Cluster headaches

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There have been MANY questions over the last couple of years about which medications work and which ones don't work, both to abort cluster's and to prevent them. Hopefully, this survey will make it easier for a new cluster sufferer, or someone who is looking for a new medication, to make a good decision about what to try next. What better resourse to use than sufferers from around the world who've "been there, done that"?

Answer the questions about the medications you've taken over the years to the best of your ability taking into account your history with clusters. Details of cycles sometimes change from year to year which will make it kind of tricky to answer some of the questions. Think back through your history with the headaches and answer the best you can.

In no way are all of the treatments or medications ever used to treat clusters listed in this survey. I've tried to include the "most frequently used" treatments and medications.

There is an "abortive" medication section, a "preventative" medication section, and a "suggestion" section to the survey. Please fill in the complete survey.

Some things to think about when viewing the statistics:

  • This is in no way an "all conclusive" survey. It may sound a little funny, but keep in mind that this survey is only being taken by people that have internet access and have actually found the site.
  • Because of that fact, these statistics my not necessarily reflect the true statistics of all cluster sufferers (male/female ratio, etc.) so take the information for what it's worth.
  • With all of that being said, this survey should give us some kind of idea what medications have been usefull to those of us that suffer. It won't provide us with a "cure all", but it may provide us some interesting insight to which meds or treatments work the best.

Stats are kept in "real time" so you will be able to stop back by this page whenever you like to see up to the second results.

If you have already submitted your information, DO NOT hit the "Submit" button at the bottom of the page. Instead, push the button below to see the current stats.

If you have not submitted your information yet, please complete the following form...

Abortive medications/treatments you've tried:

1. Imitrex (Imigran) injections

If you've tried Imitrex (Imigran) injections,
how long did it take for you to get relief?

2. Imitrex (Imigran) nasal spray

If you've tried Imitrex (Imigran) nasal spray,
how long did it take for you to get relief?

3. Imitrex (Imigran) pills

If you've tried Imitrex (Imigran) pills,
how long did it take for you to get relief?

4. 100% Oxygen via face mask

If you've tried Oxygen,
how long did it take for you to get relief?

5. Maxalt

If you've tried Maxalt,
how long did it take for you to get relief?

6. Amerge

If you've tried Amerge,
how long did it take for you to get relief?

7. Zomig

If you've tried Zomig,
how long did it take for you to get relief?

8. Ergotamine tablets

If you've tried Ergotamine tablets,
how long did it take for you to get relief?

9. Cafergot

If you've tried Cafergot,
how long did it take for you to get relief?

10. DHE injections

If you've tried DHE injections,
how long did it take for you to get relief?

11. Migranal nasal spray

If you've tried Migranal,
how long did it take for you to get relief?

12. Stadol nasal spray

If you've tried Stadol,
how long did it take for you to get relief?

13. Intranasal lidocaine

If you've tried intranasal lidocaine,
how long did it take for you to get relief?

14. Hot water (hot shower, hot towel, etc.)

If you've tried hot water,
how long did it take for you to get relief?

15. Cold water, cold air, or ice

If you've tried cold water, air, or ice,
how long did it take for you to get relief?

16. Narcotics (Demerol, Percocet, etc.)

If you've tried narcotics,
how long did it take for you to get relief?

17. Over the counter meds (Excedrin, Tylenol, etc.)

If you've tried OTC meds,
how long did it take for you to get relief?

18. Herbal remedies

If you've tried herbal remedies,
how long did it take for you to get relief?

 

Preventative medications/treatments you've tried:

19. Steroids (Prednisone, Decadron, etc.)

If you've tried steroids,
how long did it take for them to start working?

20. Calcium Channel Blockers (Verapamil, Nifedipine, etc.)

If you've tried CCB's (Verapamil),
how long did it take for them to start working?

21. Lithium

If you've tried Lithium,
how long did it take for it to start working?

22. Sansert

If you've tried Sansert,
how long did it take for it to start working?

23. Depakote

If you've tried Depakote,
how long did it take for it to start working?

24. Anti-inflamatories (Indocin, Midrin)

If you've tried anti-inflamatories,
how long did it take for them to start working?

25. Beta blockers (Inderal, Corgard)

If you've tried beta blockers,
how long did it take for them to start working?

26. Ritalin

If you've tried Ritalin,
how long did it take for it to start working?

27. Topamax

If you've tried Topamax,
how long did it take for it to start working?

28. Quitting smoking

If you've tried quitting smoking,
how long did it take for it to start working?

29. Changing your diet

If you've tried changing your diet,
how long did it take for it to start working?

30. Quit drinking alcohol

If you've tried quitting alcohol,
how long did it take for it to start working?

31. Accupuncture

If you've tried accupuncture,
how long did it take for it to start working?

32. Seeing a chiropractor

If you've tried seeing a chiropractor,
how long did it take for it to start working?

33. Large quantities of water

If you've tried drinking large quantites of water,
how long did it take for it to start working?

Suggestions to others of which medications/treatments to try:

34. With your experience, if you could suggest to a new cluster sufferer what three ABORTIVE medications to try (in order), what would they be?

35. With your experience, if you could suggest to a new cluster sufferer what three PREVENTATIVE medications to try (in order), what would they be?

 

If you have already submitted your information and would like to see the current statistics, please use the button at the top of the page.

If you have any trouble with this form, please let me know so I can get it fixed.

If this is the first time you have filled in this form and would like to enter your information, please read and understand the following paragraph, choose "Yes" and push the button below.

I understand that I can ONLY submit my information ONE TIME! If I submit my information more than ONE TIME, I will skew the validity of the data collected and make it useless to those of us that need the information so badly.

 

    

 

 


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