Posted by Linda B (208.30.90.18) on June 16, 1999 at 19:54:28:
In Reply to: Re: OUCH posted by Bob Kipple on June 16, 1999 at 17:16:41:
Dear Linda,
Sorry about the first one my finger nail hit the wrong button? O.U.C.H. is a Organization for Understanding Cluster Headache`s.
See all of us CH suffer`s have gotten tired of doctor`s, medical Co, Insurance Co, goverment an people in general not understanding or helping what we are going through. So we desided to form a NPO. Non-profit Organization to get the word out. Get the back up that each suffer need`s. In just a month`s time we have grown and became very strong. We are not at this time a NPO, but we are working on it.
Barb an other`s are getting the bylaw`s down. Other`s are working as councler`s, fund raiser`s, convention`s, News letter`s etc........ This is just not for the suffer`s it is also for the family`s or loved one`s of a CH suffer. They are also a big part of making all this work.
The bottom line is "We got sick and tired of being sick and tired."
As Kip said other`s might have more to say. this is just the jest.
Hug`s Linda