Posted by Barbara D. on May 20, 1999 at 08:50:18:
In Reply to: Spouse of a CH Sufferer posted by Cathie on May 19, 1999 at 20:38:20:
Cathie,
Your post touched me. Just caring helps us. I know you can't understand the pain (my gosh, we can't either), but just knowing someone is there helps.
I agree with everyone, ASK him what he wants you to do - not when he's in a cluster, but when he's not - we don't think too good when we're in the middle of one and HATE to be asked questions when we can't think.
I've usually been alone during my CH cycles and to break them, I usually had to take DHE-45. After I got several days of IVs the doc usually had me do injections until they broke. I got where I could stick either side. After my hubby came home from overseas, he would do the injections for me every 8 hours. That really helped a lot (those damn things feel like battery acid going in your rear). Those things don't hurt as bad when someone else gives them as when you do it yourself.
Don't feel guilty about not getting up with him. That's the last thing we want to inflict on people we love. Just be there IF he needs you during an attack and afterwards WHEN he needs you. Like lc said, we don't understand your pain, but maybe through communication we can meet halfway.
Hang in there and our prayers are with you.
Hugs BD