Posted by Linda B on May 26, 1999 at 13:01:22:
In Reply to: Do We Need A NEW NAME? posted by Bobby G on May 25, 1999 at 17:55:56:
Bobby,
I agree it should be changed, but Cluster Headache is all ready in the med book`s. I also like Margi tell them about the Cluster part. Believe me when I`m done they have a headache. Granted most people dont know what a CLuster Headache is. Yet they do know about Migraine`s. I ask them if they know about Migrane`s of course they say YES. Then I tell them that`s a walk in the park let me tell you about Cluster.
I do have to throw in I went to the store the other day to buy my pm med`s. The sale`s lady said "Look`s like someone has a headache" When I said " Yes it`s Cluster`s" She is the first that I had met that knew what it was. This lady felt so sorry for me she wanted to give me all the med`s in the store. No charge.
Getting the word out is what we need to do. I`m hoping with NPO this will happen.
Hug`s Linda