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CH - It's all in your
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Posts: 3851
Cairns, Qld, Australia
Gender: male
Re: After 26 years, finally
Reply #1 - Dec 1st, 2019 at 9:18pm
 
I'm always thrilled to hear a CHead is having some success in taming this monster and it's remarkable how many are doing it through diet and/or a vitamin and mineral regime.

Any idea what was in the tablets, paste and medicinal oil Ayurveda doctor gave you?

Many of us would love to know.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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Mike NZ
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Oxygen rocks! D3 too!


Posts: 3785
Auckland, New Zealand
Gender: male
Re: After 26 years, finally
Reply #2 - Dec 2nd, 2019 at 1:07am
 
Exactly what Brian said. It's great that you've found something that works well for you, plus it would be great to know what was making a difference for you as it could help others.

For oxygen, how were you using it? We've a load of info on our oxygen page - Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
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prabuinit
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I love YaBB 1G - SP1!


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x0|Madison|USA||0|0|NJ,New_Jersey
Gender: male
Re: After 26 years, finally
Reply #3 - Dec 2nd, 2019 at 7:49am
 
Here is the web link to the tablet (US Dealer I believe) but message board is preventing me from posting it. Please form the web address by adding  '/' after each of below words.
kottakkal.shop
collections
health-support
products
migrakot-tablet

I was prescribed - 2 tables - 3 times a day - 6 A.M/12 noon/6 P.M.

I'm not able to attach image file either. From the box, I see ingredients as
- Pathya (Terminalia Chebula )
- Aksha (Terminalia bellirica)
- Dhatri (Phyllanthus emblica)
- Bhunimba (Andrographis paniculata )
- Nisa (Curcuma longa)
- Nimba (Azadirachta indica)
- Amrita (Tinospora Cordifolia )

All are of equal weights (0.537 g)

Thanks.
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AussieBrian
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CH - It's all in your
head!


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Cairns, Qld, Australia
Gender: male
Re: After 26 years, finally
Reply #4 - Dec 2nd, 2019 at 8:57pm
 
Thanks, mate. That'll give us something to play with.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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