Posted by Linda B on June 04, 1999 at 12:45:54:
Son`s test result`s all came back negative. So now we have the MRI to do. I took him yesterday to have his eye`s checked 20/20. So we can rule that one out to. Like I didnt already know. This can be so maddning. Wish something in some form would show up this way doctor`s can say "Yes you have CH it`s a for sure answer." Instead we have to go through countless testing to have all that ruled out then then they finally say "Yes you have CH." I almost want to tell them yea well tell me something I dont know. Son an I are hanging in there. At least`s it`s not a tumor or something like that.
Me I `m doing alot better. At a 1 on the Kip scale. Which is normal for me. I live in the shadow world. Which I can handle just fine. Guess alot of you can tell I`m doing better from some of my post`s.
Man when I hit a 9 it`s really hard to come in and read the post then try to answer back.
Ok Barb D. I`m back and I`m ready to rock. Watch out ya all. OUCH here I come.
Did you hear anything more on the spot on the radio for CH?
I want to THANK YOU all for standing by me. I have to admit I`m better listning to other`s and helping. It`s harder for me to come out and admit I`m hurting. I`m gald I did. You guy`s are GREAT. Ok yea yea tell you something you dont know:-) We have a very special group of people here. Now if I could just get ahold of this anonymous person!!
All my love to all of you. From me and my son
Hug`s Linda B