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Posted by DonnaM on July 09, 1998 at 09:36:56:

Well after having intense clusters since May 18, on the fourth of July I thought that I had found my independence. Almost as quickly as they came, without notice, they left. The thing that I find about CH's is that they are unpredictable, somewhat like hurricanes (I live in the south). Just when you think you have them figured out, they change course. Anyway after three days without no drugs (yeah), I started having a slow return of the headaches. First 1 firinol, and then 2, then an imetrex to stop the brain seisure already way. I feel like I am slipping back into my depression and wondering if I will ever be pain free. Several days before July 4th, they were so intense my neuro put me on sansert. I took maybe three days worth and quit as I couldn't take the side effects. Do you think this stopped my headaches for a few days and that is why they are back. I haven't done anything different. Am really getting sick of this. My vacation is coming up in August and praying to be pain free. Thanks again DJ and everyone else for this wonderful board and the support.


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