Posted by Barbara D. on May 26, 1999 at 09:31:42:
In case you just joined us, OUCH (Organization for Understanding Cluster Headaches) is being formed as we speak. But help and input are needed. Please e-mail me your comments/suggestions etc.
We have a Plan in the works that includes Communication, Records Administration, Member Services, Outreach Programs, Government Relations, Medical R & D, and Marketing.
There are a lot of things under each of the above categories that are just begging for someone to spearhead them. This isn't the ARMY - you can volunteer. We all have stong points and talents. Figure out where you can do the most good, then e-mail me and we'll put you to work. This is a joint effort and we need Teamwork to accomplish it.
Those of you who have already offered to help - Thanks from all of us and YOU will be put to work - trust me on this one.
One of the things that has been discussed is Regional Chapters of OUCH. let's get some input on this. lcb, I know you have some ideas. Let's hear them.
Bobby G. has put together a great starting plan and everyone I've talked to is real excited about getting the ball rolling. But two or three people can't do everything.
Right now, I'm keeping files on everything, so if you have questions, suggestions or whatever e-mail me and I'll try to get some answers. There are probably 100s of things we haven't even thought of yet.
Hope to hear from you ALL soon.
Hugs BD