Below are the guestbook entries from January-December 2005. Thank you for your continued active involvement in this site and keep those guestbook entries coming!
Click Here to go back to the Main GuestbookWednesday, December 28, 2005 at 18:14:31 (EST) Wednesday, December 28, 2005 at 07:06:35 (EST) Wednesday, December 28, 2005 at 04:20:12 (EST) Tuesday, December 27, 2005 at 14:05:29 (EST) Monday, December 26, 2005 at 15:50:10 (EST) Monday, December 26, 2005 at 10:08:37 (EST) Thursday, December 22, 2005 at 21:44:48 (EST) Wednesday, December 21, 2005 at 15:29:04 (EST) Wednesday, December 21, 2005 at 15:27:33 (EST) Wednesday, December 21, 2005 at 15:26:43 (EST) Tuesday, December 20, 2005 at 02:49:57 (EST) Monday, December 19, 2005 at 10:52:09 (EST) Sunday, December 18, 2005 at 05:26:28 (EST) Saturday, December 17, 2005 at 18:08:13 (EST) Friday, December 16, 2005 at 17:51:37 (EST) Friday, December 16, 2005 at 10:06:26 (EST) Thursday, December 15, 2005 at 21:09:17 (EST) Wednesday, December 14, 2005 at 15:49:04 (EST) Wednesday, December 14, 2005 at 13:04:28 (EST) Tuesday, December 13, 2005 at 13:25:59 (EST) Tuesday, December 13, 2005 at 07:57:00 (EST) Tuesday, December 13, 2005 at 00:34:33 (EST) Monday, December 12, 2005 at 15:33:38 (EST) Sunday, December 11, 2005 at 17:36:59 (EST) Sunday, December 11, 2005 at 12:53:13 (EST) Wednesday, December 07, 2005 at 05:37:10 (EST) Monday, December 05, 2005 at 10:30:39 (EST) Friday, December 02, 2005 at 03:02:28 (EST) Thursday, December 01, 2005 at 08:27:40 (EST) Thursday, December 01, 2005 at 01:05:59 (EST) Wednesday, November 30, 2005 at 15:46:29 (EST) Wednesday, November 30, 2005 at 11:45:40 (EST) Wednesday, November 30, 2005 at 02:05:42 (EST) Tuesday, November 29, 2005 at 22:41:24 (EST) Tuesday, November 29, 2005 at 03:11:39 (EST) Sunday, November 27, 2005 at 23:13:03 (EST) Sunday, November 27, 2005 at 19:24:35 (EST) Friday, November 25, 2005 at 23:02:24 (EST) Thursday, November 24, 2005 at 19:46:36 (EST) Monday, November 21, 2005 at 09:43:28 (EST) Saturday, November 19, 2005 at 13:04:55 (EST) Friday, November 18, 2005 at 19:33:53 (EST) Friday, November 18, 2005 at 15:42:29 (EST) Thursday, November 17, 2005 at 21:07:07 (EST) Thursday, November 17, 2005 at 07:29:21 (EST) Wednesday, November 16, 2005 at 09:16:55 (EST) Tuesday, November 15, 2005 at 19:43:06 (EST) Monday, November 14, 2005 at 18:07:26 (EST) Monday, November 14, 2005 at 01:15:51 (EST) Sunday, November 13, 2005 at 18:33:36 (EST) Sunday, November 13, 2005 at 09:43:44 (EST) Saturday, November 12, 2005 at 11:40:18 (EST) Saturday, November 12, 2005 at 00:53:52 (EST) Thursday, November 10, 2005 at 16:14:09 (EST) Thursday, November 10, 2005 at 02:54:02 (EST) Thursday, November 10, 2005 at 02:52:35 (EST) Wednesday, November 09, 2005 at 09:00:39 (EST) Wednesday, November 09, 2005 at 06:46:47 (EST) Tuesday, November 08, 2005 at 21:07:08 (EST) Monday, November 07, 2005 at 22:53:50 (EST) Monday, November 07, 2005 at 16:22:22 (EST) Saturday, November 05, 2005 at 20:01:34 (EST) Saturday, November 05, 2005 at 07:05:22 (EST) Friday, November 04, 2005 at 07:14:38 (EST) Wednesday, November 02, 2005 at 15:43:10 (EST) Wednesday, November 02, 2005 at 00:09:47 (EST) Tuesday, November 01, 2005 at 20:21:22 (EST) Tuesday, November 01, 2005 at 20:16:11 (EST) Tuesday, November 01, 2005 at 19:36:42 (EST) Tuesday, November 01, 2005 at 04:17:59 (EST) Monday, October 31, 2005 at 14:54:08 (EST) Saturday, October 29, 2005 at 22:55:23 (EST) Saturday, October 29, 2005 at 14:54:29 (EST) Saturday, October 29, 2005 at 07:48:13 (EST) Thursday, October 27, 2005 at 17:24:44 (EST) Thursday, October 27, 2005 at 10:16:05 (EST) Thursday, October 27, 2005 at 01:54:00 (EST) Wednesday, October 26, 2005 at 17:54:57 (EST) Sunday, October 23, 2005 at 11:39:15 (EST) Sunday, October 23, 2005 at 10:26:03 (EST) Saturday, October 22, 2005 at 11:11:52 (EST) Saturday, October 22, 2005 at 03:04:21 (EST) Friday, October 21, 2005 at 22:06:48 (EST) Friday, October 21, 2005 at 05:32:03 (EST) Thursday, October 20, 2005 at 14:33:47 (EST) Thursday, October 20, 2005 at 02:01:20 (EST) Wednesday, October 19, 2005 at 18:13:05 (EST) Wednesday, October 19, 2005 at 00:13:54 (EST) Tuesday, October 18, 2005 at 22:22:06 (EST) Monday, October 17, 2005 at 22:15:41 (EST) Monday, October 17, 2005 at 21:15:12 (EST) Monday, October 17, 2005 at 12:55:51 (EST) Monday, October 17, 2005 at 02:12:59 (EST) Sunday, October 16, 2005 at 10:45:20 (EST) Saturday, October 15, 2005 at 12:05:48 (EST) Friday, October 14, 2005 at 17:16:21 (EST) Friday, October 14, 2005 at 07:44:34 (EST) Thursday, October 13, 2005 at 01:01:41 (EST) Wednesday, October 12, 2005 at 10:12:51 (EST) Wednesday, October 12, 2005 at 07:20:58 (EST) Tuesday, October 11, 2005 at 15:17:10 (EST) Monday, October 10, 2005 at 21:33:37 (EST) Monday, October 10, 2005 at 20:55:43 (EST) Sunday, October 09, 2005 at 08:10:10 (EST) Saturday, October 08, 2005 at 13:47:57 (EST) Friday, October 07, 2005 at 20:34:51 (EST) Friday, October 07, 2005 at 18:20:43 (EST) Thursday, October 06, 2005 at 22:11:50 (EST) Wednesday, October 05, 2005 at 11:19:01 (EST) Monday, October 03, 2005 at 02:06:29 (EST) Saturday, October 01, 2005 at 17:17:58 (EST) Saturday, October 01, 2005 at 09:13:50 (EST) Saturday, October 01, 2005 at 00:13:36 (EST) Friday, September 30, 2005 at 07:29:28 (EST) Monday, September 26, 2005 at 23:35:24 (EST) Friday, September 23, 2005 at 01:28:17 (EST) Thursday, September 22, 2005 at 10:54:17 (EST) Thursday, September 22, 2005 at 09:33:03 (EST) Tuesday, September 20, 2005 at 12:51:38 (EST) Saturday, September 17, 2005 at 10:43:42 (EST) Friday, September 16, 2005 at 23:17:27 (EST) Friday, September 16, 2005 at 12:22:58 (EST) Friday, September 16, 2005 at 09:25:48 (EST) Thursday, September 15, 2005 at 10:20:57 (EST) Wednesday, September 14, 2005 at 06:20:30 (EST) Monday, September 12, 2005 at 10:22:16 (EST) Sunday, September 11, 2005 at 03:00:33 (EST) Friday, September 09, 2005 at 14:44:16 (EST) Friday, September 09, 2005 at 13:26:33 (EST) Friday, September 09, 2005 at 09:22:04 (EST) Friday, September 09, 2005 at 08:18:09 (EST) Friday, September 09, 2005 at 02:53:29 (EST) Friday, September 09, 2005 at 02:53:17 (EST) Wednesday, September 07, 2005 at 05:03:25 (EST) Monday, September 05, 2005 at 21:02:06 (EST) Saturday, September 03, 2005 at 04:09:31 (EST) Thursday, September 01, 2005 at 04:39:45 (EST) Wednesday, August 31, 2005 at 19:20:04 (EST) Thursday, August 25, 2005 at 07:01:16 (EST) Tuesday, August 23, 2005 at 20:10:34 (EST) Monday, August 22, 2005 at 01:14:38 (EST) Sunday, August 21, 2005 at 17:57:01 (EST) Sunday, August 21, 2005 at 08:13:41 (EST) Sunday, August 21, 2005 at 07:33:23 (EST) Friday, August 19, 2005 at 07:47:13 (EST) Thursday, August 18, 2005 at 20:29:11 (EST) Saturday, August 13, 2005 at 12:27:23 (EST) Wednesday, August 10, 2005 at 20:05:36 (EST) Tuesday, August 09, 2005 at 09:45:22 (EST) Sunday, August 07, 2005 at 23:21:47 (EST) Sunday, August 07, 2005 at 06:24:23 (EST) Saturday, August 06, 2005 at 12:13:08 (EST) Saturday, August 06, 2005 at 04:17:55 (EST) Wednesday, August 03, 2005 at 15:24:50 (EST) Wednesday, August 03, 2005 at 00:02:23 (EST) Tuesday, August 02, 2005 at 04:14:41 (EST) Sunday, July 31, 2005 at 18:23:04 (EST) Sunday, July 31, 2005 at 04:51:59 (EST) Saturday, July 30, 2005 at 22:54:26 (EST) Thursday, July 28, 2005 at 17:20:18 (EDT) Thursday, July 28, 2005 at 05:52:57 (EDT) Tuesday, July 26, 2005 at 10:34:43 (EDT) Tuesday, July 26, 2005 at 08:49:22 (EDT) Saturday, July 23, 2005 at 02:20:43 (EDT) Saturday, July 23, 2005 at 00:06:42 (EDT) Friday, July 22, 2005 at 10:07:25 (EDT) Thursday, July 21, 2005 at 19:58:08 (EDT) Thursday, July 21, 2005 at 16:57:38 (EDT) Thursday, July 21, 2005 at 01:00:18 (EDT) Wednesday, July 20, 2005 at 20:55:41 (EDT) Wednesday, July 20, 2005 at 01:19:11 (EDT) Tuesday, July 19, 2005 at 10:51:41 (EDT) Tuesday, July 19, 2005 at 06:49:50 (EDT) Tuesday, July 19, 2005 at 06:12:06 (EDT) Monday, July 18, 2005 at 23:14:24 (EDT) Sunday, July 17, 2005 at 15:33:07 (EDT) Sunday, July 17, 2005 at 10:44:13 (EDT) Saturday, July 16, 2005 at 23:22:37 (EDT) Saturday, July 16, 2005 at 17:00:43 (EDT) Saturday, July 16, 2005 at 15:39:20 (EDT) Friday, July 15, 2005 at 15:57:55 (EDT) Friday, July 15, 2005 at 03:07:11 (EDT) Wednesday, July 13, 2005 at 19:58:00 (EDT) Tuesday, July 12, 2005 at 01:03:36 (EDT) Monday, July 11, 2005 at 18:57:42 (EDT) Friday, July 08, 2005 at 22:33:35 (EDT) Thursday, July 07, 2005 at 22:08:01 (EDT) Thursday, July 07, 2005 at 19:16:02 (EDT) Thursday, July 07, 2005 at 00:46:55 (EDT) Wednesday, July 06, 2005 at 12:42:35 (EDT) Wednesday, July 06, 2005 at 01:27:17 (EDT) Tuesday, July 05, 2005 at 21:48:46 (EDT) Tuesday, July 05, 2005 at 19:26:39 (EDT) Tuesday, July 05, 2005 at 07:55:16 (EDT) Tuesday, July 05, 2005 at 04:56:41 (EDT) Tuesday, July 05, 2005 at 00:18:38 (EDT) Monday, July 04, 2005 at 14:40:17 (EDT) Monday, July 04, 2005 at 11:41:32 (EDT) Sunday, July 03, 2005 at 00:49:59 (EDT) Sunday, July 03, 2005 at 00:26:19 (EDT) Thursday, June 30, 2005 at 20:03:26 (EDT) Thursday, June 30, 2005 at 11:42:44 (EDT) Wednesday, June 29, 2005 at 23:18:45 (EDT) Wednesday, June 29, 2005 at 20:52:10 (EDT) Wednesday, June 29, 2005 at 12:32:41 (EDT) Wednesday, June 29, 2005 at 02:47:40 (EDT) Tuesday, June 28, 2005 at 20:59:11 (EDT) Monday, June 27, 2005 at 10:15:40 (EDT) Monday, June 27, 2005 at 08:30:24 (EDT) Sunday, June 26, 2005 at 03:02:13 (EDT) Saturday, June 25, 2005 at 01:38:32 (EDT) Wednesday, June 22, 2005 at 14:05:28 (EDT) Wednesday, June 22, 2005 at 03:50:43 (EDT) Tuesday, June 21, 2005 at 20:10:26 (EDT) Tuesday, June 21, 2005 at 07:58:47 (EDT) Sunday, June 19, 2005 at 21:45:18 (EDT) Sunday, June 19, 2005 at 16:44:13 (EDT) Saturday, June 18, 2005 at 10:32:04 (EDT) Friday, June 17, 2005 at 12:32:43 (EDT) Friday, June 17, 2005 at 11:09:33 (EDT) Thursday, June 16, 2005 at 19:53:44 (EDT) Thursday, June 16, 2005 at 18:52:16 (EDT) Thursday, June 16, 2005 at 15:05:54 (EDT) Thursday, June 16, 2005 at 00:04:20 (EDT) Tuesday, June 14, 2005 at 20:54:24 (EDT) Tuesday, June 14, 2005 at 12:24:17 (EDT) Tuesday, June 14, 2005 at 06:03:45 (EDT) Monday, June 13, 2005 at 18:06:18 (EDT) Friday, June 10, 2005 at 18:09:52 (EDT) Thursday, June 09, 2005 at 00:00:53 (EDT) Wednesday, June 08, 2005 at 08:20:18 (EDT) Tuesday, June 07, 2005 at 22:24:16 (EDT) Tuesday, June 07, 2005 at 18:02:32 (EDT) Tuesday, June 07, 2005 at 12:39:21 (EDT) Monday, June 06, 2005 at 17:43:30 (EDT) Sunday, June 05, 2005 at 12:03:44 (EDT) Saturday, June 04, 2005 at 19:00:05 (EDT) Friday, June 03, 2005 at 00:14:52 (EDT) Thursday, June 02, 2005 at 22:53:13 (EDT) Thursday, June 02, 2005 at 21:14:40 (EDT) Thursday, June 02, 2005 at 15:12:24 (EDT) Wednesday, June 01, 2005 at 17:23:52 (EDT) Monday, May 30, 2005 at 12:19:13 (EDT) Sunday, May 29, 2005 at 22:26:09 (EDT) Sunday, May 29, 2005 at 08:33:16 (EDT) Sunday, May 29, 2005 at 01:15:48 (EDT) Saturday, May 28, 2005 at 09:43:20 (EDT) Thursday, May 26, 2005 at 03:55:25 (EDT) Thursday, May 26, 2005 at 01:21:33 (EDT) Wednesday, May 25, 2005 at 15:56:49 (EDT) Wednesday, May 25, 2005 at 08:20:58 (EDT) Tuesday, May 24, 2005 at 09:49:47 (EDT) Monday, May 23, 2005 at 16:35:05 (EDT) Monday, May 23, 2005 at 14:30:55 (EDT) Sunday, May 22, 2005 at 19:30:32 (EDT) Saturday, May 21, 2005 at 10:30:10 (EDT) Wednesday, May 18, 2005 at 23:02:38 (EDT) Tuesday, May 17, 2005 at 13:08:17 (EDT) Tuesday, May 17, 2005 at 10:21:47 (EDT) Monday, May 16, 2005 at 23:58:56 (EDT) Monday, May 16, 2005 at 21:39:43 (EDT) Monday, May 16, 2005 at 12:53:49 (EDT) Monday, May 16, 2005 at 07:50:05 (EDT) Monday, May 16, 2005 at 07:27:12 (EDT) Sunday, May 15, 2005 at 15:50:17 (EDT) Thursday, May 12, 2005 at 20:38:28 (EDT) Thursday, May 12, 2005 at 13:41:28 (EDT) Wednesday, May 11, 2005 at 11:56:18 (EDT) Wednesday, May 11, 2005 at 10:34:21 (EDT) Tuesday, May 10, 2005 at 20:10:58 (EDT) Tuesday, May 10, 2005 at 05:27:01 (EDT) Friday, May 06, 2005 at 17:57:20 (EDT) Thursday, May 05, 2005 at 17:42:48 (EDT) Thursday, May 05, 2005 at 17:27:03 (EDT) Wednesday, May 04, 2005 at 23:47:04 (EDT) Wednesday, May 04, 2005 at 01:28:50 (EDT) Tuesday, May 03, 2005 at 18:48:13 (EDT) Tuesday, May 03, 2005 at 02:20:14 (EDT) Monday, May 02, 2005 at 17:35:36 (EDT) Monday, May 02, 2005 at 12:19:35 (EDT) Monday, May 02, 2005 at 08:28:08 (EDT) Saturday, April 30, 2005 at 00:13:54 (EDT) Friday, April 29, 2005 at 21:12:35 (EDT) Friday, April 29, 2005 at 14:33:41 (EDT) Thursday, April 28, 2005 at 13:18:33 (EDT) Thursday, April 28, 2005 at 05:19:52 (EDT) Wednesday, April 27, 2005 at 17:05:54 (EDT) Wednesday, April 27, 2005 at 11:39:31 (EDT) Wednesday, April 27, 2005 at 10:39:45 (EDT) Tuesday, April 26, 2005 at 22:28:22 (EDT) Tuesday, April 26, 2005 at 17:47:41 (EDT) Monday, April 25, 2005 at 22:53:59 (EDT) Monday, April 25, 2005 at 20:07:34 (EDT) Monday, April 25, 2005 at 08:33:08 (EDT) Friday, April 22, 2005 at 19:35:12 (EDT) Thursday, April 21, 2005 at 10:35:14 (EDT) Tuesday, April 19, 2005 at 18:44:05 (EDT) Tuesday, April 19, 2005 at 13:55:27 (EDT) Monday, April 18, 2005 at 22:16:16 (EDT) Monday, April 18, 2005 at 00:20:43 (EDT) Sunday, April 17, 2005 at 22:39:04 (EDT) Sunday, April 17, 2005 at 22:34:38 (EDT) Sunday, April 17, 2005 at 19:50:40 (EDT) Friday, April 15, 2005 at 04:31:32 (EDT) Thursday, April 14, 2005 at 18:38:36 (EDT) Wednesday, April 13, 2005 at 19:12:14 (EDT) Monday, April 11, 2005 at 17:32:07 (EDT) Saturday, April 09, 2005 at 22:10:56 (EDT) Saturday, April 09, 2005 at 09:56:28 (EDT) Saturday, April 09, 2005 at 09:27:15 (EDT) Thursday, April 07, 2005 at 04:13:46 (EDT) Thursday, April 07, 2005 at 00:45:48 (EDT) Wednesday, April 06, 2005 at 23:51:59 (EDT) Wednesday, April 06, 2005 at 14:24:22 (EDT) Wednesday, April 06, 2005 at 06:02:19 (EDT) Tuesday, April 05, 2005 at 19:14:26 (EDT) Tuesday, April 05, 2005 at 16:32:07 (EDT) Tuesday, April 05, 2005 at 14:14:58 (EDT) Monday, April 04, 2005 at 16:49:51 (EDT) Thursday, March 31, 2005 at 04:09:54 (EST) Tuesday, March 29, 2005 at 22:53:30 (EST) Tuesday, March 29, 2005 at 22:46:51 (EST) Tuesday, March 29, 2005 at 21:05:04 (EST) Tuesday, March 29, 2005 at 14:18:34 (EST) Monday, March 28, 2005 at 10:37:24 (EST) Monday, March 28, 2005 at 05:30:25 (EST) Sunday, March 27, 2005 at 22:41:14 (EST) Sunday, March 27, 2005 at 13:46:37 (EST) Saturday, March 26, 2005 at 16:24:52 (EST) Friday, March 25, 2005 at 08:32:01 (EST) Wednesday, March 23, 2005 at 16:28:07 (EST) Wednesday, March 23, 2005 at 15:30:07 (EST) Wednesday, March 23, 2005 at 11:47:33 (EST) Tuesday, March 22, 2005 at 20:03:29 (EST) Monday, March 21, 2005 at 05:18:37 (EST) Sunday, March 20, 2005 at 23:30:47 (EST) Sunday, March 20, 2005 at 18:55:54 (EST) Friday, March 18, 2005 at 22:21:18 (EST) Friday, March 18, 2005 at 16:01:16 (EST) Thursday, March 17, 2005 at 19:18:23 (EST) Thursday, March 17, 2005 at 09:34:47 (EST) Tuesday, March 15, 2005 at 22:01:51 (EST) Tuesday, March 15, 2005 at 07:04:29 (EST) Sunday, March 13, 2005 at 22:47:59 (EST) Sunday, March 13, 2005 at 04:24:16 (EST) Sunday, March 13, 2005 at 00:45:06 (EST) Saturday, March 12, 2005 at 20:50:44 (EST) Saturday, March 12, 2005 at 01:53:59 (EST) Thursday, March 10, 2005 at 23:29:26 (EST) Thursday, March 10, 2005 at 14:20:38 (EST) Wednesday, March 09, 2005 at 07:37:31 (EST) Tuesday, March 08, 2005 at 22:45:28 (EST) Tuesday, March 08, 2005 at 21:21:44 (EST) Tuesday, March 08, 2005 at 01:34:17 (EST) Sunday, March 06, 2005 at 21:51:18 (EST) Saturday, March 05, 2005 at 12:46:52 (EST) Thursday, March 03, 2005 at 18:55:20 (EST) Thursday, March 03, 2005 at 01:27:16 (EST) Wednesday, March 02, 2005 at 16:13:39 (EST) Monday, February 28, 2005 at 12:20:16 (EST) Friday, February 25, 2005 at 17:09:56 (EST) Friday, February 25, 2005 at 08:42:42 (EST) Thursday, February 24, 2005 at 18:24:46 (EST) Thursday, February 24, 2005 at 14:32:53 (EST) Thursday, February 24, 2005 at 01:31:25 (EST) Wednesday, February 23, 2005 at 14:27:48 (EST) Tuesday, February 22, 2005 at 17:58:12 (EST) Tuesday, February 22, 2005 at 00:29:49 (EST) Monday, February 21, 2005 at 18:37:19 (EST) Sunday, February 20, 2005 at 21:05:29 (EST) Sunday, February 20, 2005 at 12:20:34 (EST) Sunday, February 20, 2005 at 09:02:46 (EST) Saturday, February 19, 2005 at 23:38:35 (EST) Saturday, February 19, 2005 at 11:30:53 (EST) Friday, February 18, 2005 at 19:59:43 (EST) Friday, February 18, 2005 at 19:53:29 (EST) Friday, February 18, 2005 at 18:30:24 (EST) Friday, February 18, 2005 at 11:33:34 (EST) Thursday, February 17, 2005 at 18:19:37 (EST) Wednesday, February 16, 2005 at 23:57:53 (EST) Wednesday, February 16, 2005 at 11:24:22 (EST) Tuesday, February 15, 2005 at 22:43:34 (EST) Sunday, February 13, 2005 at 21:15:22 (EST) Sunday, February 13, 2005 at 16:35:15 (EST) Hello fellow CH suffers. Please excuse my spelling. I'm horrible at it and this thing doesn't have a spell check. I'm a white male, 48 years old and have been suffering from CHs for over 13 years. My story is much the same as yours. I've flopped around on the floor like a fish out of water, slamming my head on the floor, kitchen cabnets, what ever was close by. It was several years before I was prescribed O2 by my (at the time) Kaiser neurologist. It worked/works on only 10 -20% of Clusters and only if I catch them early enough. Back then, when O2 didn't work and the Cluster escalated, I would either have to ride it out or on very rare occasions would go to the emergency room (hoping) for some kind of pain injection. I was always treated like a durg addict putting on an act to get a "fix". And this was from my HMO that has my medical records. A couple of years later under the care of a new neurologist, I was prescribed the class 2 controled substance, Dilaudid in the 4mg pill. If my cluster escalated past what O2 would treat and/or I was sucking up that oxygen for more than 10-15 minutes without relief, I then went to the Dilaudid. It works on an additional 20-30% of my Clusters. If they escalated beyond that, I just had to ride it out. Most of the time,in the mild to medium Clusters, the Dilaudid works well when the O2 fails. Sometimes the Dilaudid doesn't completely knock out the medimum level Cluste but numbs enough that it's much easier to ride out. On Jan. 13th, '98 I had a tripple bypass. At 41 years old. How about that! After the surgery and because my heart arteries had been rebuilt, my doctor allowed me to have this fairly new med, Imitrex Statdost injections. That worked like a charm! Wonderful to have but can you imagine those suffers who have no insurance and must pay $45 per shot for that stuff. Sometimes I/we need 3 shots a day. For me, the Imitrex will sometimes leave behind what I call the "bruise". This happens only in the monster, grand mal Clusters. It's no fun but a hell of a lot better than riding out a monster without benefit of the Imitrex. The Dilaudid will sweep away the "bruise" left over from a Monster knocked down by Imitrex. Now that I have these 3 lines of defense, my cycles, which usually last 1-3 months are somewhat manageable. I'm horrified at the prospect of loosing my job and thereby, my medical insurance. What's almost as bad is the attitude from the HMO. It's not happy about dispencing as much as 30 Imitrex injections a month at $45 list price. Additionally, given the current socio-political climate, they're getting very stingy with narcotics. The pills work well on about 30% of my Clusters. But if I don't have them, I must go straight from O2 to injections. Yes, Dilaudid is very physically addictive after 2 to 3 weeks of daly use. But the 3 to 4 days it takes to detox when the cycle ends is well worth the benefits. I've tried every blocking med under the sun and none of them work. What did seem to make most of the Clusters in any given cycle milder (and what wasn't listed on the survey) is Lamictal 100mg pills at between 200 & 400mgs per day. It also changed the charecteristics of the the cycles which use to last 1 to 2 months on, one month off, to 2 to 3 months months on, 2 to 5 weeks off. I credit the Lamictal with lessening the amount of the monster Clusters during any given cycle, so again, it's worth the longer cycles and less time off. My doctor tells me that as I move beyone 50 years of age, the Clusters and their severity should start to diminish. I can only hope that's true. Before I began to suffer from these things, I had a very high threshold for pain. Now, I'm a whimp who will do almost anything to avoid it in any form...Thank you for allowing me to share my experience with Cluster Headaches and best of luck to all who suffer.
Neil Brunnenkant <email@example.com>
Los Angeles, CA USA
Saturday, February 12, 2005 at 21:31:18 (EST)
Well, I wrote here a few days ago, I was away on business and supposed to be there for at least another week, but now I am home. I had to come home because I couldn't perform my job...I have been getting CH everyday, right when I am supposed to be out meeting with clients. How am I to trust that I won't be in with a client and get that dreaded sensation? I had to pull over at a rest stop on the way to the city I was working in because I got one...I think I may have scared a few people there. My onlt saving grace here is that like a lot of you out there, I have one person that truly understands my pain, she like me hopes that everyday is the last of this cycle, until next year. This site has become a great comfort to me as I was stuck in my hotel for a week, scared to venture out more than a few minutes away. Everyday in the afternoon, and every night around midnight. My regular meds are not working...it's 2:30pm and the CH has not come yet, and am hopefull that it's all over. Everyone that is going through thier cycle, find comfort in the fact that it will pass, and life will go on. My thoughts and prayers are with all of you, as I know yours are with me. God Bless...
I am the wife of a sufferer. These terrible things started about two years ago.They just recently told us they were clusters. I wish there were more the doctors could do for him! Its so hard to believe that with all the medications and technology now that theres no more he can do.It hurts me so much to see the man I love hurt so much and not be able to do nothing but sit there and watch him. I feel so helpless! I pray every second of the headache that God take away if not all then some of the pain. I would even take half of the pain if I could. I hate it. we are into the fourth week or so . I hope to God it ends soon. Such a good man doesnt deserve this. Im sure most wifes or husbands for that matter feel the same.
Hi everyone I wrote in yesterday but I started to get another attack so I didnt get to say what I needed to. I have suffered this pain for over 20 years i was only diagnosed 5 years ago seens then I have tried oxygen, verapimil, steroids, imitrex and the list goes on and on. I am currently working in Angola on a diamond mine and suffering BIG TIME it wont be long before I lose this job but it wont be the first nor the last as if you not a sufferer nor live with one you will not understand most people think I'm just looking for a way to excape work I wish they would see me in my room at 2 a.m. The questions I have is I find that by excerting pressure with my hand and fingers to the swollen vein gives me some sort of relieve but is this in any way dangerous as at times It feels as if Im going to damage something. I would also like to hear from any person who has been cured from this dreadful pain the only thing I have not tried is acupuncture but will be giving it a try once I go on leave its my last hope as I have spent most of my money looking for a cure. Please write to me if you have any advice as I am in desperate need of help cheers for now
I have been suffering with cluster headaches for almost three years. I have been to doctors and haven't had much success. I have tried medications and the sideeffects were too much. I believe magnesium supplements, lots of water, and dietary changes have helped. I am interested in hearing about other remedies. thanks. I would like to add that these headaches have really screwed up my life.
My name is Christine i have suffered clusters for a number of years, but only in the last 18 months have clusters become chronic. It is well over 12 months since i have had a single night free of cluster headaches. i also suffer from severe migraines, i am looking for any one who is in a similiar position or even any one with ideas support etc.
It seems to be a very lonely world, when you suffer from clusters does any one else feel the same. Would love to hear from any other sufferers.
Hi, I'm trying to reach Carol in Georgetown, Ontario Canada. For some reason I am not able to e-mail you back through yahoo. My brother is more than happy to talk to you, perharps you can try e-mailing me back with your number. only a thought. I've been trying like crazy but it's not responding. Hopefully you will see this message.
HI I AM SO GLAD I FOUND THIS SITE I HAVE SUFFERED SINCE THE AGE OF 11 IM NOW 37 I WORK IN THE MINING TRADE AS A METALLURGIST I HAVE LOST MANY GOOD JOBS BEFORE I HAVE TRIED ALMOST EVERYTHING I COULD GET MY HANDS ON NOTHING SEEMS TO HELP ME THE ONLY REASON IM STILL ALIVE IS MY PREGNANT WIFE AND MY 5 YEAR OLD DAUGHTER WHICH HAS GIVEN ME THE SUPPORT I NEEDED THROUGH THE SUFFERING TIMES NOBODY AT MY WORK SEEMS TO UNDERSTAND. I WAS ONLY DIAGNOSED 5 YEARS AGO AS ALL THE DOCTERS I WENT TO HAD NO IDEA WHAT I WAS SUFFERING AND THEY KEPT FEEDING ME PAIN KILLERS WELL I CONTINUE TO PRAY THAT ONE DAY THERE WILL BE A CURE IN THE MEAN TIME I JUST WANT TO GET THROUGH THE NEXT ATTACK. IM GLAD I HAVE FOUND THIS SITE AS I THOUGHT I WAS ALONE BUT I WOULD NOT WISH THIS PAIN APON MY WORST ENEMY IF THERE IS ANY ONE OUT THERE THAT COULD GIVE ME ADVICE I WOULD LOVE TO HEAR FROM YOU CHEERS FOR NOW DERRICK AT firstname.lastname@example.org
Hello all, I have had cluster headaches for almost 4 years now. I thought I was lucky this year, my normal month is August, which came and went...I was very happy. Until this month hit...I have already had 4 headaches in the last 24 hours, I have a new doctor which I don't think understands the severity of the pain that I feel, I am out of town on business for the next two weeks, how am I supposed to work like this? I try to explain to people who what to know what is the matter with me, and everyone always says "I understand, I get migrains" I have never had a migrain, but I have to believe these are worse, aren't they? How do you explain to your boss that I need to go to my room for and hour and a half, when your supposed to be working? What do you tell your work mates, when they think it's just an excuse? It's not...it seems this time is worst that the times before...I am getting panic attacks during my episodes now, I feel like I can't breath, I thrash around, lay down, get back up, pace around, put cold water on my face, load up on pills, only to end it all exhausted and unable to keep my eyes open.
I am on 180mg of Verapimil two times a day, and 5mg of Zomig when I get the headache...I am wondering about Imitrex injections, but am afraid of "rebound" headaches...can anyone let me know thier experience...maybe you were in my shoes once, does the injection work...Thanks.
After a three year span of nothing, the devil is back. I thought I had beat him down and he was gone forever. My saving grace is my beautiful and supportive wife, Stacy and my three beautiful daughters, Kaura (16), Mylisha (13) and Jordan (8). Without their support and absolute love for me I know I would have been sent to the grave already. Thanks ladies! Daddy is still Daddy and will always love you.
Thanks also to all of you out there that "really" know the devil as well. We will ultimately prevail in our pursuit of destroying him someday. Till then, stay strong and fight the devil back!
Hi i am 17 yrs old and i have been suffring for 6 yrs now
and i have tryed evrything. The doctors don't have a clue how to help me! and my boss dose not under stand, she has no clue what i am goin through! MY LIFE SUCKS!!!!!
Now iam 32years og age and it started at the age of 18 . for almost 10 years i was told by doctors that its migrene, through this website i came to know i have cluster . No doctor can traet this pain here in pakistan. and i have stopped all type of medicines now .and hope someday it will automatically go offffffffffff.
I have been suffering from clusters for over five years now. I have cronic clusters and have been taken out of work by my Doctor. I have been on so many drugs that I do not have any Idea what each one is doing for me or to me at this point. I am seeing two differant headache specialists at Spalding and at Mass General. My primary care doctor was very good about getting me into this clinic. This is the best site I have seen. Very informative. The newest drug they are going to put me on is topomax. This is after they almost killed me with Lithium. I would not recomend Lithium to my worst enemy. There are way too many side effects for the little bit of good that came out of trying it. I hope to hear from others and maby get some ideas or tade some ideas anything can help and not much could make me feel worse.
Just become a cluster head, have perscription drugs, given up drinking, consuming litres of water, just holding on to my partner and rejoicing (I think ) that i don't have an evil brain tumor!!! Is remedial massage any good?? ciao lisa
After about 18 months of pain free days the headaches are starting back up. About 5 AM the relief from comes the attacks that started at midnight, and then they come back right around 10 AM and last until about 3 PM. This is completely different schedule from my last battle with them. They are beginning about 1 hour earlier each time, and lasting for about an hour longer.
Keep your head up everybody, as hard as it is.
Just needed to come back to the site .I'm about to enter my cluster cycle I can feel it.The thought of going through this again for the next 8 maybe more weeks is freaking me out on it's own .Been there before I know ,doesn't make it any easier tho.Having used oxygent,betablockers etc etc .If anybody has tried anything new that helps Please pass it on .. I'll cope with it because I have no choice ,but then again this is me just about to start it again . My thoughts are with you as only fellow suffer's can really know what it's like
I am 42 and started around 20 years old with my CH. They come like clockwork around every 2 years for 2 to 3 months. I never knew what they were until I researched it myself a few years ago. My doctor wanted to give me a preventative - high blood pressure medicine but I didnít feel it would work during a cycle so I just bought excedrin migraine and continued to read. Over time I heard about ice, which helps, and I also tie a bathrobe tie as tight as possible around my head like a ninja, until my head becomes numb. That also helps a little. It brings the pain from a 10 to a 7. Last week when my cycle started getting to peak again I got online to see what else I could do and found a sight called SinusBuster. I bought the stuff and got it yesterday. It worked instantly but didnít eliminate the headache all together but brought the pain to a manageable pain level of 2 to 3 which the ice pack took care of. I had to use 6 squirts instead of the recommended 1-3 but I would use the whole bottle if I had to. After using it before bed last night I slept all the way thru til 7am with no headache at all! I got up and was so excited but then I started feeling the dreadful twinges. I instantly used more nasal spray stuff and thru the ice pack on. The headache never got past a level 3 and went away after 15 min. Today is only my second day using it but I felt I needed to share this with anyone with a cluster headache because I would want to know if it was me. It was $9.99 and worth every penny. Iím carrying it around in my pocket like itís gold. Maybe itís a coincidence but I donít think my cycle is on itís way out yet, itís only been 3 weeks-I think the stuff works. You definately need more squirts than they say and you need some big squirts which burn but itís better than a CH. Also, donít forget to shake it.
Let me know if it helps.
Hi, fortunately for me I am not a CH sufferer but my brother is and after a two year break they are back. For now they do not seem to be coming every day but when they do they hit him twice a day. Probably not as bad as some of you sufferers out there. I really sympathize! For my brother what has worked until now is the IMITREX injections, he's on 0.5ml and it kicks in in about 5-7 minutes of a full blown headache. May be worth a try for some of you out there although they are very expensive here in Ontario Canada. Good luck to all out there!!
I can't email you so am posting here. If you go to www.clusterheadaches.org.uk and join OUCH UK there are quite a few other people of your age in the UK who suffer from CH. The Helpline (number on the website) can give you all the advice you can need.
Hi, I am eleven and am suffering from cluster headaches are any other kids out there suffering too ?
Right now the dread I have been feeling all day of the night ahead has been eased by finding this great website - thanks eveyone! It believe I am in week one of my third bout of CH in five years, the last one being 18 months ago. I seem to have classic symptoms of being wakened each night at around 1.00AM by unbearable pain which lasts for about 3 hours. My GP diagosed CH a few days ago but then left me high and dry in managing the pain. She has recommended a combination of 80mg of an anti-inflamatory drug, and also paracetemol, which so far has had no effect ! Can anyone help in confirming that I am waisting my time with these drugs ? When I am contemplating sawing my head off at 2.00AM tomorrow morining, I will take comfort in the fact that I'm mot alone. Any contact and advice from fellow sufferers will be greatly appreciated. Bye for now and keep up the fight ! Mark.
i had my first attack cycle in 2001 at the age of 41. you can see my original post if you wanna dig thru the archives. been cool since. for 3 years every time i felt a bit headachy i would run to the mirror and see if my eye was getting red and droopy. now, 40 months later, they're baaaaaccckkkk, but quite different. the first cycle was unbelievable pain at 4 p.m. every day for a week, followed by a tolerable headache for 2 weeks after. now i get no red-eye warning, but wake up at 2:30 a.m. with a whopper that lasts until 7. this has been going on for the past 3 weeks and they seem to be getting worse, but are not near as powerful as the ones back in 2001. i sure hope they stop soon and are not just ramping up. naproxen, ibuprofen, aspirin and vicodin don't touch it, but a hot shower lets me get back to sleep. i was pleased to see how many other people recommend that same remedy. good vibes to you all.
I just started having my cluster headaches again about 2 weeks ago after two years without them. I read somewhere they are generally among men ages 20 to 40 but I am a 42 year old female. I thought I had grew out of them but they're BACK . They sort of progressed slowly so I thought I was ok but the past 3 nights have been horror and my head is sore all day from the nights pain. I find some relief from ice packs, which aren't big enough to cover the whole side of my head and I was telling my husband that I wish I had an ice hat. He said "You're always sewing something, why don't you make one" I am seriously thinking about it but I've been too drained to actually do it yet. I also find relief by tying a bathrobe tie as TIGHT AS POSSIBLE around my head until the top of my head becomes numb. Today while web surfing I found a website having to do with a pepper nasal spray and ordered it. I can't wait to get it and try it. I pray it works because I am only getting by because of the anticipation of it. It's called SinusBuster and supposedly was found effective accidentally by a cluster headache sufferer when he was sprayed with pepper spray. Hell, I'll eat a jar of red hot peppers if it takes away my pain. Has anyone tried it? Does it work?
Has anyone tried squeezing pressure points in the web of the hand between the thumb and finger? I didn't have enough strength in my hand to put enough pressure so I used a pair of pliers. I don't know if it really worked on the headache but when my husband massaged my hand it seemed to help. I go to bed every night prepared with ice pack in thermal container, aspirin, water, pliers and bathrobe tie all within my reach. I don't take any prscription medication, I never have. I don't want the side effects so I try my own remedies. I will let you know about the pepper stuff, it's all natural. My husband was concerned but I said what's worse, some peppery nasal spray or taking a hammer to my head? Because that's what I feel like doing. Anyway, I hope I have a good night tonight and you do too. Try the ice.
Hi,everyone.My wife has been on here but my first time.I am going to Greensboro headache &wellness center tomorrow,for the second time. Ireally feel like I am wasting an 8 hr.trip.Has anyone been there?
first off I WOULD LIKE TO SAY THANKS AFTER 12 YEARS OF BEING ALONE I FOUND THIS WEBSITE The only time without the demon over 12years has been maybe 6mo total time about 5 to 8 daily so life aint been to great at this point if thay get to bad its the hospital for me and the good stuff I TAKE IMITREX FOR MOST PAIN BUT SOME THEY JUST DONT WORK sorry about the caps Im new every day its lithium topamax amitriptyline they really dont work all that much keeps the DR. happy Ill write much more later after 12 years do I got some good stories to tell I also have a book about done just need help getting it to book form by the way Im 55 years young again I say thanks alot and Iwill be back mostlikely more than you wantto hear from bigdaddyDave
I guess when I signed on this website I was hopeful of finding that there was a cure for the pain I have. So far there is not a lot of hope for ditching the headaches that I have. I have been under attack since Nov 2004. Started with as many as five attacks a day, however the frequency has diminished and now I am having one or two. This is the result of some severe medical treatments, prednisone and sansert. I have been using advil (400mg)and Ivermex (20mg)as pain killers. These work in time, just don't like to eat as many as I have to to stop the attack. Guess I feel that I don't have as bad a time as some of the others that I have read about. Feel for everyone that has this affliction
I have just found this site. I am still reading and crying. Others know how this pain feels. I need to send this info to my family members who have had to see me in this pain--I have never been able to describe the pain to anyone as well as it is described here. If they read this they will know.
Thanks for this site.
i left a message on the board around christmas,since then i moved to florida jan 5 well since then i am getting blasted with these goddam headaches 36 shots of imitrex later i am drained,i currently take 240mgs of verapamil,i went to see a vascular surgeon on the advice of my brother who is a chiropracter, the docter thinks i have temporal arteritis. my brother doughts that analogy. i dont know what to do anymore if theres anybody out there with some answers, please email me god bless everybody with this nightmare.
Hi, I am new here and probably not as serious a sufferer as some. I have tried almost everything and have yet to find anything that works, I just came out of a 5 year remission, "DAMN IT" and am currently in a month long cycle, I think. I just wondered if anyone else has the episodes where you wake to "THE BEAST" at about 2:30 A.M., have a 1/2 hour of inconvenience then get to sleep feeling like you have just won, and then get woken up at 5:45 A.M. With the 2nd wave that last for about 6 hours of incomperable agony? please post and let me know because if there are similar sufferers, chances are the remedies will be similar also. MOE.
GOOD LUCK EVERYONE and don't forget to turn off the lights.
I'm still waiting for a referral from my ENT to go to a specailist but from him and everything that I read, it appears that I am suffering from cluster headaches. They started a couple of days after Thanksgiving. After 2 really bad nights, I went to the doctor and was told that it was a signus infection. After 10 days, I wasn't any better and let the doctor know. My thought at the time was that I needed more antibotics. A week later, I ended up in a minor ER just to get stronger antibotics. Finally after spending all this money on doctors and medicines and not solving the headache problem, I went to an ENT to find out that it is not sinus and probably never was. At first it was scary because I wasn't sure what I have and at this point, I am still not sure. Hopefully I will get my referral and see neurologist in the next week.
I feel frustrated because when I first went to the doctor, I didn't have a fever, the pain was only on one side, I was not conjusted yet I was told that it was a sinus infection. Some where I read that clusters are often misdiagnosed as sinus.
Hopefully, I will be dianogsed soon so I deal with this. A couple of years ago, I had the same thing happen but the headaches stopped in a couple in about a week, so when it started this time, I remembered. It has been 7 weeks for me. I'm glad that I found this site, it has answered a lot of questions.
Thanks. Its good to know l'm not alone with these bloody headaches everything on this website l can relate to. Its been a great help.
Hi folks after having a clusterperiod from september till end of december i'm free of pain again. Used Oxygen en Maxalt en still use some propranolol 80mg a day....
For those who still suffer. I hope this will work for you too.
Well its been almost 3 months for me, no clusters. Verapamil is my wonder drug....... Thanks for all the info.
I just returned from Greenesboro headache clinic after headaches since March 04.4 shots in back of head and same old meds!Really burning out on this one.
I was like a lot of people treated for migraines. Finally diagnosed last year. Have been in remission since then. Exicited to find a site where I can chat with people who can relate to the pain. Husband is understanding, but until you experience this you never know.
I'm back. Three days no CH's. Is this the return of my remission? My last remission lasted 2 yrs. Imitrex spray rocks!!! To all: stay strong. God bless each & everyone who suffers!!! Peace.
Well shit! I have hade clusters off and on for 24 years and was pain free since May 2003 but now they are back :( I have to wait until next Wednesday to see my GP. My GP (same one for 22 years) understands clusters better than any Neuro I have seen so I guess I wait. Hopefully my stash of expired Imitrex injections holds out until then.
Hi everyone, I had to "come back home" to this site to help me through another cycle. Two years pain free(the longest remission period ever)and now it's back and as you can see so am i...hope everyone makes it through their cycle unscathed!!!
Hi Everyone! I'm 35 years old and have been dealing with these headaches off and on for the last 15 years. I was diagnosed as having migraines but when I read up on cluster headaches several years back, the symptoms were exactly the symptoms I was dealing with. Since the beginning, my headaches would wake me up out of a sound sleep. As of 6 days ago, they still do. The last bout with these excruciating headaches up until 6 days ago was about 3 - 4 years ago in April. When I had one for the first time I was given Fiorinal and it actually worked but 3-4 years ago it didn't and after going to the emergency room three nights in a row they gave me Imitrex and it has worked beautifully so far! I hope everyone can find the right treatment to help them get through these horrific headaches and hope my treatment will continue to bring me some relief. Good Luck to all of you!
this pain goes on and on!i cant find whats the reason even if i ve been in numerous of doctors.i am 24 and i ve been suffering from 13.i wish to all of us some day we will find cure.regards to everyone
wow- cant believe i found this website-- also cant believe there are so many other people out there going thru what i am...im 5 weeks into the mild headache all day long,then massive headache behind left eye after 10pm every nite..lasts 4 hrs..i did try oxygen,xylocaine-nose gel- percocet..doctor sez - well not much we can do about this ..you have cluster headaches..no shit sherlock,give me something to knock me out for 6 hrs so i can sleep....the worst part is the walking around in the dark,trying to figure what to do next,when i know i cant do a thing...but endure the firey left eyeball smashing pain for next several hours...oh yeah,then going into work as the boss thinks i was out drinking all nite..i only wish i was....great website !!!
Hi - I am an episodic sufferer - just started a new cycle. Last cycle I found this website and it was a great help to me. Through this site I learned about Magnesium and how that might help, and in fact it worked wonders for me. My Grandfather also suffered from CH (although they called it something else back then) and it kept him from accepting a major promotion later in his life. I wish he were still around so I could ask him more about what he went through. Last night I woke up twice in the night, once with a very severe headache, and then about an hour and a half after that one ended I woke up again with one that wasn't quite as bad. Anyway, thanks for being out there - it really helped me just to find out that there were others out there who know what it's like, and even to find out that it was in fact a "real" illness.
This sucks!!! I thought I was done with these damn things!!!!
I had been as regular as possible. Late summer(August, early Sept) for a month, give or take a week with 4 to 6 per day for 10 years. Then magically the summer of 2002 came and went without a bout, all of 2003 passes without a sniff, 2004 came and went without anything. I thought I was done. Last Monday night I woke up about 4am with "the feeling", I hadn't felt it in quite some time but I remembered quickly. I had Imatrex injections in my nightstand that expired a year ago so I didn't use them.. Fast forward to 6am, I found that even expired Imatrex works. I am two weeks deep and miserable. Reading many of your stories makes me feel blessed to have a good insurance plan. I hate it for each of you that can't treat this because of cost.
Last night I wanted to get a sledge hammer and bash my knee just so I might be able to spread the pain. Why are these so bad?
I am greatful for this site. It has helped me understand why I am a suffer of this condition. Though, I am a young sufferer for a woman who started at the age of 11 yrs. I believe there are ways to cope. Please consider ALL methods as an alturnative for help. Every person is different. LIC= Love In Christ!
My name is Bob. I was diagnsed with clusters about 4 years ago. The last month they have increased and have become more painful. I am hoping to touch base with other suffers. My world is becomming a very lonely place.
hi to everyone, at last im here, among the understanding! as a chronic sufferer for some twenty years it comes as no surprise to most of you that i've had to deal with this condition with little or no help. it has cost me my career, earned contempt from friends and family to such an extent that im practically an outcast. i have many experiences to share, and am willing to offer my help, such as i'm able, to all.
Hey everyone! Going on 5 months pain free except for a few warning twinges. Still, I don't go anywhere without my Imitrex and keep the O2 bottles full. For those who are currently in the middle of a cluster, you have my fullest sympathy; I'm 38 and have been wrestling with the demon since 1980. If you're feeling a little low on hope and are in need of encouragement, drop me an email. I wish everyone a pain-free and prosperous New Year!
I was misdiagnose with Sinus Rhinitis and a deviated Septum last year as the cause of my headaches. I just found out a week ago that I have Cluster Headaches. I'm glad for a website like this my work was starting to think I was lying. I have the chronic kind, and thought I was wered for rocking when I went through these spells or taking a HOT shower. I think the kip scale sums it up. "Pain level 10-Major pain, screaming, head banging, ER trip. Depressed. Suicidal." I was just put on Imutrex and hope it works. Does anyone else have any suggestions for prevention and suppression?
Well chaps it has been some time since I left a note in this space. I thought that I would just mention Verpamil. Some of the evidence from the sites survey shows that it has not been perceived well as I thought it might.
I have been on it for the last 2 years - a sufferer of up to 12 bouts per day - 6 weeks on blah blah blah. This year it has helped considerably reducing the amount to 6 - 7 bouts per day and with alot less pain - still has me crying though.
The main thing is that my GP changed my dose. I now take 2 tabs 3-4 x times per day but at 120 mg.
I asked about this after meeting a sufferer in Majorca last year - as rare as we are I happened to be sat by him by the pool when he was talking to his wife. You know the langauge we tend to use ''Twinges'' ''Attack'' '' has it gone yet?'' etc, etc., when an Imigran auto pen fell on the floor. As like this site we then talked and exchanged information - and one of his suggestions was the dose of Verapamil he was taking. Although he felt the pain he had gained a better control of his attacks (he being Chronic).
We still keep in touch and to date, since September he has been pain free, even as a Chronic - lucky bugger!!
All the best for now.
what do you do if you just cant face another one?
I am 28 years old and been suffering with this condition for 15 years! Iwas diagnosed last year. A few days before Christmas they came back! I am a mother of a disabled 7 year old boy. I cannot take care of him when I am having the clusters, my husband suffers because he feels helpless and has to take on my responsibilities. Currently I am on oxygen, imitrex and relpax, it's not working. I am going to the doctor tommrow but, cannot get in to see the neurologist for 3 weeks. I found the website yesterday in my despration to find something else to help. Just knowing other people have the same condition helps. I would like to correspond with someone in my city to get some help from local doctors. If you are in my area please drop me a e-mail. Goog luck to all.
Glad i'm not alone..........
Happy new year everyone. Maybe this is the year that we stop the beast!!!!!maybe we can find a silver
bullet. Or in this case a gold one. There is so many new cases it seems hard to believe. What could be
going on. Is it that everyone is finding this site? Is it that everyone is getting a computer .Wow what
could be going on. Just two years and this site has all most out groan it self. With all are pain itís un
thinkable. God never meant this to happen. What the other end of the deal. Do people have unthinkable
pleasure. well there right and wrong heaven and hell. I'm starting think what could be happen that new
that so many people are getting this. And the first thing comes to me is cell phones or the radio waves
they are putting so mush snuff in the air . Just because you canít see it itís there more and more every
day. Satellites beaming down at us. All this stuff goes right throw our heads. How do you go after them
this is so big!!!. what do i do throw a rock at them. Maybe i can hit them in the head and see how they
take the pain. we all know they canít take it no one can . well itís just some more things that are going
on in may head to let you all know. ps hope you all have better days. eggie
Just another Clusterhead for 10 years now.