Cluster headaches

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Welcome to the only active survey in the world for those that suffer from cluster headaches. If you suffer from cluster headaches and have not filled in the form below yet, please take a few moments and a provide your information.

You should answer the questions to the best of your ability taking into account your history with clusters. Details of cycles sometimes change from year to year which will make it kind of tricky to answer some of the questions. Think back through your history with the headaches and answer the best you can.

In no way are all of the treatments or medications ever used to treat clusters listed in the survey. I've tried to include the "most frequently used" treatments and medications.

Some things to think about when viewing the statistics:

  • This is in no way an "all conclusive" survey. It may sound a little funny, but keep in mind that this survey is only being taken by people that have internet access and have actually found the site.
  • Because of that fact, these statistics my not necessarily reflect the true statistics of all cluster sufferers (male/female ratio, etc.) so take the information for what it's worth.
  • With all of that being said, this survey should give us some kind of idea about those of us that suffer. It won't provide us with a "cure all", but it may provide us some interesting insight to the condition. I guess we'll see.

Stats are kept in "real time" so you will be able to stop back by this page whenever you like to see up to the second results.

If you have already submitted your information, DO NOT hit the "Submit" button at the bottom of the page. Instead, push the button below to see the current stats.

If you have not submitted your information yet, please fill in the form below...

1. Your Gender
Male
Female

2. Your Age NOW
Under 20
20-29 years
30-39 years
40-49 years
50-59 years
60+ years

3. At what age did you first start having cluster headaches
Under 20
20-29 years
30-39 years
40-49 years
50+ years

4. Number of years suffering from cluster headaches
Less than a year
1-5 years
6-10 years
11-15 years
16-20 years
21 + years

5. What color are your eyes?
Blue
Green
Brown
Hazel
Grey
Other

6. When your clusters first started, had you received any medical trauma within the previous year? (i.e. head trauma, surgeries, etc.)
Yes
No
Don't remember

7. Does anyone else in your immediate family suffer from cluster headaches? (mother, father, brothers, sisters)
Yes
No

8. Are you sufferer of episodic or chronic headaches? Or have they changed?
Episodic sufferer only (periods of remission that last 14+ days)
Chronic sufferer only (no remission.   Headaches year round)
Started as episodic, now they are chronic
Started as chronic, now they are episodic

9. If you are an episodic sufferer, what is the average length of your cluster headache cycle?
Less than a month
1-2 months
3-4 months
5+ months

10. If you are an episodic sufferer, what months does your cycle usually start?
Spring (Mar - Apr - May)
Summer (Jun - Jul - Aug)
Fall (Sep - Oct - Nov)
Winter (Dec - Jan - Feb)
Completely at random times of the year

11. If you are a chronic sufferer, typically what is the longest period of remission you have?
1-2 days
3-4 days
5-6 days
7-14 days

12. Approximately how many headaches do you have per day? (both episodic and chronic sufferers)
1-3 headaches
4-6 headaches
7+ headaches

13. Through your history with clusters, which side of your face do your attacks occur?
Left side ONLY
Right side ONLY
I've had attacks on both sides

14. Do you regularly awake with an attack shortly after falling asleep?
Yes
No

15. Do you smoke? (if yes, please choose frequency)
No
Less than one pack per day
1-2 packs per day
2+ packs per day

16. Do you drink alcohol? (if yes, please choose frequency)
No
Only on special occasions (or a few days a month/year)
Only on the weekends (or a few days a week)
Daily (i.e. two or more drinks per day)

17. What ABORTIVE method has worked the BEST for you?
Imitrex (Imigran) Injections
Imitrex (Imigran) Pills
Imitrex (Imigran) Nasal spray
100% Oxygen
Cafergot
Migranol
Ergotamine tablets
Lidocaine nasal drops
DHE shots
Demerol shots
Mass quantities of water
Cold air
Hot shower
Combination of various treatments
Other
Nothing aborts them

18. What ABORTIVE method has worked the SECOND BEST for you?
Imitrex (Imigran) Injections
Imitrex (Imigran) Pills
Imitrex (Imigran) Nasal spray
100% Oxygen
Cafergot
Migranol
Ergotamine tablets
Lidocaine nasal drops
DHE shots
Demerol shots
Mass quantities of water
Cold air
Hot shower
Combination of various treatments
Other
Nothing else aborts them

19. What PREVENTATIVE method has worked the BEST for you?
Ritalin
Prednisone
Verapamil
Depakote
Sansert
Lithium
Elavil
Mass quantities of water
Combination of various treatments
Other
Nothing prevents them

20. What PREVENTATIVE method has worked the SECOND BEST for you?
Ritalin
Prednisone
Verapamil
Depakote
Sansert
Lithium
Elavil
Mass quantities of water
Combination of various treatments
Other
Nothing else prevents them

 

If you have already submitted your information and would like to see the current statistics, please use the button at the top of the page.

If you have any trouble with this form, please let me know so I can get it fixed.

If this is the first time you have filled in this form and would like to enter your information, please read and understand the following paragraph, choose "Yes" and push the button below.

I understand that I can ONLY submit my information ONE TIME! If I submit my information more than ONE TIME, I will skew the validity of the data collected and make it useless to those of us that need the information so badly.

 

    

 

 


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